Multiple Sclerosis diagnosis - Page 2

irishmama5 · ‎04-18-2013

If your on FB there are very good informative sites one would be overcoming MS. There are FB groups that explain everything from holistic to traditional approches. GOOD LUCK ALSO like others have said wait for positive diagnosis

ROMARY · ‎04-28-2010

I believe MS and also Parkinson's are difficult to accurately diagnose. Or at least they were, a few years ago. Anyway, try to get a firm diagnosis, if possible. And take care of yourself, as others have mentioned. Hopefully, all is well.

'More or less', 'Right or wrong', 'In general', and 'Just thinking out loud ' (as usual).

hyacinth bucket1 · ‎02-17-2013

I was diagnosed with MS in 1998. The National Multiple Sclerosis Society is a great resource for information.

hopeQ1 · ‎07-02-2014

I am sorry that this might be a probable diagnosis after Tuesday's tests. I must suggest that you get all of your education from sources outside of these forums. Sadly, often many posters here feel the need to state things that won't be beneficial or uplifting if you do have it. But there are many great websites where you can obtain good information.

Prays are with you.

Yahooey · ‎07-09-2010

I have no advice but wanted to send you good thoughts and prayers.

glb613 · ‎03-09-2010

On 8/31/2014 HiLo said:
My long post just got poofed. Good advice to make sure of the diagnois; both my daughter and niece were wrongly diagnosed and that has been 27 for one and 13 years for the other.

My brother has lived with M.S. for almost 25 years now. He has done quite well; drives on many long trips a year and walks with a cane. His advice to you would be to avoid stress as much as possible and to get a lot of exercise. I would also add seeing a good nutritionist who will recommend the right diet with supplements to build up your immune system. It is said that a compromised immune system is the cause for many of our illnesses.

I would definitely agree with Kicks (above) and heed her advice. I would go to the top for a certain diagnosis if at all possible even if such help is not located nearby. I have learned not to depend on local doctors as the source of absolute truth these days. Going to one of the 5 best hospitals in the country is the way I would go but if that is not possible, at least find a good teaching hospital somewhere. These hospitals also know the latest in treatments that have been life savers for me in the past.

The best advice we can give you is to take your health into your own hands and keep informed.; you are the one who knows your body best.

Try not to jump ahead in you imagination, pjoy. The cases of M.S that are usually publicized are generally the worse. Many are not that debilitating but please do get the best possible advice.

God bless and keep us informed.

HiLo

Are you kidding? Her immune system is what's attacking her nervous system.

"In MS, an abnormal immune-mediated response attacks the myelin coating around nerve fibers in the central nervous system, as well as the nerve fibers themselves. In recent years, researchers have been able to identify which immune cells are mounting the attack, some of the factors that cause them to attack, and some of the sites (receptors) on the attacking cells that appear to be attracted to the myelin to begin the destructive process. Ongoing efforts to learn more about the immune-mediated process in MS — what sets it in motion, how it works, and how to slow or stop it — are bringing us closer to understanding the cause of MS."

Thrive · ‎08-03-2011

Hello,

I am sorry about the possible diagnoses of MS. I was diagnosed with MS 12 years ago. I went to three neurologist and was finally diagnosed at Hopkins. I was unable to tolerate the spinal taps and those that tried weren't too good at it. The doctor at Hopkins was able to diagnose and provide treatment without the spinal tap. The National MS Society is the first place that I would start. Once you start a medication, there are seminars provided by them. They provide a wealth of information. You may also meet new people at the seminars who you can relate with. In addition, there are several websites that you can visit that offer forums ie: MS World, MSAA, Jooly's Joint , and etc. If you google MS forums, you will find many more. I know that it is scary. However, I am doing great after 12 years. I still do the things that I love. I just have to rest more. If you would like to talk more, please let me know. I will answer any questions that I can.

Best Wishes!

Thrive · ‎08-03-2011

Hello,

I am sorry about the possible diagnoses of MS. I was diagnosed with MS 12 years ago. I went to three neurologist and was finally diagnosed at Hopkins. I was unable to tolerate the spinal taps and those that tried weren't too good at it. The doctor at Hopkins was able to diagnose and provide treatment without the spinal tap. The National MS Society is the first place that I would start. Once you start a medication, there are seminars provided by them. They provide a wealth of information. You may also meet new people at the seminars who you can relate with. In addition, there are several websites that you can visit that offer forums ie: MS World, MSAA, Jooly's Joint , and etc. If you google MS forums, you will find many more. I know that it is scary. However, I am doing great after 12 years. I still do the things that I love. I just have to rest more. If you would like to talk more, please let me know. I will answer any questions that I can.

Best Wishes!

Marp2 · ‎01-31-2012

On 9/1/2014 glb613 said:
On 8/31/2014 HiLo said:
My long post just got poofed. Good advice to make sure of the diagnois; both my daughter and niece were wrongly diagnosed and that has been 27 for one and 13 years for the other.

My brother has lived with M.S. for almost 25 years now. He has done quite well; drives on many long trips a year and walks with a cane. His advice to you would be to avoid stress as much as possible and to get a lot of exercise. I would also add seeing a good nutritionist who will recommend the right diet with supplements to build up your immune system. It is said that a compromised immune system is the cause for many of our illnesses.

I would definitely agree with Kicks (above) and heed her advice. I would go to the top for a certain diagnosis if at all possible even if such help is not located nearby. I have learned not to depend on local doctors as the source of absolute truth these days. Going to one of the 5 best hospitals in the country is the way I would go but if that is not possible, at least find a good teaching hospital somewhere. These hospitals also know the latest in treatments that have been life savers for me in the past.

The best advice we can give you is to take your health into your own hands and keep informed.; you are the one who knows your body best.

Try not to jump ahead in you imagination, pjoy. The cases of M.S that are usually publicized are generally the worse. Many are not that debilitating but please do get the best possible advice.

God bless and keep us informed.

HiLo

Are you kidding? Her immune system is what's attacking her nervous system.

"In MS, an abnormal immune-mediated response attacks the myelin coating around nerve fibers in the central nervous system, as well as the nerve fibers themselves. In recent years, researchers have been able to identify which immune cells are mounting the attack, some of the factors that cause them to attack, and some of the sites (receptors) on the attacking cells that appear to be attracted to the myelin to begin the destructive process. Ongoing efforts to learn more about the immune-mediated process in MS — what sets it in motion, how it works, and how to slow or stop it — are bringing us closer to understanding the cause of MS."

Are you kidding? Both my SIL and nephew have MS and one of the very first things their respective specialists did was refer them for nutritional counseling.