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05-30-2023 01:49 PM
05-30-2023 02:54 PM - edited 05-30-2023 02:55 PM
@Trailrun23 wrote:Update on my sister....BIL said a new infectious disease dr. came in this morning and said the lumbar puncture will happen this afternoon and only then will he know exactly which virus or bacteria is involved. They are giving her a lot of antibiotics just in case it is not viral and will go with more specific antibiotics when they get the results back. BIL did say she was lucid for a short time this morning so that was reassuring. Her fever is down but still fluctuating. Thank you so much for your continued prayers. Hoping to hear about a treatment plan and definite diagnosis today. Her diabetes is a problem since she is not eating. I wanted to send flowers or a plant but BIL said can't have them in her unit. Don't know why that is.
@Trailrun23 My daughter is a Surgical Intensive care nurse. When the condition is like your sister's, they don't want anything like that in a sterile environment.
Sending prayers for your sister!! Hang in there!
05-30-2023 08:02 PM
@DrakesMomma wrote:Call the facility she is at. See if you can talk to one of the nurses caring for her.
Why? They won't give her any information about her sister. They prohibited by law from disclosing confidential information. They'll transfer the call to her room, if can take calls.
05-31-2023 04:50 PM - edited 05-31-2023 04:52 PM
I spoke to BIL a few hours ago. They have done all kinds of tests and so far have now ruled out meningitis, encephalitis, lyme disease, and toxoplasmosis. They still don't know what she has...her fever is now down and they are flooding saline to hopefully flush out whatever is in her system. He put me on speakerphone and I was thrilled. I said hello but there was a long pause before a "hi". She just doesn't seem to be able to retrieve words but is now following commands even though it takes awhile to process.
She was ready to eat real food this morning and as soon as her tray arrived they took her for an MRI. I think she is better but BIL doesn't seem have more info. I think he is overwhelmed....She has always been the caretaker and now it is reversed. I am so appreciative of everyone's prayers and thoughts.
I hope they don't send her home before they find out what's wrong....even if she is improving. The dr told BIL they were baffled. They have a team of infectious disease and neurologists trying to figure it out.
05-31-2023 04:51 PM
I am very sorry. Sending prayers.
05-31-2023 05:04 PM
Sending healing prayers for your sister. And you.
06-01-2023 09:04 AM
I am praying for your sister, too, @Trailrun23. Clearly, your sister has had some kind of event that has affected her brain. It is interesting that they have ruled out the most obvious potential causes. Did she recently eat anything out of the ordinary (like escargot or sushi or unwashed berries), or something else that might have been undercooked- like eggs, or salmon, or pork? Did she use any recalled eye drops? (I have watched way too many Mystery Diagnosis type shows in the past.)
Wishing her an uneventful and quick as possible full recovery. If she is having trouble recalling words, it may take a while.
06-02-2023 02:39 PM
Am curious as to whether your sister had sepsis?
06-02-2023 10:52 PM
Thanks for asking about sepsis. I have not heard BIL mention it before.
This has been a real rollercoaster this week.
Update: the drs recommended she go to a short-term rehab facility. They sent her home late today instead. It is unbelievable.
Her spinal fluid was clear. She had a small stroke about two months ago and had trouble with her balance afterwards but it had become much better. BIL said last week, before he called the ambulance, she had quit talking much and speech was slurred; and was having trouble walking...and her eye and corner of her mouth was droopy; that sounds like another stroke to me but he says the drs never mentioned a stroke...just went straight to the neuro dr and meningitis, etc. clearly she had another stroke. Many tests and drs remain baffled. She is now on an antidepressant and an antibiotic as a precaution in case they missed something. Offical diagnosis: viral pneumonia. She is on a restricted diet and BIL has no idea what to give her to eat. Soft foods, cut in tiny pieces, and low sugar. Any suggestions? I am hopping on my broom and flying there on Sunday evening. Thank you so much for all your prayers. You may want to pray for the health care workers and charge nurses after I get a hold of them....
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