Re: EDS

Kachina624 · ‎03-10-2010

wrote:
Noel, thanks for your post. Really helpful. Sorry you also have Lupus.
She also has had IBS for many years, I wonder if that's related to EDS too.
We live in MN - I wonder about that chair here. She is told she shouldn't lift the twins, they are 24 1/2 pounds now and 34 inches in height. But when no one is there she has to and they love their Mommy to hold them. She got a lot more painful with the pregnancy with the twins. My other daughter is a massage therapist and one of her clients has EDS and she does have bones that slip out of joint. My daughter doesn't. Just severe back pain! She is on part time this semester and can teach two classes on line, and that helps, but the Dean hopes in the Fall she can go full time. How old is your daughter, mine is 45.

@gloriajean. The Americans with Disabilities Act, to which @Noel7. referred, is a federal law so it would definitely cover your daughter regardless of where she lives. She should get documentation and a recommendation for the chair from her doctor and present it to her supervisor who should forward it to the HR department. Keep copies of everything from now on. You can read the ADA online under the US Department of Labor website. Seems like her specialist is very busy so, since she has been diagnosed, perhaps her primary doctor would help with a recommendation for the chair and anything else she needs.

New Mexico☀️Land Of Enchantment

Noel7 · ‎03-09-2010

wrote:
wrote:
Noel, thanks for your post. Really helpful. Sorry you also have Lupus.
She also has had IBS for many years, I wonder if that's related to EDS too.
We live in MN - I wonder about that chair here. She is told she shouldn't lift the twins, they are 24 1/2 pounds now and 34 inches in height. But when no one is there she has to and they love their Mommy to hold them. She got a lot more painful with the pregnancy with the twins. My other daughter is a massage therapist and one of her clients has EDS and she does have bones that slip out of joint. My daughter doesn't. Just severe back pain! She is on part time this semester and can teach two classes on line, and that helps, but the Dean hopes in the Fall she can go full time. How old is your daughter, mine is 45.
@gloriajean. The Americans with Disabilities Act, to which @Noel7. referred, is a federal law so it would definitely cover your daughter regardless of where she lives. She should get documentation and a recommendation for the chair from her doctor and present it to her supervisor who should forward it to the HR department. Keep copies of everything from now on. You can read the ADA online under the US Department of Labor website. Seems like her specialist is very busy so, since she has been diagnosed, perhaps her primary doctor would help with a recommendation for the chair and anything else she needs.

@Kachina624

Thanks for the procedural information!

gloriajean · ‎03-10-2010

Yes, Thanks Kachina624 for that information. I will pass it on to her.

Bri36 · ‎02-20-2017

@gloriajean, I'm so sorry about your daughter. Having babies and dealing with pain must be so tough on her.

gloriajean · ‎03-10-2010

A little update: She started a lady counselor today and likes her, has her every week now and her ins. pays. Hopefully and prayerfully help is on the way for her. Tomorrow she will be looking for a foldable office chair so she can take to restaurants, when there isn't any booths, She just wants it for at home. Has a good office chair at school she uses for faculty meetings.

Thanks everyone who is so caring. Thanks too for your prayers.