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‎02-28-2015 02:53 AM
‎02-28-2015 03:01 AM
I used Restasis faithfully, as directed, for many months, twice daily, and had no positive benefits. Even my opthamologist said it was useless. Of course, different people react differently to medication, so it might work for some.It did nothing fo me but waste a lot of my money.
‎02-28-2015 03:04 AM
On 2/27/2015 Penellope said:Penellope, I have had recurrent corneal erosions also. Have you tried Muro 128? It is in drop, and gel form for this specific condition. It actually pulls fluid from the cornea to help the erosion heal. I was suffering from this often, and used the Muro for a couple of months. It helped a lot. You can of course read about it on the internet. It is available over the counter at drugstores. It does burn, because it is a salt solution, but is much less painful than corneal erosions.I'm sorry you are suffering with this. I've had dry eyes for about 8 years with a recurrent corneal erosion. It's very painful and requires constant attention. I don't have diabetes or Sjogren's, but I do have Hashimoto's hypothyroidism (no Dr. has made a connection to this).
I have tried warm soaks and eyelid massage, eyelid wipes, lubricant drops during the day, ointment at night, Omega-3 supplements, tear duct plugs and Restasis. The best drops are Refresh Celluvisc - no preservative. The Restasis supposedly improved my tear production but I didn't notice an improvement with it, nor with the tear duct plugs.
My situation seems to be pretty severe, hopefully yours isn't as bad once you get it under control. I hope you feel better!
‎02-28-2015 04:02 AM
On 2/28/2015 Divine said:Divine, I was told we have three different layers of tears, and depending on which one is malfunctioning will determine positive/negative results with Restasis. My eye doctor did a test on me before using it, and after 30 days. In my case the tear production improved significantly. They told me it either works or it does not, and there is no in between. They offered me tear plugs, but I could not tolerate even the thought of it.I used Restasis faithfully, as directed, for many months, twice daily, and had no positive benefits. Even my opthamologist said it was useless. Of course, different people react differently to medication, so it might work for some.It did nothing fo me but waste a lot of my money.
‎02-28-2015 07:45 AM
On 2/28/2015 Tissyanne said:On 2/27/2015 Penellope said:Penellope, I have had recurrent corneal erosions also. Have you tried Muro 128? It is in drop, and gel form for this specific condition. It actually pulls fluid from the cornea to help the erosion heal. I was suffering from this often, and used the Muro for a couple of months. It helped a lot. You can of course read about it on the internet. It is available over the counter at drugstores. It does burn, because it is a salt solution, but is much less painful than corneal erosions.I'm sorry you are suffering with this. I've had dry eyes for about 8 years with a recurrent corneal erosion. It's very painful and requires constant attention. I don't have diabetes or Sjogren's, but I do have Hashimoto's hypothyroidism (no Dr. has made a connection to this).
I have tried warm soaks and eyelid massage, eyelid wipes, lubricant drops during the day, ointment at night, Omega-3 supplements, tear duct plugs and Restasis. The best drops are Refresh Celluvisc - no preservative. The Restasis supposedly improved my tear production but I didn't notice an improvement with it, nor with the tear duct plugs.
My situation seems to be pretty severe, hopefully yours isn't as bad once you get it under control. I hope you feel better!
Hi Tissyanne, no I haven't tried that, but I will. I'm surprised none of my Drs. suggested it. Thanks!
‎02-28-2015 08:44 AM
I have this, too. I feel like there a bugs in my eyes all the time. Seriously, I just feel like pulling all my eye lashes out at times! My eyes get very red, dry, scratch, irritated, etc. The doctor said take a fish oil cap. Also, use drops at least 3 times a day or more. He suggested Refresh Optive Advanced, which I use during the day. Before bed, I used Refresh Liquigel. Occasionally, I will use Refresh P.M., but this is an ointment and you really can't see much after you use it, so apply right before bed.
If you use the very warm compresses 2ce a day and use the eye drops faithfully, you will see, I believe, I big difference. It took about a month for me to get some relief. But, you have to be faithful about doing these things. I believe this is pretty much a chronic condition, sorry to say, so you must be vigilant.
‎02-28-2015 12:34 PM
I have Sjogren's, so I have dry eyes, dry mouth, and severe itching. I am learning to live with it.
I also have RA, hypothyroidism, osteoporosis, GI issues, and take low dose (6 mg) prednisone every day, as well as Synthroid for almost thirty years. I have no idea what causes what anymore.
Oh, and I now have cataracts as well. Have to get that checked out again because my eyesight has worsened.
Once one gets one autoimmune disease, the rest just pile on, don't they? 
‎02-28-2015 02:03 PM
If you are using OTC eyedrops for dry eye, check the ingredients. I found out that I am allergic to Benzalkonium chloride (BAK) in the drops. There is info on the internet about this.
I was putting drops in my eyes that were causing the condition I was putting the drops in my eye to help ease. I changed drops (there are preservative free ones available OTC) and my eyes got better in 2 days.
Even my eye Doc did not figure out that the BAK was my problem and gave me a Rx with BAK in it. Like pouring shampoo in my eyes!
‎02-28-2015 02:15 PM
‎02-28-2015 05:55 PM
On 2/28/2015 Penellope said:Google Muro 128 for cornea erosions. There is an article written by an eye doctor there that explains this in detail. Good luck to you. This is a painful condition. The cornea has many nerve endings, and any disruption is bad news.On 2/28/2015 Tissyanne said:On 2/27/2015 Penellope said:Penellope, I have had recurrent corneal erosions also. Have you tried Muro 128? It is in drop, and gel form for this specific condition. It actually pulls fluid from the cornea to help the erosion heal. I was suffering from this often, and used the Muro for a couple of months. It helped a lot. You can of course read about it on the internet. It is available over the counter at drugstores. It does burn, because it is a salt solution, but is much less painful than corneal erosions.I'm sorry you are suffering with this. I've had dry eyes for about 8 years with a recurrent corneal erosion. It's very painful and requires constant attention. I don't have diabetes or Sjogren's, but I do have Hashimoto's hypothyroidism (no Dr. has made a connection to this).
I have tried warm soaks and eyelid massage, eyelid wipes, lubricant drops during the day, ointment at night, Omega-3 supplements, tear duct plugs and Restasis. The best drops are Refresh Celluvisc - no preservative. The Restasis supposedly improved my tear production but I didn't notice an improvement with it, nor with the tear duct plugs.
My situation seems to be pretty severe, hopefully yours isn't as bad once you get it under control. I hope you feel better!
Hi Tissyanne, no I haven't tried that, but I will. I'm surprised none of my Drs. suggested it. Thanks!
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