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Registered: ‎12-14-2016

I was also on crutches this summer for a fractured ankle.  PT showed me how to use my crutches and it is like JB116's son used his.  Although, I really struggled going up the stairs facing front, so she showed me how to go up the stairs backwards.  In other words, I hopped up not facing the stairs.  It sounds silly, but it really helped me.  Maybe because I wasn't looking at the challenge that faced me.

 

Do hold on to the railing no matter how you do it!  Wishing you a speedy recovery!

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The hospital should get some feedback that you were given crutches and no info on how to use them.  They could end up with a lawsuit if you were to get seriously injured.

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Registered: ‎03-09-2010

@Imadickens, good advice here.  just got through 7 weeks on crutches.  wishing you a speedy and full recovery.  LM

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I've used crutches off and on since I was about two years old. (One of the many joys of having hemophilia.) Stairs are a little tricky, but the technique is simple enough. To go up stairs, you stand before the stair on your crutches with your good foot/leg and the crutches all on the ground. Center of gravity is important here. A slight forward balance is better than a backwards balance. What you'll do first is lift your good foot/leg and place it on the step you're looking to climb. Then both push off with your crutches and use your good leg to stand up on that good leg, then bring the crutches up with you and stand on that first step just as you were standing on the ground a second before. Then you simply repeat that process for each step.

 

The center of gravity is very important when climbing steps. You really, really don't want to fall over backwards going up the stairs , or forwards going down the stairs, so make sure your center of gravity stays centered or if you're going to err, have it slightly forward going up and slightly backwards going down. When in doubt, look for the closest place to land if you should fall and lean that way. That forward momentum helps you climb the stairs. You're not asking your good leg to do anything it doesn't already do as it takes one step at a time anyway. It's really not that hard. (Of course I have 56 years of experience, so it's easy for me.)

 

Coming down stairs, you lead with your bad foot/leg and the crutches. Coming down the stairs you want your center of gravity slightly back, so if you fall, it's back on the stairs and not down the stairs. If you get your center of gravity too far forward, it's easy to topple forward. Coming down you stand on your good leg, swing the crutches and your bad foot/leg down to the next step then when secure there you simply slide your good foot down, stand up straight and repeat the process until you reach the bottom. 

 

Not teaching people how to use crutches is nothing new. I went to high school with a local football player who tore up his knee in a game and needed knee surgery. Back then after the surgery he was in a cast from his toes to his hip. I first saw him towards the end of his first day back in school, he sat behind me in bio 2 and he was already there when I entered the classroom. He looked like he'd been in a marathon as sweat was dripping off him and he was still out of breath from gettng to the class. He told me how much he admired me for being able to use crutches as they were killing him. With about ten minutes to go in the class he raised his hand and asked to be excused to go to his next class and the teacher agreed. He asked me to carry his books for him and I agreed. I picked up his books and walked to the door and then turned around to look for him and he'd disappeared. I glanced down and there he was just above the floor on a  pair of ridiculously short crutches staggering forward.

 

I stopped him and had him take a seat in my chair and had him hand me his crutches. I asked who adjusted them for him and he said that's how they gave them to him. Our teacher came over and agreed that they were way too short. He said he was told not to mess with them and that they told him shorter crutches made it harder to fall. We asked how many times he'd fallen on them so far and he said too many to count. I adjusted his crutches to my height and gave him an impromptu ten second lesson on how crutches should be used. He was several inches taller than me, so his crutches should be even taller than where I use them, but he agreed to give it a try. We set off for his next class with him now on crutches that were closer to what they should be and he was suddenly finding the going much, much easier. His mom picked him up after school for a follow-up visit with his surgeon and she almost had a panic attack when she saw how tall his crutches were now. When they went into the doctor's office she ratted me out to the doc  and was surprised to hear the doctor say the crutches were fine set to that height and for him they could even be taller.

 

I think a lot of doctors and physical therapists just assume patients know how to use crutches and don't bother giving the necessary instruction. They really aren't that difficult to use and truth be told, I can move faster on crutches than off of them. My healthy leg is around 33 inches long where my crutches are more like 55 inches long. The stride from that 55 inch long leg is a lot longer than the stride from my good leg and I can cover a lot of ground in a hurry. I have to purposely slow down on crutches if I'm with someone or else they have to jog to keep up with me.

 

I personally prefer a taller crutch to a shorter crutch. I've always used a taller crutch and I think it's easier to maintain your balance on a taller crutch and also makes it easier to just roll over the top of a taller crutch. Crutches that are too short tend to throw off your balance in a forward lean as you lean forward on the crutches. That's not horrible most of the time and is probably better for those learning to use crutches, but once you're used to crutches a taller crutch can make life much easier.

Fly!!! Eagles!!! Fly!!!
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Registered: ‎06-15-2016

@gardenman Wow! You have all given me such great advice and tips! No, the hospital did not show me what to do. They handed the crutches to me and bid me fond adieu. I go to fall often on them so I try not to get up if I'm alone! Coming home, my ds stood behind me as that was where I tended to lean-back! He basically carried me up the stairs. Now I understand the idea so it might get a little better. I see ortho tomorrow am. I was supposed to go today but the weather was bad this morning again and I didn't want to make things worse. Thanks to all who cared enough to post!

 

Gardenman, I'm so sorry you had to use them so frequently! Both my kids have VonWillebrand's disease. They clot normally but every 12 hours they begin to bleed all over again. The good news is they respond to an artificial clotting agent DDAVP, so hopefully, they will never be in a life threatening situation. My older, dad, has it worse, needing IV infusion before and after elective surgery or after any type crush injury. Unfortunately, it makes her really sick. My ds only needs the nasal spray version. He takes it if he bleeds and doesn't form a strong clot. They get it from my do who was diagnosed in HS, very early in the knowledge of the disease. He hemorrhaged after a horrid kidney surgery for 8 days! Anyway, thanks so much, y'all!

Never underestimate the power of kindness.
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Posts: 7,652
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@gardenman, you are so right.  They should teach people how to use crutches.  The damage can be long term if not corrected.  Thankfully my crutches were perfect at 5'7".  Other than toughened up palms, I suffered no ill effects.  My arms are very strong now after swimming daily in the summer and 7 weeks of crutches.  Now I have to get the neglected half of my body up and going again lol.

 

Merry Christmas my friend!  LM

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Registered: ‎03-09-2010

@Imadickens 

Sad to say I don't respond to DDAVP/desmopressin. I was tested for it back in the early nineties and somehow my factor VIII level dropped on DDAVP. That shouldn't happen, but it did. The DDAVP is supposed to relase any clotting factor you have stored, so there should be a bump in your readings, but mine went down. 

 

Crutches are really a pretty simple thing to use as long as you avoid ice. Ice and crutches are not a good combination. Then you have to be very, very careful. Watching someone who knows how to use crutches use them is like watching a very fluid, dancelike choreography. Watching someone who doesn't know how to use crutches use them is like watching a baby giraffe trying to stagger to its feet for the first time. Things are flailing everywhere and not much progress is made.

 

Some hospitals are pretty good at instructing patients. I ended in Cooper hospital with a couple of iliopsoas bleeds and for my knee replacement and they won't let you use crutches until their physical therapists check you out on them. They have you do everything on crutches including climbing up and down stairs and inclines before they'll sign off on letting you use them. (Or at least they did back in the eighties/nineties.)

 

Fly!!! Eagles!!! Fly!!!
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Registered: ‎06-15-2016

@gardenman wrote:

@Imadickens 

Sad to say I don't respond to DDAVP/desmopressin. I was tested for it back in the early nineties and somehow my factor VIII level dropped on DDAVP. That shouldn't happen, but it did. The DDAVP is supposed to relase any clotting factor you have stored, so there should be a bump in your readings, but mine went down. 

 

Crutches are really a pretty simple thing to use as long as you avoid ice. Ice and crutches are not a good combination. Then you have to be very, very careful. Watching someone who knows how to use crutches use them is like watching a very fluid, dancelike choreography. Watching someone who doesn't know how to use crutches use them is like watching a baby giraffe trying to stagger to its feet for the first time. Things are flailing everywhere and not much progress is made.

 

Some hospitals are pretty good at instructing patients. I ended in Cooper hospital with a couple of iliopsoas bleeds and for my knee replacement and they won't let you use crutches until their physical therapists check you out on them. They have you do everything on crutches including climbing up and down stairs and inclines before they'll sign off on letting you use them. (Or at least they did back in the eighties/nineties.)

 


You hit the nail on the head! I'm the baby giraffe, alright! I got good news today. The fracture seen on the x-ray at the ER,was from my old injury! I'm not sure if it's a good thing to have a piece of bone floating loose in my foot, but it's been there for 4 years now so it must be harmless! I have to stay off my foot as much as possible but the doc fit me with a walking boot so I can do a little without the crutches!

 

Im sorry the DDAVP doesn't help you! Strange that it makes your number drop! I haven't kept up much with hemophilia, but do the have any meds that help now? My do was diagnosed in 1970 with VonWillebrand's because of his factor VIII after shoulder surgery. Back then it was more a diagnosis of elimination than a definitive one. Thanks for the info! Good luck to you and all who share your bleeding disorder!

 

I

Never underestimate the power of kindness.
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Posts: 27,353
Registered: ‎03-09-2010

@Imadickens wrote:

@gardenman wrote:

@Imadickens 

Sad to say I don't respond to DDAVP/desmopressin. I was tested for it back in the early nineties and somehow my factor VIII level dropped on DDAVP. That shouldn't happen, but it did. The DDAVP is supposed to relase any clotting factor you have stored, so there should be a bump in your readings, but mine went down. 

 

Crutches are really a pretty simple thing to use as long as you avoid ice. Ice and crutches are not a good combination. Then you have to be very, very careful. Watching someone who knows how to use crutches use them is like watching a very fluid, dancelike choreography. Watching someone who doesn't know how to use crutches use them is like watching a baby giraffe trying to stagger to its feet for the first time. Things are flailing everywhere and not much progress is made.

 

Some hospitals are pretty good at instructing patients. I ended in Cooper hospital with a couple of iliopsoas bleeds and for my knee replacement and they won't let you use crutches until their physical therapists check you out on them. They have you do everything on crutches including climbing up and down stairs and inclines before they'll sign off on letting you use them. (Or at least they did back in the eighties/nineties.)

 


You hit the nail on the head! I'm the baby giraffe, alright! I got good news today. The fracture seen on the x-ray at the ER,was from my old injury! I'm not sure if it's a good thing to have a piece of bone floating loose in my foot, but it's been there for 4 years now so it must be harmless! I have to stay off my foot as much as possible but the doc fit me with a walking boot so I can do a little without the crutches!

 

Im sorry the DDAVP doesn't help you! Strange that it makes your number drop! I haven't kept up much with hemophilia, but do the have any meds that help now? My do was diagnosed in 1970 with VonWillebrand's because of his factor VIII after shoulder surgery. Back then it was more a diagnosis of elimination than a definitive one. Thanks for the info! Good luck to you and all who share your bleeding disorder!

 

I


I'm happy to report there are a number of good clotting factors on the market that are very safe and effective these days. I'm currently using Recombinate which is one of the older generation recombinant clotting factors, but it works well for me. The drawback to them is the expense. My last units cost $1.82/unit and I typically infuse 3600 units at a time for bigger bleeds, so the costs add up in a hurry.

 

The DDAVP testing was funny. I started out getting a baseline factor VIII level drawn, then they infused the DDAVP and I had new levels drawn every two hours afterwards. I think my factor started out at 1.7 and ended up around 1.1. It just slowly dropped the whole day. They had me go back the next morning for a follow-up test and it was back up to 1.3. My doc said she'd never seen that before and was confused by it, but the tests were consistent. You should see the levels rise, but mine fell. Once the DDAVP was gone, my levels rebounded to normal (for me.)

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Posts: 73
Registered: ‎03-14-2010

As another poster suggested, go up the stairs backwards.