PROLIA

Miranda1550 · ‎01-20-2013

.Anyone have exp. with PROLIA? My Dr. has rec. this drug.

Side effects are scary. I know they give the worst case

scenarios, but I am worried about taking this drug.

3suwm5 · ‎06-15-2016

I have been taking this drug for a few years now. I don't have any side effects.

TommyGirl · ‎04-19-2010

Hi Miranda! I've been taking Prolia for a few years now and have had no bad side effects. I too was concerned and took quite a while to decide which drug I should take. For me, Prolia was the one that made the most sense and I am happy I started with it. I have had a small increase of bone growth while on Prolia. The only drawback for me is that 2 times I had to delay my shot because I had to have oral surgery. Major dental work and Prolia don't go together. If you haven't already done so, check out the side effects Prolia can have on your jaw bone if you are on the drug and have major dental work. Normal dental procedures are fine. It's just major things. To sum it up, I've had no bad side effects while on Prolia and I've even had some new bone growth. I just had to postpone my shot twice for oral surgery. If you decide to go on Prolia, I wish you lots of good luck!

Carmie · ‎10-25-2010

My older sister takes it and has no side effects. She was scared to take it and waited about a year before she finally decided to get it.

noodleann · ‎06-10-2015

I would recommend you research not only what you might expect while you're ON the drug, but what could happen when you stop it. I am waiting until clinical studies are performed on discontinuation of Prolia. I want to know what could happen if you use nothing after two years on Prolia or if you then start taking an oral agent like Boniva. My clinical nurse had recommended Prolia for two years followed by Boniva, a protocol others are recommending, which is why I want to see the study results.

Google "prolia rebound effect" and speak to your doctor about any concerns you have.

Part of my decision against Prolia was also the fact that the shot is supposed to last for six months, and AFAIK, they can't give you anything to counter it if you have an adverse reaction, or for some other reason you want it out of your body. This is one of the standing arguments against long-acting meds, especially injections, that cannot be neutralised.

I anticipate starting Boniva this June when I see my new doctor for a physical (I used Boniva before, but stopped when the bisphosphonate-related jaw necrosis and femur fracture stories started being reported). In the meantime, I am in a strength-building program (resistance, with weights), to help build bone, I take calcium supplements with good bioavailability, and I am trying to get as much calcium as possible through my diet.

I am not advocating doing nothing about osteoporosis, but when it comes to meds, be aware that doctors aren't using the same definition of "informed consent" as we are. It's up to us to learn about this stuff.

Coquille · ‎07-20-2011

I'm glad you did well on Bonita. I am considering Prolia. I am very Leary of Prolia but I got gravely ill from the Boniva. Went on and off several times to try to keep taking it. It practically destroyed my stomach and intestines. If you are not taking vitamin D, look into it. That helps keep the calcium in you bones. Take care.

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