Wellness

[gmkb]

I have just been diagnosed with idiopathic neuropathy (neuropathy with an unknown cause).  I would be interested to hear from some of you about your experience and how you deal with this problem.  Mine began 3 months ago with leg weakness and now have burning sensation in legs.  After numerous testing, this is the diagnosis.  Currently in physical therapy.  I am grateful to God that this is the diagnosis and not one of the more devastating neurological diseases.  

[violann]

Both my father and a maternal aunt had this condition.

My father worked his whole life in an industry in which he was exposed to toxic chemicals, but at the time the connections we know now had not yet been identified.

My aunt had no known connections to ANY potential toxins.

Before he died of other causes at 73, my father had recovered some of his sense of touch/feeling in both his hands and his feet.

My aunt had seen a well known specialist in the field several years before she died at 90, and was (in my opinion) too resigned to her circumstances, and stopped doing recommended physical exercise. She did, however, have TWO successful hip replacements following her diagnosis, and rehabbed well for someone in her condition.

When she first began to experience the symptoms of the condition I found a research based program that was developing a shoe designed to increase balance and comfort in walking, but although patented, the shoe was not produced commercially.

I'll look for it and post the link for you if I can find it.

Having observed these 2 dear folks deal with the consequences of this condition for several years each, and seeing my dad gradually feeling better, it would seem to me that the more activity you can tolerate, like stationary bike, exercise with light weights, doing your reps from physical therapy extra times or several times a day if/when you're comfortable, and staying alert to any new research coming down the pike would definitely be in your best interests.

I always thought my wonderful aunt gave up to soon, but she was a tiny little person and ultimately, at 90, really didn't have the energy left to keep fighting.

I will certainly be thinking of you and hoping you keep posting about how you're doing.

NOW- I'm going to see if I can find the reference to those shoes......

[Havarti]

I am not a person with any medical training and I am not advising to you take this, but do some research into Methylcobalamin (known as Methyl-B12). It has to be Methyl-B12 not the Cyanocobalamin version of B12. I have known several who have found relief from this when nothing else seemed to work. It is worth doing some research on your own because it is not something your standard doctor would think of as standard protocol. It is out-of-the-box thinking for most doctors but has helped some. Methyl B12 is easily available at health food stores and it is like Vitamin C in that excess is passed from your body rather than retained. However it comes, I hope you find relief soon!