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Honored Contributor
Posts: 24,603
Registered: ‎03-13-2010

Re: Social Security Headache


@Kachina624 wrote:

Somebody wrote a detailed description of her experience with SSD and a child or sibling just a couple days ago.  Anybody remember the thread?


@Kachina624 

 

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Spent most of the yesterday visiting my sister.  She's disabled but she does amazingly well.  Total...
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Respected Contributor
Posts: 3,319
Registered: ‎05-02-2017

Re: Social Security Headache

 

There are several kinds of SS, so it is not clear about what you are speaking.

 

Retirement, disability (SSDI), and Supplemental Income (SSI) are all separate programs.

 

First, you must have worked to apply for SSDI or SS. The application process for social security disability is rather complex because there is a lot of attempted fraud, and the office is very vigilant in reviewing all medical records. This is taxpayer money going out, and so there are many parameters to meet to justify the funds going to an applicant.  Your state has a major role in approvals.

 

The normal application process takes at least three to five months.  Approval can take up to two years! Using a specialist disability lawyer will increase your chances as less mistakes are made.  Lawyers prices are capped, I believe, at $7200.00 (you do not pay unless you are approved. 

 

Usually only 50% or less of applications are approved, and many involve appeals. 

 

Regarding SSI, there are both medical and financial requirements that must be met.  However, autism can be a qualifying condition.

 

However, those who access social security retirement funds usually find everything processes more smoothly, and they can do the entire application online.

 

Yes, being a caregiver is a challenge, and I sympathize with you. However, the system is NOT alive, so it cannot be ignorant or irresponsible, and due to all the checks and balances, is probably not flawed or rigged.  Inefficient, perhaps, but if you use expert assistance that could help you.  

 

Please take some time for yourself to practice self-care, as caregivers are at very high risk of stress and medical issues themselves.

 

Best wishes for you and your child.

Esteemed Contributor
Posts: 7,462
Registered: ‎03-13-2010

Re: Social Security Headache

Easy, flawless process for me.

Respected Contributor
Posts: 4,997
Registered: ‎03-12-2010

Re: Social Security Headache

I have gone through some of this with my daughter - autism is part of it.

 

We finally got a lawyer to handle most of it.  It does cost you part of any funds you may get, but it got too much to handle.

 

SS as retirement is much less complex and can be done yourself.

 

Hyacinth

Honored Contributor
Posts: 14,620
Registered: ‎03-09-2010

Re: Social Security Headache

 


@katie1859 wrote:


 

My parents went through this many years ago when my then-52 year old sister had a massive stroke. It can be trying, to say the least. It took about 4 months to get my sister set up.

 

Remember, reps at any company, including government offices, don't have to listen to a person who is too angry, yelling, abusive, etc. Once they hang up on you, you'll have to start over.  

 

How about setting up an appointment so you can go meet with someone at your local SS office?

 

It is what it is. You won't change it.

 

You'll catch more flies with honey.

 

 

Honored Contributor
Posts: 13,510
Registered: ‎05-23-2010

Re: Social Security Headache

[ Edited ]

@katie1859 wrote:
I apologize, I should have been specific.
I've navigated the process since my son was a child.
I'm not sharing fir people to comment, I needed a perspective from other experiences.
For the first time my son can and has held a job. He doesn't earn a great deal, but enough to perform as a "normal" person with living costs.
They hit me out of left field with a astronomical overpayment and it's been a nightmare. Not so much financially but they have blamed me. I am not paid, don't seek earnings, I simply care for my son and all his re quirements. I was posting if possibly anyone has had the same issue.

@katie1859 @The SSD and SSI do have programs for this situation and even offices to help with getting jobs (Vocational Rehab Program which I think is associated with the Ticjet Program), however, you do need to speak with them by phone to find out how much money can be earned and under exactly which circumstances or you could lose benefits. Additionally, a change in, I think it's Medicaid, just went into effect. It had required filling out some paperwork or a loss in benefits would result. My adult niece is on working with partial SSD program. I think it's part of Ticket to Work. Her guy is on SSI and he's unable to work. Ms IMac is correct with her post. Go to the website and look at Ticket to Work. You should still speak with Social Security about how much your son can earn. There could also be stipulations that could be affected if your son is your dependent on your taxes. 

Esteemed Contributor
Posts: 7,984
Registered: ‎10-04-2010

Re: Social Security Headache

@FancyPhillyshopper    I totally agree.. There is a lot of fraud and I am glad the process is thorough so that it is given out to people who deserve it and not scammers.   People throw out the word "rigged"around here often because they don't like the process.   Some just the other day had a thread about the lottery being rigged/.  .  

Honored Contributor
Posts: 22,222
Registered: ‎10-25-2010

Re: Social Security Headache

From my comprehension from reading the op's comments, she is frustrated about the SS program requesting funds that were overpaid to her son to be returned.

 

Apparently, they're accusing her of not doing something right regarding paperwork that lead to this problem.

 

I am not sure why posters are assuming she wants a paid to be his caregiver or why they are cutting and pasting SS guidelines.  That's not what she is asking for.

 

She wants to know if there are others who she can commiserate with.  Who else has had problems with SS that left them frustrated?

Respected Contributor
Posts: 3,772
Registered: ‎05-21-2010

Re: Social Security Headache

@katie1859   

I worked for the Medicaid program for years before I retired. People on Medicaid are usually receiving either Social Security benefits or Supplemental Security (SSI), two different programs. So I was familiar with both programs. 

 

Things may have changed but the recipient or the recipient's authorized representative is usually required to report a change in circumstances. Employment for someone receiving SSI D especially must be reported. If you have been dealing with the Social Security administration since your son was a child I assume that he is receiving SSI. This is a government funded program and you must meet certain income requirements not just disability requirements to be eligible. If you or your son failed to report earnings and they have decided to recoup an overpayment this does not make the Social Security officials any of the adjectives that you have used. And like another poster said they will not listen to you ranting and calling them names. You can request a hearing and try and work something out. Good luck.  

Esteemed Contributor
Posts: 7,618
Registered: ‎04-20-2013

Re: Social Security Headache

The process is long and frustrating but there is a great deal of fraudulent activity connected with SS & funding isn’t robust. I have a friend who had two disabled children but one has passed & SS was a God send for him & his family. He was frustrated navigating the system but contacted his representative here in NJ who was a great help. You might try that?