Wellness

[Kindlereader]

Happy Days, I'm so sorry to hear that you lost your dad. I'm sending warm thoughts to you & your family during this tough time. Hi Pam! Sorry I've been mia from the board for a bit. Much has changed for me & my girls. We moved from NY to Ohio at the end of June & have been busy settling in & getting acclimated etc. It's been quite a ride so far but we are finding our way. I hope all is well with you in the PNW. We got our first round of snow flurries today, oh boy let the fun begin Celtic, I'm glad I helped make you feel a little better. I hope your surgery goes as well as mine did. I will be thinking of you! Goldie, glad you're feeling better. Jackie, you're such a good friend to all. I'm so glad you're on this board! F1, how was your birthday celebration? I hope you did something nice for yourself. Cocoa, how are you? I think of you & everyone here every single day. Hugs, Kindle

[HerRoyaLioness]

On 11/12/2014 Sunshine said:

Hi LANNI,

Thanks for writing. I get Prednisone in my IV the day of chemo and then I take the pills the day after treatment for 4 days. I started a different anti-nausea med. yesterday too. Thankfully, it helps a lot. I still drink ginger tea also. I was given Benadryl and Tylenol orally and an anti-nausea med. plus the other meds. for cancer in the IV. I hate the Prednisone pills. I've gained weight and my blood sugar has risen. I'm bald, my face and hands look swollen and my stomach has never looked bigger . I can't wait til this nightmare is over. I'll get through it, but never want to do chemo again. I'm so happy that you're in remission.

JACKIEHN, thanks for the tip about the anti-nausea meds. Being nauseous is such an awful feeling. Compared to other cancer patients I've spoken with, I've been luckier than a lot of other people.

Thanks again Ladies. Sue

Sue - I hope your nausea will get under control - I think the long acting one they gave me right before chemo really helped, along with the other things. It's not a pleasant journey, but you'll make it through - there is a light at the end of the tunnel, I promise! How many more treatments do you have?

Oh boy are you taking me back to my treatment days! The steroids kept me up all night, couldn't sleep. Then the IV Benadryl put me to sleep. Bald wasn't beautiful on me, fortunately I had a really natural looking wig, but my head sweat and itched so much, I would fling it off at works sometimes - my co-workers didn't care - one of them had just went through breast cancer and chemo the year before. I told her she gave it to me!

Are you getting the neulasta shot too? That really bothered my bones, but I had good pains meds, so got through it.

Let us know how you are doing - we know what it's like to go through what seems like a never ending torture to get ourselves well. We're with you. No one knows until they go through it. Jackie is so right, eat what you can and drink lots.

Lannie

[AkaGoldie]

Hello ladies, just checking to see how everyone's doing. Celtic, how are you? I hope you haven't been worrying yourself too much. Your surgery will be soon and then you'll have some answers and that will ease your mind, just knowing what lies ahead. Lannie , Pam kindle , Jackie f1 all of you I hope your doing well and staying warm. Goldie

[F1wild]

Hi everyone!!

The past few weeks I've not felt well, but as we all know now that it's not a return of Melanoma - thank goodness! It seems to be a continued fight with my altered adrenal system. This time fatigue, blood glucose in the mid to high 300s alternating with 70s, no control over body temp. I called my Mayo endocrinologist and got a call back within 5 minutes. So trying to control with my meds.

This is not a big deal for me! There are way too many, even on this thread with many more concerns. I'm thinking of you, sending my most positive energy your way. My strength is yours. My peace is for you! Even if your weekend is he-ll, just smile when you can and receive my positive energy.

We had a little belated b-day get together at my parents today with my sister and one of my nephews. My wacky diabetic mom chose the menu - snicky snacks, including Cheetos, caramel corn, etc. Then instead of cake we had ice cream & cream puffs. It all worked and was fun.

Are you smiling yet??

[JackieHN]

F1 your mother wanted you to have a special birthday. She knows all of the stress. Stress in itself can also play havoc on your adrenals. Your blood sugars are all over the map. I'm sure they'll figure out your meds. It's a juggling act. I'm happy to hear you had a great time.

Cocoa, Sue, and Celtic how are you guys doing?? Hope you are all enjoying your weekend. I know it hasn't been easy for any of you. But like we used to say in the 60's. Keep on truckin. What choice do we have? None.

Girlfriend #1 who is having radiation is complaining about soreness at the nipple and how she can't wear a bra. I said just put a soft sock in the bra. End of problem.

Going to bed. I fulfilled one wish tonight. I had a really great bowl of pasta with sauce. It was so good.

Love to everyone.

Jackie

[CelticAngel]

Hi Everyone, thanks so much for the support. The waiting has been difficult, as I'm sure you all can understand. A few nights have been pretty bad, I've woken up delirious saying I don't want to do any of this, asking my husband if my surgery was that day and generally talking nonsense. I've been trying to get my mind on other things. Started watching Sherlock series. Now I've fallen under Benedict Cumberbatch's spell. LOL My husband had a conference he cancelled b/c we thought my surgery would be earlier, so we will be going today. Its at the beach. In November. During the Polar Vortex. But I love the ocean (we live in the mountains) so I figure just looking the the water will be good enough for me. We will get home in time for my pre-op appt with surgeon and anesthesiology. Apparently they don't know who will be doing anesthesia on the day of my surgery, so I won't be able to speak with the exact person until just before. This makes me a bit nervous. Hope everyone here is doing well.

[JackieHN]

Celtic your mind as sure been working overtime You will be having an attending anesthesiologist with you and he has done it a million times so stop worrying. Anyway your surgery won't be that long. Stop driving your husband crazy. You can drive us crazy instead since we've been through surgery. He has enough on his brain already. Trust me your going to get through the surgery just fine. We worry and worry and then it's all over and you want to kick yourself because it wasn't half as bad as you thought it would be.

Jxx.

[AkaGoldie]

Celtic, I hope you can enjoy your time at the beach. It's snowing here today and it's about 25 degrees! Forgive me if I've already asked this, but have they done a ca125 on you? And what was the number? If you get by with laparoscopic surgery , your recovery time will be much shorter than mine. Goldie

[CelticAngel]

Jackie - you're cracking me up! I told my husband you told me to give him a break. He chuckled. He has been such a trooper. I do wish I cld find a way to be more confident & calm about all of this. It really helps to hear your confidence about it all. Goldie - yes, the abnormal ca125 is what started this whole ordeal. Mine was 108. The newer more specific OVA1 test I took after that was also abnormal. Originally the ultrasound showed a small lesion. radiologist & gyno suggested 3 month Ultrasound follow up. Gyn did ca125 test just to be safe. She was shocked at the level and immediately referred me to oncology. I think because I have no reproductive cancers in my family she didn't expect the lesion was anything serious. Now I find out that pretty much all the woman in my family had hysterectomies in their 40s (due to fibroids). I had no idea. We really don't know what the family risks are except that our fibroid were really bad. The beach is cold and rainy, but hopefully it will be a bit warmer tomorrow. We ate a lovely seafood meal this evening, so I'm happy. Hopefully the change of scenery will keep me focused on other things. F1 - Glad you had a birthday celebration. Your mother sounds like a hoot. On a completely other subject, does anyone else have trouble formatting posts on an iPad? No matter how much I try to separate out sections and start new paragraphs everything just runs together. It makes it so hard to read. Not sure if this is just my problem or a bigger issue.

[wagirl]

Hi everyone!! So I'm getting ready to go see my gastro dr about a colonscopy early this a.m. Time for that again already and no fear that there will be anything but normal stuff.

celtic--it is so hard to try to second guess an upcoming surgery and trying to figure out what you are going to do about it BEFORE you know what is going on. Just drives us more nuts and lord knows, we have buckets of crazy on this board to go around. Please try not to dwell so much on it. I know, I know---its an impossible thing not to do. But we have your back, Jack---an ode to Jackies favorite TV show--Duck Dynasty. When this is over, it will be like a huge weight has been lifted off your shoulders and then you move on to whatever is next!! Give your hubby a squeeze for us and tell him just to hold you tight.

goldie--our weather here has been stellar--bright, sunny days, no rain, but freezing overnight and chilly days in the low 40's. Polar vortex has missed us.

Will check in later!

PAM