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Registered: ‎04-23-2010

@SeaMaiden wrote:

On Dr. Phil there was a discussion on this condition with actress Kathy Bates, who has this condition after  double mastectomy.  Do any of you deal with this condition?  It seems to be misdiagnosed as other things... as well as misunderstood by many in the medical fields and just not looked at as important....

 

Many women who have  breast cancer surgery are not told  before surgery about this condition as a  very possible out come from removing lymph glands....and then they experience terrible problems with arms swelling up for the rest of their lives.

 

it can also be genetic or caused from an injury  or surgery that involves disturbing lymph glands any where in the body.  Many times Celulitis is a form  of lymphedema and is misdiagnosed as something else because doctors do not know enough.

 

It is about time this condition is brought to the forefront and discussed with patients before surgery of any kind.  Thank you Kathy Bates!❤️

 


Fabulous actor who has beaten cancer twice.

“The soul is healed by being with children.”
— Fyodor Dostoyevsky
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My dad had it in his legs.  He had a bad fall outside on cement.  We heard a stress to the body like that, can bring it on.  Over time, his got better, but we did have to tend to it a lot at home.  He was overweight and a diabetic.

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@SeaMaiden--am going thru this right now in my left arm--had breast cancer where a few lymph nodes were involved,    and removed. It can be brought on by using it way beyond the limits. Mine started in Sept after moving, pushing, pulling heavy furniture around. My limit is 5-8 lbs----forgot all about it until my elbow to my wrist swelled up. Have been going to a lymphedema p/therepist who massages and wraps the area. I have a compression sleeve and glove to wear too. I got celluitis in it too so was on anti b's for a few weeks. Have to always be mindful of what I carry with that arm, even wearing a shoulder strap purse. Then I broke that left wrist so alot of trauma from that too. I didn't watch that show--will have to.

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Dr. Phil is no one you want to take advice from.  This is very well known by all oncologists and you will be advised before surgery.

 

it can affect many parts of the body depending on where they remove them.  Shocking how bad it can be if the swelling is internal.

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What  if a woman  opts to not have the glands removed... just the cancer.

 

I would hope women have that option.

 

It is their lives and their personal decisions as to what is done  to  your body.... 

 

It may not be the " protocol" way of doing things as far as standard treatment...... but should be a woman's choice knowing that this  life long lympadema swelling and pain could be the outcome of taking out so many glands.

 

 There is  a lot of newer info on the removal of Lymph glands and that it is not always necessary to remove so many... here is just one write up about that.

 

https://www.everydayhealth.com/breast-cancer/treatment/breast-cancer-you-really-need-your-lymph-node...

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@SeaMaiden wrote:

What  if a woman  opts to not have the glands removed... just the cancer.

 

I would hope women have that option.

 

It is their lives and their personal decisions as to what is done  to  your body.... 

 

It may not be the " protocol" way of doing things as far as standard treatment...... but should be a woman's choice knowing that this  life long lympadema swelling and pain could be the outcome of taking out so many glands.


This is one of the most condescending comments I have ever seem.  I don’t wish to offend, but only someone all safe in their ivory tower can afford to tut, tut about a choice some have to make.  When you are sitting there looking at the pictures and fighting for your life you will change your tune.

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@Still Raining wrote:

@SeaMaiden wrote:

What  if a woman  opts to not have the glands removed... just the cancer.

 

I would hope women have that option.

 

It is their lives and their personal decisions as to what is done  to  your body.... 

 

It may not be the " protocol" way of doing things as far as standard treatment...... but should be a woman's choice knowing that this  life long lympadema swelling and pain could be the outcome of taking out so many glands.


This is one of the most condescending comments I have ever seem.  I don’t wish to offend, but only someone all safe in their ivory tower can afford to tut, tut about a choice some have to make.  When you are sitting there looking at the pictures and fighting for your life you will change your tune.


@Still Raining   I do not think women being knowlegable and asking questions... getting second opinions and being informed and incharge of your life is condesending at all.... Many women do not know that there are options and never ask or know that there could be other options. 

 

I am in no ivory tower... I have just learned that BEING INFORMED and KNOWING YOUR OPTIONS is important. You know nothing of me and my background or what I have struggled with to tell me I am Tut tuting anything. Shame on you for putting that on me.  I wish you a blessed day.

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@SeaMaiden

 

You lost me when you said "cellulitis is a form of lymphodema. My cat bite led to cellulitis and had I not went to my doctor, who immediately sent me to the ER for IV Antibiotics. That led to 6+ days on IV drip of several types of Antibiotics as an Inpatient.

 

He is a GP(my nephew-Nephew, who is not my regular GP) and he recognized it immediately. Had he not it could have led to life threatening MRSA or even more deadly Sepsis. Cellulitis is a bacterial infection of the skin, lymphodema? What's the connection, and what kind of doctor would not recognize cellulitis? In my opinion, it would be a very incompetent one. Just sayin'

 

 

 

hckynut

 

 

hckynut(john)
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@hckynut

 

The show on Yesterday discussed that many doctors do not know the connection between them.  Yet there is. Kathy Bates is trying to get the information out there that many doctors do not know.   This explains the correlation between them

 

 

 

The Cycle of Cellulitis and Lymphedema
Wednesday, 15 August 2018
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On its own, lymphedema is an uncomfortable, and at times painful condition which develops when your lymphatic system fails to function properly. This failure results in lymphatic fluid collecting in the soft tissue of the legs, arms, or hands with associated swelling, heaviness and discomfort. As lymphedema worsens it impacts your health, quality of life and increases your risk of cellulitis. Cellulitis is a serious complication of lymphedema, which can lead to further lymphatic damage and a cascade of events including recurrent cellulitis.

cellulitis and lymphedema

What Is Cellulitis?
Cellulitis is an infection of the skin and soft tissues. It develops when bacteria breaks the skin barrier. While cellulitis is not contagious, if you have it, the If not treated the infection can spread rapidly. Signs and symptoms of cellulitis include a red, tender, swollen area that is warm to the touch, with or without fever or chills. In severe cases the swelling and inflammation can spread can causing ‘water’ blisters and lymphatic fluid drainage.

Cellulitis can be serious, so it’s important to:

Learn how to spot cellulitis,
Seek treatment for any and all skin rashes or infections,
Learn how to prevent skin infections during lymphedema flares.
How Lymphedema Can Lead To Cellulitis
The skin stretches and thins, as the lymph fluid accumulates, weakening your natural skin barrier and increasing the risks of infection. Folds in the skin of lymphedema patients can also trap bacteria. Once bacteria penetrates the skin the swollen tissue is a perfect mileu for infection to develop and spread. While not all lymphedema patients will develop cellulitis, the risk is much higher.

Cellulitis Also Worsens Lymphedema
Together, cellulitis and lymphedema create a cycle of pain, discomfort and further lymphatic damage. Over time you may develop chronic lymphedema with inflammatory changes in the affected limb. Remember if you already have lymphedema, cellulitis can make it worse.

The Health Consequences Of Recurrent Cellulitis
Skin infections like cellulitis can spread to the rest of the body. Bacteria can spread to the bloodstream and bones, can even cause tissue death (gangrene) or deep tissue infection (necrotizing fasciitis). Some more serious cases may require checking into the hospital for antibiotics, nursing care and observation.

How Is Cellulitis Treated?
Your doctor will prescribe oral antibiotics and give additional instructions to reduce swelling and increase your comfort. However, in some cases, you may be hospitalized with intravenous antibiotics if you have:

A high fever
Cellulitis that doesn’t respond to oral antibiotic treatment
More serious symptoms, such as necrotizing fasciitis
Go to the emergency room or dial 9-1-1 if you have a rash with a fever. If you have no fever, you can choose to call your doctor.

Additional Risk Factors For Cellulitis
Lymphedema isn’t the only cause of skin infections. Other risk factors include:

Obesity or being overweight
Skin conditions like eczema or athlete’s foot, which create cracks in the skin that allow bacteria to enter
Cuts, scrapes, and burns that give bacteria an easy way in
Weakened immune system due to medications or chronic health conditions like leukemia, HIV/AIDS, or diabetes

 

https://www.veinspecialists.com/blog/cellulitis-lymphedema/

Contributor
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I sometimes watch "My 600 Lb, Life" and some of those poor people had terrible lymphedemas; I really felt sorry for them.