Reply
Respected Contributor
Posts: 2,169
Registered: ‎08-31-2019

Re: Connective Tissue Disorders

Having worked in the medical field, I've seen a couple of patients' struggle with this awful disorder. I'm saddened you're one of them, as well.

 

You come across as very strong, carrying such a burden. And, you're always willing to step up to offer caring advice to others here.

 

You've not allowed this illness to poison your lovely spirit. You are the light we'd all hope to be, in facing serious challenges.

 

I'm glad you felt comfortable enough to share your journey here. Everyone has trials, but they're made easier when we don't feel alone with them. Best to you always. {{{hugs}}}

Honored Contributor
Posts: 9,795
Registered: ‎03-27-2010

Re: Connective Tissue Disorders

[ Edited ]

@SilleeMee 


@SilleeMee wrote:

In my wreckage I've found hidden treasures in myself. Things like being more humble, being more compassionate and learning to live for today...in the moment!  Everything happens for a reason, good and bad.


Beautifully said.  I've always enjoyed your posts and had no idea of the challenges you face daily.  The way we deal with the trials we face, is the true merit of a person.  I admire your strength.  Wishing you the very best that is possible every day.

Esteemed Contributor
Posts: 6,711
Registered: ‎02-22-2015

Re: Connective Tissue Disorders

@SilleeMee From previous posts, I was aware you were not healthy and often suffering. However, you had never (to my knowledge) shared the extent of your medical problem. Your strength and resilience keeps you a charming and friendly person who contributes well to any conversation. It's a pleasure to "know" another person who doesn't let their health ruin their personality. You live with a devestating disease with grace and dignity.

Thanks for sharing what your life is really like. It was painful to read, but so beautifully written in such a positive attitude. Your physicians must find your office visits a joy in comparison to their other patients!  Keep up the great attitude. Gentle air hugs.  

Honored Contributor
Posts: 27,742
Registered: ‎05-22-2016

Re: Connective Tissue Disorders

Thank you so much everyone! 

 

But this thread is for @hick  and not about me. I hope the OP comes back and gives us an update of their diagnosis. In the meantime I wish the OP the best of luck. 

Respected Contributor
Posts: 2,016
Registered: ‎03-10-2010

Re: Connective Tissue Disorders

Thank you, @SilleeMee, for letting us know what you must deal with every day.  You are a very strong person and a very lovely one, too. I wish you the very best possible day every day.  I had no idea of your daily struggles until now.  

 

You did not hijack the post at all.  You simply reminded all of us that we must be kinder to everyone who posts at this forum, because none of us have any idea of the types of personal challenges, experiences, illnesses, or intense issues others face, unless or until a person elects to reveal them. Thank you for that reminder.

 

 

Honored Contributor
Posts: 13,588
Registered: ‎07-09-2011

Re: Connective Tissue Disorders

[ Edited ]

@SilleeMee 

 

Sending you {{{Soft Virtual Hugs}}}.

 

***I may not be able to do a certain thing today,

    Perhaps I will be able to tomorrow.

    I will do what I can today,

    And appreciate what each day brings.

💙💙💙

  

"Animals are not my whole world, but they have made my world whole" ~ Roger Caras
Respected Contributor
Posts: 4,036
Registered: ‎07-25-2010

Re: Connective Tissue Disorders

@SilleeMee  🌷❤️🙏

Honored Contributor
Posts: 13,570
Registered: ‎03-10-2010

Re: Connective Tissue Disorders


@SilleeMee wrote:

I  was diagnosed with scleroderma almost twenty years ago. It has affected almost everything in and on my body, not to mention the emotional and psychological effects which have also happened to me.

 

Scleroderma means 'hard skin'. But it is more than just an autoimmune skin disorder. It involves everything which has connective tissue....and that's almost everything.

 

I have heart valve, lung and kidney involvement. Malnutrition and low vitamin levels from malabsorption issues. Incontinence (comes and goes) with both #1 and #2. My hands are permanently in fists where my fingers can't move and cutting my nails has become a huge problem...my rheumy suggested I get my nails permanently removed. I have chronic joint pain everywhere, my neck especially. I have dental problems....lost 6 teeth and gums have receded so much that now I need work done. I have extreme hair loss. My skin is so tight in areas, including my face, that it hurts and itches all the time. 

 

There's more. I know! I sound like a complete mess but that's what it is. It's taken a long  time to get along with living and there were times I thought I couldn't do it any more. But I'm still here and doing okay. Smiley Happy


I am so very sorry, as you know my dad had this, it is very scary.Heart

When you lose some one you L~O~V~E, that Memory of them, becomes a TREASURE.
Honored Contributor
Posts: 13,588
Registered: ‎07-09-2011

Re: Connective Tissue Disorders

@hick 

 

Have you gotten any additional information from your physicians?

 

Wishing you Well

"Animals are not my whole world, but they have made my world whole" ~ Roger Caras
Honored Contributor
Posts: 10,908
Registered: ‎03-09-2010

Re: Connective Tissue Disorders

@SilleeMee ,

Oh I am so sorry all you are going through. We just don't know do we what each of us goes thru every day. My heart goes out to you.

"If you walk the footsteps of a stranger, you'll learn things you never knew. Can you sing with all the voices of the mountains? can you paint with all the colors of the wind?"