Cancer survivors - Page 148

HerRoyaLioness · ‎03-13-2010

On 1/1/2015 F1wild said:
I know my maladies are nothing compared to many of you. Maybe I'm just in a horrible mood.

I had my endocrinology day yesterday at Mayo. Lots of labs in the morning, including an AM Cortisol test. I met with my wonderful endo doc in the afternoon to go over results and further discuss my ongoing symptoms, which have been crazy, to say the least. My body has been in constant fluctuation - body temp 98-97.5-102, freezing one moment sweating profusely the next, glucose anywhere from 70-370 without food or anything to spike it, double vision, confusion, blood pressure 110/70-185/98-70/50 all over the place, fatigue, no appetite. Oh and the real fun one - I gained almost 25 lbs since November without changing my diet at all - oatmeal, fruit, yogurt, fish, veggies.

My Cortisol is 2. She said is should definitely be higher. I'm wondering now if the test should be done differently since I'm up most nights very late. She is concerned about my pituitary glands and hypothalamus since these problems all point to that area. Plus, are now known as a result of Yervoy. She's ordered an MRI of my brain to be done Weds.

Then tonight I had dinner with my Mom & Dad. Supposed to be a festive holiday dinner. Instead I hear, "Well, at least I'm not a hypochondriac like you." My reply, "I'm not a hypochondriac. I'm trying to get over cancer, treatment and the fallout." "No, you're a hypochondriac." "Mom, do you think I faked cancer, had surgery for fun, am healthy now?"

I left early, came home and cried.

F1 - I don't know how you can deal with all this. The bad part is that it is easier to deal with all the physical stuff than a thoughtless and hurtful comment, from your mom no less.

Our bodies are never the same after chemo, radiation and whatever other treatments we get. We are left to deal with all the garbage our poor bodies have to try and clean up. Only those who have gone through some of these things really know what we are talking about. I think you have been very brave in dealing with all of what you have had to.

Most days I feel like an uncharged battery right from the get go. I have very little to run on, and when it is gone, it is GONE. I have diabetes also, and I know that doesn't help anything. It is a curse in of itself.

You just hang in there - you have gone through more than most and I hope you can get some relief and get things balanced soon.

LL

F1wilder · ‎01-03-2015

On 1/3/2015 Lannie said:
On 1/1/2015 F1wild said:
I know my maladies are nothing compared to many of you. Maybe I'm just in a horrible mood.

I had my endocrinology day yesterday at Mayo. Lots of labs in the morning, including an AM Cortisol test. I met with my wonderful endo doc in the afternoon to go over results and further discuss my ongoing symptoms, which have been crazy, to say the least. My body has been in constant fluctuation - body temp 98-97.5-102, freezing one moment sweating profusely the next, glucose anywhere from 70-370 without food or anything to spike it, double vision, confusion, blood pressure 110/70-185/98-70/50 all over the place, fatigue, no appetite. Oh and the real fun one - I gained almost 25 lbs since November without changing my diet at all - oatmeal, fruit, yogurt, fish, veggies.

My Cortisol is 2. She said is should definitely be higher. I'm wondering now if the test should be done differently since I'm up most nights very late. She is concerned about my pituitary glands and hypothalamus since these problems all point to that area. Plus, are now known as a result of Yervoy. She's ordered an MRI of my brain to be done Weds.

Then tonight I had dinner with my Mom & Dad. Supposed to be a festive holiday dinner. Instead I hear, "Well, at least I'm not a hypochondriac like you." My reply, "I'm not a hypochondriac. I'm trying to get over cancer, treatment and the fallout." "No, you're a hypochondriac." "Mom, do you think I faked cancer, had surgery for fun, am healthy now?"

I left early, came home and cried.

F1 - I don't know how you can deal with all this. The bad part is that it is easier to deal with all the physical stuff than a thoughtless and hurtful comment, from your mom no less.

Our bodies are never the same after chemo, radiation and whatever other treatments we get. We are left to deal with all the garbage our poor bodies have to try and clean up. Only those who have gone through some of these things really know what we are talking about. I think you have been very brave in dealing with all of what you have had to.

Most days I feel like an uncharged battery right from the get go. I have very little to run on, and when it is gone, it is GONE. I have diabetes also, and I know that doesn't help anything. It is a curse in of itself.

You just hang in there - you have gone through more than most and I hope you can get some relief and get things balanced soon.

LL

Thank you for your great support, Lannie and everyone else. I grew up with a martyr mom, everything was supposed to be perfect all the time, even if it meant fibbing. Everything was always "Great!". I swore I would never be that way. I guess I couldn't if I tried.

I was borderline diabetic before CA treatment, now I'm on 3 injectables. BP was always low, now I'm on meds for that. Also thyroid, cardio, hydrocortisone, meds for chronic pain, etc....oh and of course I take my 81mg aspirin, 50+ multivitamin, B-complex, C and Omega-3. I'm a walking talking pharmacy. At Mayo cafeteria Mom says (super loud because she can't hear), "I think you should stop taking all of those pills!". Gosh, I never thought if that. My dad came over last night to help me with a few things. He says he understands my frustration as she's beyond mean to him as well, "But she does a lot for me."

Sorry to vent...

JackieHN · ‎09-23-2011

Well F1 I'm telling you your mother and my mother were sisters in another life. I tried to ignore my mother's comments as hurtful as they were. Now she's gone and I wish I could hear her nastiness again. Let it go in one ear and out the other if you can. I use to say my mother just like to hear herself talk.

How did you get blocked?? No matter they will straighten it out. Do you post anywhere else on the QVC boards/?

Lannie, I get my energy at 2am. During the day I'm dragging. I mind as well be back at work. I worked 8pm-8am. Last night I shredded papers and cleaned out makeup. Tonight I may wash floors. Husband thinks I'm bonkers.

Jxx

ukseahawk · ‎09-24-2012

Hi F1 and Jackie - my mom is also related to your mothers. My only sibling passed away several years ago and I am still not her favorite child!

Jackie - feel free to come to my house to clean any day at 2am...

UK

wagirl · ‎03-09-2010

Well girls----then my mom is related to the above sisty uglers as well!!! She passed away a year ago and I hadn't seen her in over 20 years prior, due to her being buckets of crazy and attacking her grand kids verbally as well as her 3 kids spouses. Anyway----- yes---Jackie---while you are at UK's place, just swing by my house and do your thing---if you bring New York water, I'll bake the bagels!!!!! ${#emotions_dlg.w00t}$

PAM

JackieHN · ‎09-23-2011

See F1 a lot of us had toxic mothers. They brought all of the mental anquish that they had with their mothers to us. They all needed to be therapy.

Well, ladies gear up Santa's reindeers and I'll be over at 2am to clean since we live all over the map.

Rizzo are you OK. The puking should be over with. Now you should feel like you were run over by a truck. Please eat and drink fluids.

Jxx

AkaGoldie · ‎04-14-2010

Rizzo, I hope your nausea and vomiting is over, please speak up and let your chemo Nurses know , they can usually get the meds you need. There are too many anti nausea drugs available to suffer with vomiting. I'm afraid you are going to feel pretty rough. It will get some better. Let us know how you're doing, Goldie

Lyn08 · ‎03-12-2010

My cousin (who has esophageal cancer) was supposed to start his new chemo program yesterday (Monday), but he wasn't feeling well (thought he had a cold in his chest) and the weather is brutal (11 below zero yesterday morning).

I had a phone call from him this afternoon, and he is in the hospital with the flu. His red blood count was very low, so he was given a blood transfusion. He said he may be in the hospital 2 to 5 days. He is in the cardiac unit, I suppose because he had heart surgery a few years ago.

I'm really worried for him. I wouldn't imagine they'd start chemo until he gets rid of the flu, but not sure what they plan to do. He had a flu shot, but I understand the vaccine doesn't work with the type of flu this year.

I'd appreciate your good thoughts and prayers for him. I pray for all of you as well every night.

embgm · ‎07-02-2014

Lyn08, I have been reading this thread for a while now and appreciate all of you ladies battling cancer yourselves and your concerns for your loved ones. You have no idea how helpful you have all been in my own battle against this disease. I have and will continue to pray for all of you and especially for your cousin. A

wagirl · ‎03-09-2010

Hey Lyn---he won't get any treatments until he is much better and hopefully he will get better soon!! This flu thing is a hit or miss and I'm sure he is way more susceptible to any nasty bug. Glad he is where he is. I'd be worried too. And bravo for him not waiting til he got worse. So glad you and he are close. Of course he has my best wishes and prayers. Keep us posted!!!

PAM