Wellness

[butterfly123]

Have you had success with any of the following apps or do you do something else besides medications? 

Relax Meditation

Mindful

Declutter

Breathe

Synctuition 

Ouchie

1 Giant Mind

Curable

Brightmind

Headspace

Thank you for your help and suggestions.

[SilleeMee]

I exercise and eat healthy. I'm 64 and have been with scleroderma for almost twenty years. I live with neuropathy and inflammation every day. I don't take any Rx meds now but I did for the first decade of my condition. I have done a lot of research on my own, I belong to a support group and I see a GP every year for a wellness check for my blood test numbers. Everything has been good so far. Pain comes and goes but it's not like it use to be....TG! I think that's because of  my diet and exercise. 

[kutira]

I don't do apps but find whatever makes you laugh out loud; laughter really is the best medicine! 

[DianeJ2]

Hi @butterfly123  I don't do apps but I do You tube guided meditations, calming music like like binaural beats music for pain, Native American flute music, The Soul of Wind piano music etc and definitely anything with humor! Along with meds, healthy eating, gentle stretching, i find helping my stress level helps my body handle my autoimmune pain better.  Hope you find something helpful to feel better 🌻

[Katmary]

A friend told me about the app Fit On. Most of it's pretty hardcore workouts but I found a 17 minute yoga routine for backs called Get Your Back Back that's been amazing for my back (mostly because I have horrible hip flexors due to back fusions and nerve damage). 

At one point I learned self-hypnosis with a pain psychologist, you can find videos to do this on You Tube as well. An app called CBTi has meditation, both before bed and short ones you can do, my therapist recommended it to me. I'm waiting for biofeedback to be started at my therapist's office, can't wait to try it. 

[doxie1]

I have not used apps.

I have used yoga to practice mindful breathing which really seemed to help

I also use meditation. It has really helped manage stress. I went for training with this and they came and helped design a meditation space at my house.

I still walk the labyrinth and give my fears and concerns to God.

doxie

[Toppers3]

I haven't used any apps., either.

I have been to Pain Management, and one of the things that I learned there is to "distract myself from the pain."

What that means is that you literally distract yourself from your pain by trying not to focus on it. You don't ignore it by any means, but you don't try to keep focusing on it, either.

You just try to find things that you enjoy doing, to literally take your mind off of it.

It can be anything that you really enjoy doing, like listening to music, going out with someone, watching TV, reading, doing some kind of a hobby, etc.

I also like to use Aromatherapy roller ball products that have relaxing elements to them, to also help me relax, too.

[chrystaltree]

I never  heard of any of those things and no doctor ever recommended them.  I assume they are not pain medications one injections  Fingers crossed, my pain isn't as much of a   problem now but when I did suffer from constant chronic pain, my mind was not going to alleviate it.     

[Charlottesmom]

for me mindfulness meditation results in a general feeling of wellness and relaxation. i do have multi-site arthritis and allowing stress and worry to get the upper hand worsens pain, relaxation improves it. mindfulness is great to augment my feeling of wellness

[gardenman]

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@Toppers3 wrote:

I haven't used any apps., either.

I have been to Pain Management, and one of the things that I learned there is to "distract myself from the pain."

What that means is that you literally distract yourself from your pain by trying not to focus on it. You don't ignore it by any means, but you don't try to keep focusing on it, either.

You just try to find things that you enjoy doing, to literally take your mind off of it.

It can be anything that you really enjoy doing, like listening to music, going out with someone, watching TV, reading, doing some kind of a hobby, etc.

I also like to use Aromatherapy roller ball products that have relaxing elements to them, to also help me relax, too.

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Agreed. Writing, drawing, painting, playing video games, or anything you have to focus on can help you escape the pain. And lose track of time. So be careful doing any of those if you have to be somewhere at a specific time.