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11-02-2023 01:10 PM
I do weekly infusions to keep my immune system healthy just its s hassle but before this I used to get pneumonia at least once a year. Last time I was since was Jan 2020 in isolation for 8 days with double pneumonia and Flu B. Yes they can be a hassle and annoying but it helps me in so many ways. I have had both pneumonia shots twice and have no immunity, in fact that is one of the defining factors if this crazy immune issue
11-02-2023 01:13 PM
@I am still oxox I know an infusion has to be a hassle, but I am glad there is treatment available to help you establish immunity. Stay well!
11-02-2023 01:23 PM
Sorry about the hassle of getting infusions. I'm glad they're helping you stay healthy. Best Wishes to You!
I took monthly infusions to boost my immune system several years ago. I was still teaching at the time, and they really helped reduce my number and severity of infections.
I've been retired a few years so I'm not taking them right now.
11-02-2023 02:26 PM
@wilma Its nice they were able to do that for you, for most people this is a lifetime commitment
@wilma wrote:Sorry about the hassle of getting infusions. I'm glad they're helping you stay healthy. Best Wishes to You!
I took monthly infusions to boost my immune system several years ago. I was still teaching at the time, and they really helped reduce my number and severity of infections.
I've been retired a few years so I'm not taking them right now.
11-03-2023 10:59 AM - edited 11-03-2023 11:07 AM
@I am still oxox wrote:I do weekly infusions to keep my immune system healthy just its s hassle but before this I used to get pneumonia at least once a year. Last time I was since was Jan 2020 in isolation for 8 days with double pneumonia and Flu B. Yes they can be a hassle and annoying but it helps me in so many ways. I have had both pneumonia shots twice and have no immunity, in fact that is one of the defining factors if this crazy immune issue
@I am still oxox @Hello oxox. I remember that you were suffering from headaches and were trying to figure out why. When I was reading about infusions for CVID the article I read said that headaches are a common side effect of these infusions. I've added a quote about this below. It's from a highly reputable source.
"The majority of people do well with IVIG, experiencing only minor side effects. IVIG may cause infusion reactions, which may present as fevers, chills, flushing, rash, muscle aches, and nausea. Headaches are also relatively common. These are generally not severe and improve with analgesics and antihistamines." Quote from the International College of Rheumatology.
11-03-2023 12:07 PM
@Mindy D My headaches predate the infusions, but thank you
@Mindy D wrote:
@I am still oxox wrote:I do weekly infusions to keep my immune system healthy just its s hassle but before this I used to get pneumonia at least once a year. Last time I was since was Jan 2020 in isolation for 8 days with double pneumonia and Flu B. Yes they can be a hassle and annoying but it helps me in so many ways. I have had both pneumonia shots twice and have no immunity, in fact that is one of the defining factors if this crazy immune issue
@I am still oxox @Hello oxox. I remember that you were suffering from headaches and were trying to figure out why. When I was reading about infusions for CVID the article I read said that headaches are a common side effect of these infusions. I've added a quote about this below. It's from a highly reputable source.
"The majority of people do well with IVIG, experiencing only minor side effects. IVIG may cause infusion reactions, which may present as fevers, chills, flushing, rash, muscle aches, and nausea. Headaches are also relatively common. These are generally not severe and improve with analgesics and antihistamines." Quote from the International College of Rheumatology.
11-03-2023 12:57 PM
@Mindy D Also I do not do IVIG which is through your vein, I do SCIG, whihc is through your skin
@Mindy D wrote:
@I am still oxox wrote:I do weekly infusions to keep my immune system healthy just its s hassle but before this I used to get pneumonia at least once a year. Last time I was since was Jan 2020 in isolation for 8 days with double pneumonia and Flu B. Yes they can be a hassle and annoying but it helps me in so many ways. I have had both pneumonia shots twice and have no immunity, in fact that is one of the defining factors if this crazy immune issue
@I am still oxox @Hello oxox. I remember that you were suffering from headaches and were trying to figure out why. When I was reading about infusions for CVID the article I read said that headaches are a common side effect of these infusions. I've added a quote about this below. It's from a highly reputable source.
"The majority of people do well with IVIG, experiencing only minor side effects. IVIG may cause infusion reactions, which may present as fevers, chills, flushing, rash, muscle aches, and nausea. Headaches are also relatively common. These are generally not severe and improve with analgesics and antihistamines." Quote from the International College of Rheumatology.
11-22-2023 10:14 AM
Another week another infusion, so be it, it has become a weekly thing, I am very glad when it goes well
11-22-2023 10:25 AM
@I am still oxox I feel badly for you. It seems you have had far more than your share of various illnesses. Life can be a challenge at times and I wish you the best.
I feel very lucky that I've never gotten so many of the problems that many here have had...never had pneumonia, Covid, etc. I have gotten my share of occasional colds but most were when I was younger and not taking care of myself.
Now that I'm older I do what I can to be well and find that meditation helps a lot to feel good.
Wishing you a happy holiday season!
11-22-2023 10:28 AM
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