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02-03-2016 11:07 PM
@Noel7 wrote:
@september wrote:
@Noel7 wrote:Hi september, your article says those involved DONATED their DNA and health information for research.
Yes, but I believe it was after they paid the fee....and the other stuff was in the fine print, which most people don't read.
It happens...my son was one who used this service.
I used Ancestry.com, which only gives you the info about which countries your ancestors came from. 23andme also goes into the medical background. I'd stay away from that.
you can have this testing done privately. It will cost you more, but your results will stay private.********************************
what has been said is that those involved knew what they were doing and agreed to release their information for research. I don't see anything wrong with that. I haven't seen any information that people are suing or claiming they were used. Do you know if anything like that has happened?
No..have not said that anyone is suing.
But you do sign disclaimers when you send them your info.
Here is one quote from the article;
"One big question behind 23andMe’s business model has always been whether customers will be happy or upset when they find out that they realize they have paid to be used in for-profit research projects. “I’m sure some people will feel great, no problem, and some will feel cheated,” says Hank Greely, director of the Center for Law and the Biosciences at Stanford University. “And the reactions will form a bell curve.”
02-03-2016 11:14 PM
@september wrote:
@Noel7 wrote:
@september wrote:
@Noel7 wrote:Hi september, your article says those involved DONATED their DNA and health information for research.
Yes, but I believe it was after they paid the fee....and the other stuff was in the fine print, which most people don't read.
It happens...my son was one who used this service.
I used Ancestry.com, which only gives you the info about which countries your ancestors came from. 23andme also goes into the medical background. I'd stay away from that.
you can have this testing done privately. It will cost you more, but your results will stay private.********************************
what has been said is that those involved knew what they were doing and agreed to release their information for research. I don't see anything wrong with that. I haven't seen any information that people are suing or claiming they were used. Do you know if anything like that has happened?
No..have not said that anyone is suing.
But you do sign disclaimers when you send them your info.
Here is one quote from the article;
"One big question behind 23andMe’s business model has always been whether customers will be happy or upset when they find out that they realize they have paid to be used in for-profit research projects. “I’m sure some people will feel great, no problem, and some will feel cheated,” says Hank Greely, director of the Center for Law and the Biosciences at Stanford University. “And the reactions will form a bell curve.”
**********************************
That's such an odd thing to say, bringing up a bell curve, I wonder what he was thinking? But, yes, many things fall into a bell curve, but not always 😀
02-03-2016 11:22 PM
Noel, I think it just means that some people will not care that their results were used for sale to another company...some will feel that it's for the better good, and some won't like it at all.
02-03-2016 11:40 PM
Wow. I never thought about the info being sold. Would make me double think doing it now all. Thanks so much for all of your input.
02-03-2016 11:48 PM
Did you send a DNA sample to Ancestry.com? I didn't know they did this sort of thing.
02-04-2016 12:22 AM
@ValuSkr wrote:Did you send a DNA sample to Ancestry.com? I didn't know they did this sort of thing.
I used ancestry.com. As far as I know...they aren't selling the dna sent to them, to other companies. But 23andme has already done this. And made a huge profit from it.
02-04-2016 12:29 AM
Yes; I did 23 and me. Great service. I highly recommend it.
02-04-2016 12:55 AM - edited 02-04-2016 01:02 AM
@ValuSkr wrote:Did you send a DNA sample to Ancestry.com? I didn't know they did this sort of thing.
They've been doing it for 3-4 years. They advertise it all over the site, and on TV they advertise a lot around Xmas to give it as a Xmas gift. You can get it for $79-99 depending on if they're offering a discount. Nat Geo has been doing it for quite a few years, much longer than ancestry, but theirs is more $$.
23andme stresses finding out what physical/medical traits and issues are in your DNA. If you want to find out if you have the mutations that cause certain diseases and conditions, and the like. They advertise primarily for this type of customer.
Ancestry and Nat Geo don't even mention this. They are both geared to discovering ancestry only.
02-04-2016 03:16 AM
I did Ancestry several years ago, because I was interested in my heritage.
My co worker did 23&Me. They will tell you if you are prone to developing certain diseases. That was giving the company too much access to my genetic information.
My co worker didn't care.
02-04-2016 03:25 AM
@september wrote:
@151949 wrote:All the ancestry DNA tells you is what country your DNA is from. How on earth could that information be used against you on the internet? You people are seriously paranoid.
No, but you are seriously naive.
Did you know that 23andme sold their customer's results to Genome for a study on Parkinson's disease? And it was for a big profit on their part. $60 million comes to mind, but I'll have to google that to know if my memory serves me right.
Ancestry does NOT test for medical stuff!
They don't!
When I used Ancestry, ALL they told me was what countries my ancestors came from. That's it.
It's 23&Me that that tests for medical stuff.
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