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Super Contributor
Posts: 1,354
Registered: ‎11-30-2011
On 10/24/2014 JackieHN said:

Cocoa, I'm happy to hear that he's going to Sloan for a further evaluation. they are on the cutting edge of everything there. Dress warm here. It's getting chilly.

Well celtic, we're waiting to hear what your Dr said. Whatever it is we'll help you through it.

Husband is putting together a table that we bought on overstock. He's all excited.

F1 still waiting for that special value from Dimitri. Did you get yours yet??

Jxx

Not yet. I'm supposed to receive today. BUT, in the interim I've discovered I'm allergic to something in his products, the new Stem Rejen Elite serum products and the others in that TTV. I'm so disappointed. I developed nice red spots on my face and neck, not acne, not a rash, but bright red spots. I began narrowing things down until the only possibility was these Skinn products. So, I went back to only PC Resist products and the spots disappeared within a day and a half. Bummer!!!

Respected Contributor
Posts: 2,500
Registered: ‎09-23-2011

F1 got mine this afternoon. Just did a test drive. Just like the clarisonic. He gives you 5 different heads with it. Plus I like the base compared to the clarisonic. You may be able to use it with either his cleanser or a different one. It's very gentle.

Super Contributor
Posts: 1,354
Registered: ‎11-30-2011
On 10/24/2014 JackieHN said:

F1 got mine this afternoon. Just did a test drive. Just like the clarisonic. He gives you 5 different heads with it. Plus I like the base compared to the clarisonic. You may be able to use it with either his cleanser or a different one. It's very gentle.

Did you try the silicone head? I'm interested in that one especially. Also, what does the dispensing one do?

Frequent Contributor
Posts: 85
Registered: ‎03-09-2010

Hello, my name is Joyce. I'm 58 yrs old dx'd with multiple myeloma. Have been getting weekly chemo injections since January. There is a protein level they keep track of and the last two have come back as undetectable for multiple myeloma so I am officially in remission. was just notified this afternoon by the oncology nurse. I'm so happy. I still have to keep getting my weekly chemo injection tho. I don't mind in the least if it keeps me in remission. MM is an incurable cancer of the bone marrow. I had one amost 8 inch long tumor in my rt humerus bone. I ended up having the damaged bone removed and my rt arm is pretty much useless now. I've now got several tumors in lymph nodes so its considered extramedullary now. I may be in remission but the cancer has ravaged my bones. I've had several fractures due to the holes the mm causes to the bone.

Anyway, I continue will continue to pray every day for this protein level to stay undetectable and I will stay in remission for a long time. I'd like to go back thru this post and read about everyone but my pain meds have kicked in pretty hard and I'm having trouble keeping my eyes open. Will check back tomorrow.

Honored Contributor
Posts: 16,686
Registered: ‎03-09-2010

Hi Joyce!!! Hurray for your remission!!! Very good news and heres hoping that will continue. I don't know anything about your cancer zombies but can sympathize with all the side effects that happen with treatment. Glad you found us and hope you come back to update us and enlighten us about your ""adventure"". All of us on this board are pretty amazing people and we will help anyway we can if you need us.

PAM

Regular Contributor
Posts: 222
Registered: ‎06-09-2010
Jackie - thanks so much for asking how it went. I like the gyn oncologist, and his resident, very much. They were both very reassuring. He gave me some options, but basically recommends a full hysterectomy. He believes if it is cancer (which can only be diagnosed by removing my ovary) it is likely in the early stages. We did a few more tests (CT scan, OVA1 test) so we know more about what we're dealing with. Luckily the CT scan didn't show anything serious, other than fibroids denting my bladder. The results for the OVA1 test come back next week (has to be sent to the Mayo Clinic.) If all the other tests are OK I have the option to remove one ovary, both ovaries, a full hysterectomy or wait 3 months and do the CA125 & ultrasound again. Still no word on what is causing the pain on my left side. I hoped the CT would show something about what's happening on my left side, but it did not. That pain is still keeping me up at night. So the overall news is relatively encouraging under the circumstances. After all the test results come back, I will have some decisions to make. How is everyone else doing?
Respected Contributor
Posts: 2,500
Registered: ‎09-23-2011

Celtic, glad you wrote back. Personal opinion. Full hysterectomy. When I went for my surgical consult I said take them off. The answer was NO. That would be stupid. But in your case who needs all of this on your head. ultrasounds and CA125's every few months. You'll go nuts. I don't know how old you are but if your premenopausal or post who needs a uterus and a troublesome ovary. I tell Goldie all the time. Your having gas pains.

F1 I dont see a dispensing head on this machine. There is a head for normal cleansing, gentle cleansing, silicone and a green head for the body. I don't think you'll have a problem with this machine.

Joyce, welcome to our board. So happy your in remission. However I'm sorry about your bone pain. There are so many new treatments for multiple melanoma now. My friends go to Sloan for it. Thank God they are also in remission. Get to know us. We are very friendly here. And we all know about cancer that's for sure.

OK bought a table from overstock. Husband put it together and now we find it too low. Husband has to figure something out.

Hey Pam, how are you doing?? Where is our lioness. Long story for those of you who are new. Let me just say that anyone who comes to this board to mess with us they will hear our wrath. You dont mess with cancer patients.

Jxx

Respected Contributor
Posts: 2,664
Registered: ‎03-13-2010

I have been reading daily, but this Lioness has been down with bronchitis. Dr said my lungs were so inflamed that he put me on a double dose of steroids. Combined with an antibiotic and cough syrup w/codeine and I don't even know what day it is anymore! Just really tired out.

Went to a Cancer Support Group meeting our Breast Clinic puts on for the public and they had a Physical Therapist as the speaker. Very interesting.

The fatigue we suffer is totally different from regular fatigue and is not helped by rest and more sleep. The types of chemo they give for breast cancer have some severe and lasting side effects. Of course we all know that, but she talked about different things they do for patients, after surgery, during chemo and before you start radiation, plus the after all treatment issues we have.

I think our Pam has gone to PT for some of these things and maybe she can chime in, but basically they have exercises, massage on scar tissue and other things they can do to help. As for fatigue, I didn't like it, but they said exercise, 3-5 hrs a week will actually help get rid of the fatigue. Talked about lymphedema too and we can get that at any time after treatments.

Anyway, have been following everyone, hang in there, keep posting,

LL

Regular Contributor
Posts: 222
Registered: ‎06-09-2010
On 10/24/2014 Homebody1 said:

Hello, my name is Joyce. I'm 58 yrs old dx'd with multiple myeloma. Have been getting weekly chemo injections since January. There is a protein level they keep track of and the last two have come back as undetectable for multiple myeloma so I am officially in remission. was just notified this afternoon by the oncology nurse. I'm so happy. I still have to keep getting my weekly chemo injection tho. I don't mind in the least if it keeps me in remission. MM is an incurable cancer of the bone marrow. I had one amost 8 inch long tumor in my rt humerus bone. I ended up having the damaged bone removed and my rt arm is pretty much useless now. I've now got several tumors in lymph nodes so its considered extramedullary now. I may be in remission but the cancer has ravaged my bones. I've had several fractures due to the holes the mm causes to the bone.

Anyway, I continue will continue to pray every day for this protein level to stay undetectable and I will stay in remission for a long time. I'd like to go back thru this post and read about everyone but my pain meds have kicked in pretty hard and I'm having trouble keeping my eyes open. Will check back tomorrow.

Welcome, Joyce. So glad your are officially in remission. That must've felt great to hear. It sounds like you have had a long and rough road.
Regular Contributor
Posts: 222
Registered: ‎06-09-2010
Jackie - everyone seems to think I should get the full hysterectomy. I am 48 & premenopausal. I'm just not sure, esp if the ova1 test comes back negative. Still have to see the GI dr in late Nov to find out if my pain is something GI-related. The dr clearly wants to do the full hysterectomy, but said I could choose to do only one ovary. They will test it during the surgery and do the full hysterectomy if it comes back positive or something else looks problematic. I was amazed to learn surgery for 1 ovary (without complications) is a 30 minute operation and home the same day. ETA: the dr and his resident spent at least 2 hrs with me and my husband. I don't know if this is unusual or not, but it made me feel great to know all of my questions had been asked and answered.