I had Hospice care at home for my precious husband's lsst month of life. He had congestive heart failure, so I am unfamiliar with Alzheimer's, but I can give you a little insight into Hospice. I can't recommend a specific Hospice group because you probably aren't near me. At the hospital (and I am sure at your home) we interviewed representatives from two Hospice groups. One was just ok. The other was professional and outstanding in her presentation. We chose them. The rep for the company you choose can explain to you what they do. Prior to his coming home, Hospice provided a hospital bed, portable toilet, oxygen, rolling table for the bed, etc. A nurse was here when the ambulance brought my husband home. She evaluated him, and coordinated a team to work with him and with me. They literally embraced us both. Each day they sent a nurse to check him out. Brought ample supplies of all medical needs, and arranged for everything on a daily basis. He was seen by an RN every day, as well as others who came to bathe him, change his linens and sleepwear, check his food intake, check medicine, and council with me about everything. They did this daily for his last month, increasing the number of visits per day until he passed away. We always had phone numbers and contact info just in case. There was never a rush. They stayed, chatted with both of us, and made each visit a pleasure. Two RN's were here when he passed, who bathed him, dressed him as we requested, did all necessaary paperwork and stayed with me as the mortuary came to transport him. The even clipped a lock of his hair to keep as a memory and for any DNA needs in coming years.(Everyone should do this.) I felt comfort in knowing that they had so much concern for me and my welfare.
Early in this process, they sent a wonderful social worker who spent hours with me and with him, providing guidance and comfort. I could not have asked for more. Since DH's passing, I have been offered attendance at grief counseling sessions, and heard from several of the people who attended him. The social worker still contacts me. For all this there was absolutely no charge. It was priceless.
In addition to Hospice, we also had Gifted Nurses, who provided us with full time care in 12 hour sessions. There is a charge for this, which I honestly don't remember. As his condition worsened, and heavy meds were required, which I did not want to give myself, the CNAs changed to LPN's, which was a bit costlier, but in our case necessary.
I know that you will need to start with Hospice, and I feel sure your doctor, or your local hospital can offer suggestions. Your needs will be different from mine since we were in a terminal situation, and yours may be different. But if your experience is like mine, you will be eternally grateful to the people you meet through Hospice. For me, they are some of life's Angels.
Blogs & Forums
