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05-31-2016 01:11 PM
Good news and bad news. Good news . . . I have an appointment with Dr. Kiriakidou! Bad news . . . it's not until September 19th!
This did not surprise me. I talked at length with her admin, "Judy," and she is putting me on a waitlist for any cancellations that come up. I am being called a "new patient" because they don't have the records that far back when I saw her at U of Pa. There was very little computerized record-keeping (if any) ten years ago. She also told me to call in every several weeks to check on cancellations. She was extremely nice and did not seem in a rush to get me off the phone, so we did talk for more than ten minutes during which I told her how much I liked Dr. Kiriakidou and that I am willing to wait to see her again.
I will be seeing my PCP next week and will advise her that I am changing RA docs and the timeframe. I will also advise my LTC insurance company.
It's a long time to wait, but this is the first time I have some hope that I will be treated by someone who really cares. Judy told me she hasn't changed, she's still the caring (and best) RA doc she has always been.
I wanted to let you know ASAP, as it was our conversation that led me to this new, hopeful path ahead.
I can't thank you enough for posting that article, although rereading it several times, I think I am too advanced in my RA for this new treatment if it even becomes available during my lifetime. But that led to this . . .
Also her street address is 211, which is my former apartment number, and my present address is 2111. Judy suggested I play those numbers in the lottery!!
Have a great day!
05-31-2016 06:16 PM
September will be here before you know it!
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