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12-04-2015 09:38 PM
@namealreadytaken wrote:
@Lucky Charm wrote:Hi Helen, I hope you're doing well. Not sure if you're newly diagnosed or if you've been dealing with this for a while.
There's a book called 'In This Together' by Ann Romney that's about finding out she had MS, the initial devastation and fears and overcoming them.
She's very soft spoken and a very calming person and although I haven't read the book myself, I'll bet she touches base for other's struggles with understanding.
She was at a point barely able to walk and thought she would be wheelchair bound, but was able to run the last lap with the Olympic torch. She's in remission now.
I hope you're feeling better and the holidays weren't too much to get through.
Just wanted you to know you're being thought of here.
It's a great book, she is a great advocate and her story sounded a lot like mine. In the beginning, just being totally devastated and then through faith and family, moving on to a better place. I was fortunate enough to meet her on one occasion and hear her tell her story. I do believe anyone with MS can find encouragement from her experience.
How nice it must have been to have met her!
She's been on a show at least 3 times that I watch (Hallmark's Home and Family) and talks in depth about MS.
She has a cookbook and cooks on the show and whlie she's cooking (pretty healthy) has the most delightful stories about her huge family.
She has like 20 some grandchildren. I could watch her all day.
She's coming back again soon to talk more about a study she's going to be in at the Ann Romney Center for Neurologic Diseases at a hospital in Boston.
Maybe you can catch her on Hallmark daytime programming.
12-06-2015 06:07 PM
tomorrow I have to start solumedral IV drip for 3 days. I am frightened and don't know what to expect.
I'd love to hear Ann Romney talk about her MS. I never met her but I do know her horse and dressage trainer!
12-06-2015 10:51 PM
@Helen Bach wrote:tomorrow I have to start solumedral IV drip for 3 days. I am frightened and don't know what to expect.
I'd love to hear Ann Romney talk about her MS. I never met her but I do know her horse and dressage trainer!
OMGosh Helen! I hope it all goes well tomorrow. Maybe her facebook page? I have no idea. Or bloggers with MS?
Yes, she talks of her horses and how she gets physical and emotional therapy from them.
I wish you the very best tomorrow. Please let us know how you're doing, when you can. Sending out positive thoughts to you. From so many here, too, I'm sure!
12-07-2015 12:20 PM
Thinking of you Helen and hope things go ok with the drip. I remember my friend doing every treatment she could for her MS. Last treatment she did this year was Chemo. I don't see her getting any worse in the last few years thank goodness. Best wishes to you.
01-28-2016 07:56 PM
i have had ms for 14 years. i have a nerologist and for last 6 years i allso have a ms specialist. he does most treatments . he has me taking vitam.0in b3 5000 and b3 1000 and cod liver oil pills every day. it soposed to help out ms plus i am on ribif. i havnt had a reaction in 7 years but i can walk but not as well as before. good luck helen.
s.oposed to h
01-28-2016 08:30 PM
i just wrote about taking vitamins and i wrote b3 5000 and b3 1000 the correct numbers are d3 5000 and d3 1000.
01-28-2016 11:01 PM
I wish there were more posters on here discussing MS. I would like to find out more about MS. Very good friend is dealing with MS.
01-31-2016 04:46 PM
i find if im over heated from ms a gool cold shower and rest for alittle while makes me feel much better.
02-14-2016 09:32 PM - edited 02-14-2016 09:44 PM
02-16-2016 05:29 PM
Hi Everyone, I'm back! Since I had the 3 day treatment IV drip, I can walk again. It made me super sick at first, and then it was like a miracle. I can even feel the bottom soles of my feet. I do not take one minute for granted, I've been hiking and walking outside on flat ground. Thanks to everyone for their replies. And Cater, what would u like to know?
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