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Esteemed Contributor
Posts: 7,708
Registered: ‎12-01-2023

@Natureluvr wrote:
@cheriere- Ugh! I’m sorry to hear that. 😕🩷
I can’t imagine how painful it would be to get injections in the bone. I’ve had one Cortizone injection in my foot and it killed like a mother! I was a big baby and I could tell the doctor thought I was overreacting with my gasp when he put the needle in.

I know what you mean about steroids. They are a fantastic miracle drug in the short term, but can really be a doozy having to take them long-term or too frequently. I know you have to do what you have to do but I also believe in getting second opinions if you can (I know you said it’s hard to find a dr around there.)

It’s also frustrating to hear neither dr will prescribe Xanax or something similar for your anxiety attacks! Like others mentioned, maybe a psychiatrist is the answer. I would rather take a medication as needed than a daily antidepressant. Makes no sense to me.

Thank you for your kind words.💝. You always make me feel better about things.  You have a very pleasant, calming way about you.🌸

 

Sometimes, I wonder if I really have to get these shots so often, or if maybe it's just another added insurance thing...I hate to sound cynical.  I know I need them, but it's important I stay off them at least for awhile.  Next visit, I'm gonna be more assertive, sometimes I have a problem doing that.

 

Im going to look into finding a psychiatrist.  With the others, they just point to one another lol.  Funny thing though, my specialist used to provide these, but now says the state wants folks to get them from primary care.  I think our drs are maybe policed a little too much lately.  It never seems to have an effect on people who misuse meds either.  It always seems to only negatively impact those of us who don't.😔

Trusted Contributor
Posts: 1,161
Registered: ‎06-14-2018
@cheriere - Awww, your compliment made me smile! 😊 Thank you! I believe we know our bodies best and need to be our own health care advocate. I’m not assertive whatsoever (and am still not) but when my DH was sick, that changed and I spoke up when I had to. I could tell one of the nurses was getting irritated with me because I was questioning his blood work and she didn’t want to give me the answers. Most of his doctors were great but a couple were not.

Does anyone go with you to your appointments? I know an extra set of ears can be helpful. I really hope things improve for you and you get the relief you need. 💕
Esteemed Contributor
Posts: 7,708
Registered: ‎12-01-2023

@Natureluvr wrote:
@cheriere- Awww, your compliment made me smile! 😊 Thank you! I believe we know our bodies best and need to be our own health care advocate. I’m not assertive whatsoever (and am still not) but when my DH was sick, that changed and I spoke up when I had to. I could tell one of the nurses was getting irritated with me because I was questioning his blood work and she didn’t want to give me the answers. Most of his doctors were great but a couple were not.

Does anyone go with you to your appointments? I know an extra set of ears can be helpful. I really hope things improve for you and you get the relief you need. 💕

You're so welcome.  It is very true.🌸

My mom always goes with me to my appointments since I really don't have anyone else.  She's really hesitant to speak up even when I'm in the hospital lol, that's just her demeanor.

I am going to try and be more assertive on my next visit.  I don't like being untruthful and if I explain to my rheumatologist this aspect in regards to the steroids, surely she'll understand.  I hope she will anyways.  I do like her, but have to learn to speak up louder sometimes I guess.💝🌸

Trusted Contributor
Posts: 1,161
Registered: ‎06-14-2018
@cheriere - I’m so glad to hear that your mom accompanies you to your appointments. I know you appreciate her support! I think a lot of people hesitate to speak up or question their doctors, so don’t feel bad! You can try it at your next visit. You’ve got this! 🙌🩷
Honored Contributor
Posts: 9,126
Registered: ‎07-12-2011

@cheriere wrote:

@Natureluvr wrote:
@cheriere- Awww, your compliment made me smile! 😊 Thank you! I believe we know our bodies best and need to be our own health care advocate. I’m not assertive whatsoever (and am still not) but when my DH was sick, that changed and I spoke up when I had to. I could tell one of the nurses was getting irritated with me because I was questioning his blood work and she didn’t want to give me the answers. Most of his doctors were great but a couple were not.

Does anyone go with you to your appointments? I know an extra set of ears can be helpful. I really hope things improve for you and you get the relief you need. 💕

You're so welcome.  It is very true.🌸

My mom always goes with me to my appointments since I really don't have anyone else.  She's really hesitant to speak up even when I'm in the hospital lol, that's just her demeanor.

I am going to try and be more assertive on my next visit.  I don't like being untruthful and if I explain to my rheumatologist this aspect in regards to the steroids, surely she'll understand.  I hope she will anyways.  I do like her, but have to learn to speak up louder sometimes I guess.💝🌸


@cheriere I've also learned to speak up over the past several years. After all, we are our own best advocates, no one else!!

Frequent Contributor
Posts: 120
Registered: ‎03-10-2010

I can certainly be added to the list.  I have severe anxiety & PTSD due to the loss of my mother when I was just 11 y/o....I am 63 now. (I also have OCD).  Ugh.  

 

I actually have dissociative 'attacks' where I don't actually panic like others, but I totally shut down and don't communicate or do odd things.  I had 2 severe ones this month when out at appointments, and 911 has been called as the office workers think I am having a stroke.  It's very mortifying & embarrassing when I get back to 'normal'.  My husband has also been called both times.  I have NOT been out driving to appointments since this has occurred for obvious reasons.  I don't have issues when I am just going to run errands.

 

I am on an SSRI which does not seem to help, and now am taking either Xanax or Klonopin for a couple of weeks to see if it helps.

Trusted Contributor
Posts: 1,161
Registered: ‎06-14-2018
@Hearts4Me - I’m sorry you’re dealing with this and for the loss of your mom at such a young age. So this mainly happens at doctors appts? Maybe take one of the anti-anxiety medications prior to leaving the house. I’m sure it must be upsetting to have an attack like that in public but try to keep in mind that it’s a medical condition that you can’t control right now. I hope the new medications are able to help! 🩷
Frequent Contributor
Posts: 120
Registered: ‎03-10-2010

@Natureluvr wrote:
@Hearts4Me- I’m sorry you’re dealing with this and for the loss of your mom at such a young age. So this mainly happens at doctors appts? Maybe take one of the anti-anxiety medications prior to leaving the house. I’m sure it must be upsetting to have  aman attack like that in public but try to keep in mind that it’s a medical condition that you can’t control right now. I hope the new medications are able to help! 🩷

Thank you for your kindness.  No, I don't have these 'attacks' just before doctor's appts., it's just when I find myself obsessing about something in general.  That's why I am starting the tranquilizers before I have to go somewhere that I am worrying about.  AND I want to make sure all know that I do NOT drive then.  I don't want anyone to think I take a chance of endangering others for sure!

Trusted Contributor
Posts: 1,161
Registered: ‎06-14-2018
@Hearts4Me - Oh, I see. Yes, I understood from your first post that you don’t drive after taking the medication so I just assumed your husband was driving you to the places you were worried about. I’m sure you’ll feel a difference when taking the Xanax or klonopin. I’ve taken both at different times over the years and they helped immensely.
Frequent Contributor
Posts: 120
Registered: ‎03-10-2010

@Natureluvr wrote:
@Hearts4Me - Oh, I see. Yes, I understood from your first post that you don’t drive after taking the medication so I just assumed your husband was driving you to the places you were worried about. I’m sure you’ll feel a difference when taking the Xanax or klonopin. I’ve taken both at different times over the years and they helped immensely.

My DH will drive if necessary, but usually I am fine in the car and only go short distances anyway.  My therapist has taught me to search for different easy/safe things when I drive to keep my mind clear. It helps me.  I wish there were support groups close for all of us who suffer from such feelings.