@house_cat wrote:
@sfnative
I had no idea you were a sufferer, as well. I'm sorry to hear that.
Do you still live in California? I like the new doctor I'm seeing at Cedars-Sinai in LA, but he's a doctor, not a miracle worker. In the meantime I'll keep hoping for a miracle. It is encouraging to know that there are new meds in the works.
@house_cat
No, we don't live in CA any longer. A few years ago, when my daught became pregnant, we decided that the perfect time to retire and so moved to Portland to be near them and take an active part in our granddaughter's life. The medical community here is frankly just not good. Admittedly, many docs come here because they love the Pacific Northwest and easy access to winter sports on Mt. Hood, which is a fast 45 minute drive. This doesn't necessarily equite to excellence in medicine, however, just a lot of C grade practitioners.
I went to a pain doc to get an injection into a trigger point, left of center at the base of my skull, which is a component of my migraines. He had the audacity to tell me I was wrong and that I needed an injection into the nerve complex about 2 " higher up on my skull. I told him to go ahead with it, but it wasn't going to do any good, which it didnt. The worst part, though, was that this was done in a hospital and so used all hospital linens on the table I was placed on. The "cup" aparatus used to hold my head was covered with a hospital terry cloth towel and it was quite rough. Anyway, about 4 hours later, my neck started itching, then the itching got worse and worse and worse. When I awoke the next morning, you would not believe what I looked like: I had 3 turkey necks, all swollen and red and itching like crazy. Had o find a Derm stat. This new Derm told me I was clearly super allergic to the soap the hospital had used on the towel. I wanted to walk around with a bag over my head. LOL! People were staring at me!!! Told DH that I wasn't going to go outside until this thing settled down, which took 3 whole weeks. I should have made plane reservations and gone back to my Pain doc in San Diego for the darn injection!
Again, I'm so glad you mentioned what your Cedars Neuro said about a new med being released near the end of the year. I sure hope it's something I can take. Also, with the new Admin, look for pressure on the FDA to loosen up new NDAs (New Drug Applications) and to move forward quicker (as Europe does). I was involved for a number of years in clinical research and trials and cannot begin to tell you of all the feet dragging that goes on.
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