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08-15-2014 07:29 PM
Is there anyone who knows of a way to stop the awful pain? I have always been told there is no cure. The doctor wants to start bladder installations. Even percocet does not help.
08-15-2014 08:00 PM
Do you take anything as a preventive, like D. Mannose?
08-15-2014 08:15 PM
Hi Forestview. I have never posted on the QVC community before but I saw your inquiry regarding IC and just had to respond. I am familiar with this ailment because my daughter came down with this about a year and a half ago and through all of our research and input from a variety of doctors we came across the successful use of aloe vera to relieve the symptoms either completely or at least to a great degree. Specifically a very high potency aloe vera capsule made by a company called Desert Harvest. In fact, they are the first company to do actual clinical trials using high potency, high quality aloe vera capsules to verify that that form of aloe vera actually does give great relief with IC! My daughter was desperate and she started on them exactly as directed and she did find good relief although it does take a little time for the system to get saturated with the aloe and obviously it takes some bodies a little longer than others to begin to see results. But stick with it. Go to their website, desertharvest.com and you will find they have tons of research and resources specifically on IC as well as many testimonials from people who have been desperate for relief. There is some good feedback on the installations that the medical community offers to IC sufferers as well. They offer it because it is really all they have to offer but their effectiveness is questionable at best. Desert Harvest is so focused on helping people specifically with IC that they have customer service reps there to assist you who they themselves have struggled with IC. It was such a relief to find a place that had so much info and experience with IC since it is kind of a mystery what causes it and so many people are told they just have to live with it and suffer. Also in our research we found that acid neutralizing in the diet is very important and she also took an acid neutralizer before each meal and before acidic beverages. It is called Prelief and you can get it in most any of the local drug stores in your area or you can order it on Amazon if you can't find it locally. If you can get the Prelief and start on it immediately that may begin to give you some relief while you wait for your order of aloe from Desert Harvest if you decide to go that route. I hope this helps because I know the pain and suffering can is unimaginable until you experience i first hand. As a note of encourgaemnt, my daughter rarely if ever has any flare ups now at all so IC can get better over time and the body can even heal itself as time goes on with the right treatments.
08-15-2014 08:19 PM
08-15-2014 08:25 PM
Sorry, but I'm not aware of what IC is. I have some issues, but don't know if that is the correct name.
08-15-2014 08:26 PM
On 8/15/2014 Daysdee said:Sorry, but I'm not aware of what IC is. I have some issues, but don't know if that is the correct name.
interstitial cystitis
08-15-2014 08:31 PM
08-15-2014 09:44 PM
I ordered the aloe Vera. I would pay almost anything to get relief. I never go out anymore..to top it off I have a uti which is not responding to antibiotics. THANK YOU for suggestions.
I have been to a top pelvic pain specialist..also had the physical therapy with no results. He wanted to inject Botox..results would only last 3 months.
I feel so miserable that DH is getting the wrath of my anger and depression.
08-15-2014 09:47 PM
By the way I live in AZ..went to top chronic pelvic pain dr at St Joseph hospital.
08-15-2014 10:26 PM
On 8/15/2014 lolakimono said:On 8/15/2014 Daysdee said:Sorry, but I'm not aware of what IC is. I have some issues, but don't know if that is the correct name.
interstitial cystitis
Thank you for that information.
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