Hidradenitis... - Page 2

LUVNLIFE · ‎08-31-2015

I not personally suffer from this but looked up a product called Emuaid cream. Also I believe in Eastern and Western medicine working together. If you have a Eastern Homeopathic store I would call or visit there. Your health and comfort are worth any bother to travel or try different products or special diet. Best wishes.

IMW · ‎06-15-2014

I am sending you some caring and healing thoughts.

I

have many incurable painful conditions- ie 5 pinched nerves in neck that can’t be operate on without very high risk of paralysis.

I, at age 66 have surrendered my pride re mds. I feel for you. Please remember you are not your condition.

Are you taking Pain meds? I hope you are as comfortable as possible and treat yourself well. I deny myself very little, since I have to deal with so much.

Sorry for the typing, neuropathy acting up.

Skyegirl21 · ‎03-20-2010

I’m so sorry. I would make sure you are trying to keep the hair follicles clear , i, e., lots of hot showers, exfoliation (dry and wet) and loose clothing to allow circulation... While I don’t have this condition, I have keratosis pilaris, so I get constant little bumps and pimples all over. It’s more mild and can’t be compared to hidradenitis. I send you best wishes that you find a way to manage this-

HisElk1 · ‎09-29-2015

@nana59, please excuse my typing as i recently had a total shoulder replacement and can only peck with 1 hand. i was diagnosed with this back in the 80's. saw a derm and given cort. injections in each one. didn't last long and he said i'd need them for a long time. my cousin worked for a plastic surgeon so i made an appt. he said hydrenitis is an infection of the sweat gland and i had surgery to have the glands removed under my arms. i was off work for about 4 weeks and it was so worth it. i know the other 2 places vulnerable are the breast area and 'downstairs'. some times i will get one in that area but it goes away eventually.

i do swaet more in other places but i am so happy i got the surgery. i also no longer have to wear deodorant nor have any hair growth - just 2 big scars under my arms.

the surgery was the best thing for me. i know what you are going through and its miserable.

SilleeMee · ‎05-22-2016

I'm very sorry about your condition @nana59. I don't have it myself but what I'm about to say might sound drastic. Since this has much to do with hair follicles, then I would talk to your derm about laser hair removal or something else to permanently remove the hair follicle. I really can't say for sure but that might be an option for you. The reason why I say this is because I knew a person who did not have this disease but had a condition where he would get severely infected hair follicles for no reason. He eventually had the affected areas removed of hair and now has a more normal life. Good luck to you and I hope you find a good doctor to help you.

eta- Another option would be Botox.

IMW · ‎06-15-2014

If you google hidradenitis you will find a wealth of info.There is a hidradenitis foundation, books written re the subject. Home remedies etc. 1-4% of population has the condition, so you are not alone.

Good Luck.

Starsmama · ‎09-08-2011

I've had hidredenitis since my early 20s. I'm now 73. It's just something I've learned to live with. I almost always have a flair-up going on. Ive had some of the sweat glands removed, but there are so many and it just travels around. My dermatologist sometimes puts me on antibiotices for 6 weeks at a time and that helps for weveral months, but it never completely goes away. BUT....this is my only chronic condition and at my age I'm thankful for that small mercy.