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‎09-06-2023 07:46 PM - edited ‎09-07-2023 07:52 PM
Oh goodness...what a nightmare. I am so sorry you had to endure this. It's just not right, but even educating yourself is no guarantee.
I am very hopeful this low dose statin will work for me as I don't really want to keep taking different drugs.
Doctors seem to jump to prescribing so quickly now. I think they are overwhelmed and/or lazy. And, I think the glut of drugs coming out encourages a pill for everything.
Wishing you continued improvement and better health.
‎09-06-2023 07:48 PM
I'm taking what your husband is taking and hoping for as good of results as he saw.
I've never been under 200 total, so any improvement will be great. Judging from your husband's numbers, 40 mg seemed like way too much.
Why not start low and work up if that doesn't work. Makes better sense to me.
‎09-07-2023 04:32 PM
Thank you and I agree with you and I believe most people will do well with a Statin. especially with CoQ10. When I took my first Statin, it was before doctors also said to take the CoQ10. This particular drug is not considered a Statin but many of the side effects are the same or similar to a Statin.
I also believe that the producers of these "new" drugs are so intent to produce a great new drug that side effects are not taken as seriously as they should be (or used to). If someone is only in the 2% of the population that might have a horrific reaction, we are not taken as seriously as we should be. And many times, the total review including ALL the possible side effects are not reported entirely. JMHO.
I wish you well, I'm sure your experience will be far different from mine. Good luck!
‎09-08-2023 10:16 AM
@CelticCrafter --OMG--my dream is to have numbers like 194 and 129!!! Mine are way above that. In 2006 or so-- I took Crestor at the regular doses and my numbers were better but....I grew 2 walnut sized lumps on each achilles tendon that ended up being removed--no one knew why they were there--am not an athlete so no injuries--turned out that is but ONE of the many side effects of Crestor. Tried most all the statins with tremendous side effects after a few months of taking thsm--so Repatha is kind of the last hope. diet/exercise doesn't work for me--mine is family induced! wonderful about your hubby's #'s!! My cardi dr is very concerned about my LDL--that is the very bad part of lipids.
‎09-08-2023 10:25 AM
@Q4u --yes, I tried Zetia too and had the same side effects I have for these type of drugs---and quit taking it. Also tried Niaspan which is niacin in heavy doses. Had the flushing and hot flashes but it that got better and had amazing results but then was dx with breast cancer and quit it ,as I was on chemo and didn't need anymore awful reactions from any drugs. I am super sensitive to the stains no matter what brand. Seems I am ok with Repatha--am in my 4th month and don't notice anything yet.I agree--these meds are noting to fool with. I am working with a pharmacist as well as my heart dr.
‎09-08-2023 05:07 PM - edited ‎09-08-2023 05:10 PM
@wagirl - I am so sorry you are dealing with all this... I hope everyone dealing with all this finds the help needed with the one med that works and hopefully not have to go through the agony of awful side effects.
Another two side effects I have just realized. I didn't realize that Statins may contribute to contracting diabetes. After being on Simvastatin for roughly 18 months, I developed diabetes about 20 years ago and roughly at the same time. I wondered about this because I don't have anyone in my family that has had this insipid disease. Recently, I discovered that going off Zetia raised my pulse significantly up to 20 points resting sometimes!! And my blood sugars went nuts the last two or so months trying to shake this pill. I'm good with what I eat (generally) and I understand diabetes. I'm also pretty good with exercising and know my resting pulse rate is about 64. I was shocked to see it hovering around 80-85 at times, resting.
I will be letting my dooctor know this additional data next time I see her.
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