Lyme disease

GingerPeach · ‎03-12-2010

Someone I just reconnected with recently told me he had suffered with Lyme disease for 7-8 years but recently heard of something called Global immunotherapy. He is just beginning to try it.

I have no idea whether it helps or not, but in case you or your daughter who has this disease are interested in researching, he claims it has given positive results to others. Again, I do not know this from my own personal knowledge but thought I'd pass it along in case you want to look into it.

Sorry that sounds wishy-washy, but if there's information out there, maybe it deserves a look. It can be tried or rejected depending on whatever you find out.

[was Homegirl] Love to be home . . . thus the screen name. Joined 2003.

LilacTree · ‎03-25-2012

@GingerPeach

I don't think there is anything about Lyme Disease that my daughter doesn't know . . . but I will mention it to her.

Thank you so much for thinking of her.

Formerly Ford1224
We must always take sides. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. Elie Wiesel 1986

GingerPeach · ‎03-12-2010

Best wishes. I know it can be so devastating, @LilacTree

[was Homegirl] Love to be home . . . thus the screen name. Joined 2003.

Vickiv · ‎06-15-2015

Lyme disease I contacted when I was 74. I never go in the woods and I do not live near a wooded area. I don’t even know where I caught it. One day I’m looking at my stomach and I see this rash a big bullseye and I showed it to my daughter-in-law and she said it’s Lyme disease get to the doctor. He put me on antibiotics for a few weeks. And I remember I felt like I was coming down with the flu. Not realizing what was really wrong. I can’t imagine having this and not getting treated for. Like so many people have done with no rash. Then this disease takes over your body and the battle begins. I know how I would feel I would try anything to control this. So thank you for the new information but hopefully somebody can learn by it. I am fine now but I do think if the other people who are really suffering.

LilacTree · ‎03-25-2012

@GingerPeach wrote:
Best wishes. I know it can be so devastating, @LilacTree

@GingerPeach

Yes, it is devastating. She has had it probably since her teens, but never had any symptoms or the "bullseye rash." She would get flu-like symptoms once in a while when it was not flu season, but it never lasted. We always thought it was a low level form of Chronic Fatigue Syndrome.

Then about six years ago, it hit hard and has never let up since. No doctor could diagnose it and they all took many tests. Finally, a specific Lyme test revealed she had Lyme.

Unfortunately, the medical society does not believe in chronic Lyme, and she's been mocked, disregarded as a kook, and summarily dismissed by the mainstream medical industry.

It has changed her completely, both physically, mentally, and emotionally. We live together and I see it every day. She is now on weekly IV infusions of vitamins and supplements, which seem to be working far better than the antibiotics she had been taking for years . . . which only made her sicker.

I haven't had a chance to talk to her about the Global immunotherapy email (I forwarded yours to her), but when I see she's in a receptive mood, I will ask her. I myself will be looking into it today.

Thank you again.

Formerly Ford1224
We must always take sides. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. Elie Wiesel 1986

Teddie · ‎03-10-2010

I’m really glad to see your daughter is on good nutritional therapy, @LilacTree. I feel that’s the answer and how wonderful you can see she’s showing improvement.

It sounds like she already has a good doctor, but I wanted to mention some time back that Dr Lee Cowden has an excellent reputation for treating Lyme disease nutritionally, etc. What an awful shame that your daughter has had to suffer for so long. : (