Community Chat

[PhatCat]

I was diagnosed with MS in the mid 90's due to brain lesions that were found. In 2000 I had a spinal tap and the fluid was clear, no MS. Ended up the lesions were from having Lyme disease. Glad to read you are having a spinal done, that is the definitive diagnostic tool. Good luck

[HiLo]

On 9/1/2014 Furry said:

Hello,

I am sorry about the possible diagnoses of MS. I was diagnosed with MS 12 years ago. I went to three neurologist and was finally diagnosed at Hopkins. I was unable to tolerate the spinal taps and those that tried weren't too good at it. The doctor at Hopkins was able to diagnose and provide treatment without the spinal tap. The National MS Society is the first place that I would start. Once you start a medication, there are seminars provided by them. They provide a wealth of information. You may also meet new people at the seminars who you can relate with. In addition, there are several websites that you can visit that offer forums ie: MS World, MSAA, Jooly's Joint , and etc. If you google MS forums, you will find many more. I know that it is scary. However, I am doing great after 12 years. I still do the things that I love. I just have to rest more. If you would like to talk more, please let me know. I will answer any questions that I can.

Best Wishes!

I think this will be a very helpful post for the op. Glad you were able to go to Hopkins; they are one of the best. That is where I got information about my health problem that was invaluable. But I do hope you will consider getting nutritional counseling even if it is not mentioned at Hopkins.

To the "are you kidding" person above: A compromised immune system is know to be the underlying cause of disease.

[RibbonsRosesRainbows]

My mother had ms and was diagnosed at 29........I was 14 at the time.........I hope that you will get the magazine Neurology NOW and you can probably sign up on line for free.......it is for people with neuro diseases and again it is free and they always have tons of information on MS. There is a MS Society that can help you and an MRI would show if you had leasions on your brain........my mother was very bad and had the worst MS ever but I know people with MS and they are doing good and driving and working part time. It is important to BE STRESS FREE as possible and I would make sure my D3 Levels are checked because the doctors say that a person is 62% less likely to have MS if they have good D3 levels in their blood......I doubt my mom had much D3.......so I always advise people to take D3 and be sure and have a 25 Hydroxy test to show where they are in D3 levels.........also it can be lupus.........or I pray just a bump in the road and you are healed......my mother said THE YEAST CONNECTION book was a great book and it told a person what not to eat........I spoke to Richard Pryor about this when he was diagnosed....he was so appreciative of the information I gave him back in 1994...........I am believing you will be fine because there are levels of MS..........I would take the shots........but you have to make up your own decisions along with your doctor.....I am not telling you what to do.......it is up to you and your doctor........but it can be other things........my mother starting seeing double and would drop things in her hand and feel numb...........please keep us posted.........they have come a long way since my mother died in 1998.........and she would not take the recommended medicine because it was new and she did not want the side effects but I think it would have helped her but NO stress is what you need and my step dad was mean to her and left her while she was sick........no one in our family has this disease and I have not met a mother and daughter that has had it.......DOES anyone else in your family have this disease? I am sorry but I would make sure they know it is MS.............

[RibbonsRosesRainbows]

Furry..........I am sorry you was diagnosed with this disease but I am so happy you are doing good. A good friend of mine lives alone, is doing good, drives, etc...........does anyone else in your family have this disease? Again, great news to know you are doing good. Praying for you and all.

[RibbonsRosesRainbows]

On 9/1/2014 FATCATinCT said:

I was diagnosed with MS in the mid 90's due to brain lesions that were found. In 2000 I had a spinal tap and the fluid was clear, no MS. Ended up the lesions were from having Lyme disease. Glad to read you are having a spinal done, that is the definitive diagnostic tool. Good luck

I am so happy FatCatinCT.............you do not have MS.

[lovescats]

On 9/1/2014 hopeQ1 said:

I am sorry that this might be a probable diagnosis after Tuesday's tests. I must suggest that you get all of your education from sources outside of these forums. Sadly, often many posters here feel the need to state things that won't be beneficial or uplifting if you do have it. But there are many great websites where you can obtain good information.

Prays are with you.

Your advice reminds me of happyhousewife.

pjoy my prayers are with you and I hope you keep us updated.

[Thrive]

I had difficulty with my spinal tap because my vertebrae are very close together. I had it attempted in office and at a hospital under fluoroscopy. It is not the only way to diagnose MS.

[Mama Mia]

(((((((pjoy))))))))))))

mm

[CharmTx]

pjoy, I got a definite diagnosis of MS six months ago though I started having symptoms about a year and a half ago. All of my tests indicated MS. My neuro doc wanted to start me on meds a year ago but I wasn't convinced that I had MS. Thought I was too old to have MS since most people start having symptoms at a much earlier age. No more doubts as of six months ago. I started on injections 5 months ago and am hoping for the best. The biggest thing I have noticed is more fatigue and I can no longer tolerate this Texas heat. I hope that you don't have MS but, if you do, there are good medications and good information out there. National MS Society.org was the first place that I went to for information.

[BaileyandBella]

I am sorry you are going through this. I was DXed with Lupus in my early 30's and it was about a 4 year process, it was a nightmare not knowing.

I am sure there are some great online support forums you might find helpful.