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Respected Contributor
Posts: 2,070
Registered: ‎03-12-2010

Wishing all of you a Happy New Year! I hope 2015 will be a good year for everyone.

My cousin starts his new chemo next week, but he's still not sure if he can get some help with the cost of the pills he needs to take (which will be about $480/month). He met with his oncologist yesterday, and signed some papers that will be submitted for review (I'm not sure who reviews them). His insurance won't pay anything for the pills, but they will cover the chemo infusions. He's worried, because he isn't working and is on limited income.

Super Contributor
Posts: 1,354
Registered: ‎11-30-2011
On 1/1/2015 Lyn08 said:

Wishing all of you a Happy New Year! I hope 2015 will be a good year for everyone.

My cousin starts his new chemo next week, but he's still not sure if he can get some help with the cost of the pills he needs to take (which will be about $480/month). He met with his oncologist yesterday, and signed some papers that will be submitted for review (I'm not sure who reviews them). His insurance won't pay anything for the pills, but they will cover the chemo infusions. He's worried, because he isn't working and is on limited income.

Lyn08, I hope you don't mind me sticking my nose in and doing some quick research for you/your cousin. I can't post a link from my Kindle so here goes the whole kit and caboodle. I would also get in touch with his local American Cancer Society chapter as they are a wealth of info.

National service organizations

The Cancer Financial Assistance Coalition (CFAC) is a group of national organizations that provide financial help to patients. CFAC provides a searchable database of financial resources.

CancerCare's financial assistance programs (800-813-4673) provide limited financial assistance for people affected by cancer.

The HealthWellFoundation (800-675-8416) is an independent, non-profit organization that helps insured patients with a chronic, life-altering disease afford their medications.

The Leukemia & Lymphoma Society's patient financial aid program (800-955-4572) provides limited financial assistance to patients diagnosed with a blood cancer (such as leukemia, lymphoma, or multiple myeloma) with significant financial need to help defray treatment-related expenses.

The National Foundation for Transplants (800-489-3863) provides fundraising assistance for patients needing transplants, including bone marrow and stem cell transplants.

Local service organizations

Local service or volunteer organizations such as Catholic Charities, Jewish Social Services, the Lions Club, Lutheran Social Services, the Salvation Army, and others may offer financial assistance. Some of these organizations offer grants to help cover the cost of treatment and other expenses, while others provide assistance with specific services or products, such as travel or medications. A social worker or an Internet search can provide you with a list of organizations. Many hospitals and clinics also maintain a list of service organizations in the community.

The American Cancer Society (800-227-2345) and the local United Way office can also direct people to services in their community.

General assistance programs providing food, housing, and other services may also be available from your county or city Department of Social Services (check the local telephone directory or online for contact information).

For direct financial assistance, people can contact their city's Department of Social Services.

Community-based groups, such as local churches, synagogues, mosques, and lodges may also provide assistance for people with cancer, sometimes even if the person is not a member of that particular organization or religion. Some hospitals also have private funds available for patients in need.

Often, cancer advocacy and patient information groups have resources for patients. Get a list of patient information resources to connect to cancer organizations nationwide.

Travel and housing assistance

Air Care Alliance (888-260-9707) offers a central listing of free transportation services provided by volunteer pilots and charitable aviation groups.

Air Charity Network (877-621-7177) coordinates free air transportation for people in need through various organizations around the United States.

Air Compassion for Veterans (888-662-6794) provides wounded warriors, veterans, and their family members with medical air transportation through commercial airline tickets, air ambulance services, and other programs.

Angel Airline Samaritans (800-296-1217) facilitates no-cost or reduced rate commercial airline tickets to and from distant specialized medical evaluations or treatments for people with cancer in need and their families.

The Corporate Angel Network (866-328-1313) arranges free air transportation for people with cancer traveling to treatment using empty seats on corporate jets.

The Healthcare Hospitality Network (800-542-9730) is an association of more than 200 nonprofit organizations that provide lodging and support services to families and their loved ones who are receiving medical treatment away from home.

The American Cancer Society’s Hope Lodge (800-227-2345) gives cancer patients and their caregivers a free place to stay while receiving treatment in another city. Currently, there are 31 Hope Lodge locations throughout the United States.

Joe's House (877-563-7468) is a nonprofit organization providing a nation-wide online service that helps cancer patients and their families find lodging near treatment centers.

LifeLine Pilots (800-822-7972) are volunteer pilots who donate their time and all flight expenses to people in need of free transportation for on-going treatment, diagnosis, and follow-up care.

National Patient Travel Center (800-296-1217) provides information about long-distance travel for people with cancer and their families in need of travel.

PALS (Patient AirLift Services) (888-818-1231) has a network of volunteer pilots who provides people with chronic illnesses air transport services at no cost.

Ronald McDonald House Charities (630-623-7048) offer free or reduced-cost lodging for families of seriously ill children who are receiving treatment at nearby hospitals.

Medication and treatment cost assistance

Medication assistance programs grid for patients (PDF), which is compiled, updated, and generously provided by Wendalyn Andrews, Practice Manager, Division of Hematology/Oncology, The University of Arizona Cancer Center, Tucson, Arizona. (Last updated: June 2013)

Chronic Disease Fund (877-968-7233) helps underinsured patients with a chronic disease obtain medication.

NeedyMeds.com (800-503-6897) is an information source on companies that offer patient assistance programs. These programs help those who cannot afford medications to obtain them at no or low cost through the manufacturer.

Partnership for Prescription Assistance (888-477-2669) helps qualifying patients who lack prescription drug coverage obtain the medications they need.

The Patient Access Network Foundation (866-316-7263) assists patients with out-of-pocket costs associated with their treatment.

Patient Services, Inc. (800-366-7741) provides assistance with insurance premiums and co-payments for people with chronic diseases.

RxHope.com (877-267-0517) helps patients obtain free or low-cost prescription medications.

General financial information

The American Childhood Cancer Organization maintains a list of organizations offering financial assistance.

The Assist Fund (855-845-3663) provides financial support to chronically ill patients with high-cost medications.

The Patient Advocate Foundation (800-532-5274) provides education, legal counseling, and referrals for people with cancer who need assistance managing insurance, financial, debt crisis, and job discrimination issues.

CancerCare's Tips for Finding Financial Assistance section and Financial Help for People with Cancer fact sheet provide information on financial resources.

Cancer Family Relief Fund is a charitable organization that encourages and facilitates grants to children whose parent or guardian is struggling with a diagnosis of cancer. These grants support the children's extracurricular activities so that they may feel some sense of normalcy as their parent focuses on treatment and recovery.

Financial Health Matters, a booklet available from the Leukemia & Lymphoma Society, offers information and tips on money management, health insurance, and financial resources.

The LIVESTRONG Foundation offers a section for survivors on planning your financial future.

The National Cancer Institute offers links to support and resources, including information about cancer support organizations, finances, insurance, and hospice and home care.p

Super Contributor
Posts: 323
Registered: ‎03-20-2010
Thank you ladies for the congratulations and good wishes. I really appreciate them. It truly was a great holiday gift. I rarely drink, but had a couple of Mojitos last night. Lol. The Oncologist said I should be cured. I'll be having a CT scan on Feb. 2nd to find out for sure. My Oncology nurses were great too. They gave me a certificate of completion at the end of chemo and applauded too. It was nice. Yes, if anyone is going to start chemo and is apprehensive about it, please don't hesitate to write to me. I wish all of you the best and pray for better health for all of us in 2015 and beyond. Sue ??
Respected Contributor
Posts: 2,070
Registered: ‎03-12-2010

Lyn08, I hope you don't mind me sticking my nose in and doing some quick research for you/your cousin. I can't post a link from my Kindle so here goes the whole kit and caboodle. I would also get in touch with his local American Cancer Society chapter as they are a wealth of info.

F1Wild: Thanks so much for your research and for taking the time to provide me with information about various organizations that may be able to provide assistance to my cousin. I will copy this information and forward it on to him. I'm hoping his oncologist will be able to get some financial assistance for him to cover some or all the cost of the pills he needs to take. His insurance will cover the cost of the infusion drugs, but not the pills (which I can't understand). He may also need more support down the line, as his cancer is inoperable, and he's had it for 2 1/2 years.

Valued Contributor
Posts: 837
Registered: ‎04-14-2010
F1,thanks for your great post! So much info. Thanks you have probably helped a lot of people. Goldie
Contributor
Posts: 23
Registered: ‎03-17-2010
Hi everyone. Wed was first chemo. Everything was going well until my last half hour,vomiting started. Easy fix they said and next I get the antivomitting med before we start that injection. Thursday was awful. Vomitted about eight times that night. An oncall dr prescribed something to take. Did not work so another oncall dr called and we picked up something different. That seemed to work. Finally got some sleep. Today went back to get the one chemo drain that was down out if my port. A real shower when I got home. Off to take a nap now. Good thought for everyone here.
Honored Contributor
Posts: 18,490
Registered: ‎03-09-2010

rizzos--am confused about your chemo! I took anti nausea pills on my own at home, via a prescription before chemo and then the day of chemo had an infusion of anti vomit meds and then some zofran for home use. I had MAYBE.... 2 or 3 times when my tummy was slightly iffy and that was all. Was told there is no reason for any vomitting as that is the one thing that can be controlled. Make sure your onc dr knows what happened to you--maybe your dosage will have to be adjusted, but she/he needs to know. Also, make sure you write EVERYTHING down each day as a reminder for you and then to hand over to your nurses or dr to review. I found that helped so much. I didn't have to rely on my chemo brain that way.

What is your chemo treatment, if you don't mind sharing?

PAM

Respected Contributor
Posts: 2,500
Registered: ‎09-23-2011

Oh brother Rizzo. You should have been Zofran. They were suppose to give it to you IV before you started chemo with a prescription to take home. WEll, dear heart now you have to start drinking because you don't want to get dehydrated from all of the vomiting. Have a banana or two as well. Rest up and write when you feel better.

F1 you are wonderful to post such important information. Personally I found most of my help with cancer care. American Cancer society not so much. Even though I didn't need anything. However your resources will surely help Lynn's cousin.

Jxx

Respected Contributor
Posts: 2,667
Registered: ‎03-13-2010
On 1/1/2015 Lakk said:

35 years cancer free, wishing everyone a healthy New Year.

I want to be able to say that someday!!! Wishing you many more.....

Regular Contributor
Posts: 158
Registered: ‎01-03-2015
On 1/1/2015 Lyn08 said:

Lyn08, I hope you don't mind me sticking my nose in and doing some quick research for you/your cousin. I can't post a link from my Kindle so here goes the whole kit and caboodle. I would also get in touch with his local American Cancer Society chapter as they are a wealth of info.

F1Wild: Thanks so much for your research and for taking the time to provide me with information about various organizations that may be able to provide assistance to my cousin. I will copy this information and forward it on to him. I'm hoping his oncologist will be able to get some financial assistance for him to cover some or all the cost of the pills he needs to take. His insurance will cover the cost of the infusion drugs, but not the pills (which I can't understand). He may also need more support down the line, as his cancer is inoperable, and he's had it for 2 1/2 years.

This is F1wild. QVC has blocked me for some reason so had to reregister until things get sorted.

I would even suggest contacting the pharmaceutical/manufacturer of the drug. Sometimes they will help, believe it or not. Also, your regular pharmacist can often find ways to lower the price. My Dad's pharmacist has helped him immensely with a few meds he takes.