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Respected Contributor
Posts: 2,839
Registered: ‎03-10-2010
On 9/26/2014 kismet said:

I've been taking the Vancomycin since Tuesday and I'm feeling a lot better. I feel a little tired but other than that I'm pretty good compared to the Flagyl. I'll never use that again ever.

I find it strange that my insurance wouldn't pay for the IV to be mixed up for $200. at a compounding pharmacy. The capsules cost $1,200. my copay $5. Makes no sense to me. If my insurance would of paid for the liquid I would of saved them some money.

I do have a question for those that have ended up in the hospital. Did you have any signs a few weeks before you went to the hospital. Like cramping or pain. Guess I was lucky that I caught it so fast. I do have to make sure this is taken care of. I had to cancel cataract surgery when I was diagnosed. I want to have the surgery and have to be clear before I can have it.

Sounds wise to me and make sure after this is over to fortify with a good probiotic to replenish your friendly bacteria to maintain a healthy immune system.


Super Contributor
Posts: 305
Registered: ‎07-23-2014
On 9/26/2014 kismet said:

I've been taking the Vancomycin since Tuesday and I'm feeling a lot better. I feel a little tired but other than that I'm pretty good compared to the Flagyl. I'll never use that again ever.

I find it strange that my insurance wouldn't pay for the IV to be mixed up for $200. at a compounding pharmacy. The capsules cost $1,200. my copay $5. Makes no sense to me. If my insurance would of paid for the liquid I would of saved them some money.

I do have a question for those that have ended up in the hospital. Did you have any signs a few weeks before you went to the hospital. Like cramping or pain. Guess I was lucky that I caught it so fast. I do have to make sure this is taken care of. I had to cancel cataract surgery when I was diagnosed. I want to have the surgery and have to be clear before I can have it.

Glad you are starting to feel better! To answer your question about any symptoms before I was hospitalized? Looking back on it now, yes. BUT, I also have IBS, and the flu season was in full swing then. Due to some very stressful events, I thought it was a flare up from IBS. Then after about a week, I thought I had the flu. Just thought I needed rest, fluids, you know. (I was going to see my PCP in 2 days.) I felt awful. Whole stomach hurt - throat to bottom. Nausea, bad. Cramps, bloating, insomnia, fatigue, chills, sweats, headache, loss of appetite. Then, in the middle of the night, it slammed me! No other way to describe it. PAIN, vomiting, spasms, blood.... Awful! Worse than labor pains. My DH picked me up from the floor, got me dressed in sweats and rushed me to the ER. I don't remember too much for a couple days after that. Doc later told me that he didn't know how I was still walking, and that I was very lucky. He said about 8 ft of my large intestine was infected. That I was malnourished and severely dehydrated due to lack of absorption.... I have no proof, but I believe that ordeal has caused other issues that I now face. If this thread, and all the info it contains, can help just one person avoid this, then it is SO worth it! I sincerely hope that you continue to improve. Best wishes, Kippycat.
Valued Contributor
Posts: 572
Registered: ‎03-10-2010

KippyK3, you know I felt that I just had a problem with colitis and took the medication for that. But the pain didn't go away like it usually does. In both instances the really first sign was blood. I knew from Crohn's disease that when you see that something is wrong. Seemed like both times it happened on a weekend that's why I didn't wait and went into the walk in clinic which is opened from 8 to 8 every day. Years ago I was at work and had a slight stomach ache, went home and knew something was wrong. The next morning I was at my GP and was told to go to the hospital. End up with 3 ft of my intestines removed and was in intensive care for a week and in the hospital for a month. Had to go into emergency surgery since the bleeding wouldn't stop. And that was just a slight stomach ache.

I am taking Florastor now and will continue with it when this is gone. As long as I took it after the first episode I was fine. I never heard about this either until I got it. I heard there was something that could be picked up in a hospital or nursing home but didn't think it was serious. This is pretty serious.

My son in law was going to bring the grandkids up and I told him not until I'm clear. While my husband doesn't have any symptoms I wonder if he should be checked. Wonder if it's possible to have it and no symptoms. We don't use the same bathroom, I have 3, and he doesn't fix my food but just living in the same house makes me wonder. I'll have to ask my doctor.

Super Contributor
Posts: 492
Registered: ‎03-31-2011

Hi kismet,

I'm glad to hear you're feeling better! I know I don't have to say this, I'm saying it more for anyone else who is reading, but please remember to finish your course of vancomycin. Don't stop it just because you're feeling better.

You asked if anyone who wound up in the hospital had any signs or symptoms weeks before. I had a very unfortunate experience, which I will relate in more detail.

I had a cyst on my upper chest drained by my derm. He prescribed dicloxacillin to prevent infection. This was in 1993 and I knew nothing about the dangers of antibiotics at that time. Had I known, I would have opted to just clean the wound. On day 6 of the antibiotic, I woke up with diarrhea. I thought it was the Chinese food I had eaten the night before. I have a fairly sensitive stomach and usually eat more blandly.

After a few days of diarrhea, I went to my doctor, who prescribed me an anti-diarrheal. This is the WORST possible thing that could have been prescribed because if you have a C. diff. infection, the body is trying to rid itself of the bacteria and its toxins by having diarrhea. An anti-diarrheal keeps all this garbage in your gut, causing an even greater problem. A week after that, I went to another doc, who prescribed me an anti-spasmodic. After this, the diarrhea became more frequent throughout the day and it was starting to change in appearance. For anyone reading, I'm going to get graphic, so stop reading if you don't want to know.

By my third doc, I was pleading with him that something was terribly wrong. This was not "normal" diarrhea if one can even say that. What was coming out of me were green and black flakes. It didn't resemble stool at all. The flakes were actually the waste products and toxins created by C. diff. That's what was coming out of me. I was also crampy.

I next went to a gastroenterologist, who had been highly recommended to me by a close M.D. friend. He said he would "trust his own family's life with" this doc. I was quite sick by this point and was in the bathroom every hour of the day. I pleaded with him to listen to me, I cried, I yelled. He basically brushed me off. I honestly don't remember what he prescribed me. Time was running out, quickly.

It was now about one month later. I was going to see yet another doc the next day, but woke up in the morning doubled over in pain. I got to the hospital, where I was taken in for an exploratory laparoscopy. The surgeon told me afterwards there was so much (abnormal) fluid in my stomach and intestinal area, they had to perform emergency surgery. I had a toxic megacolon, which is the dire outcome of a C. diff. infection. The bacteria had begun eating their way through my intestinal wall and the diseased section had to be removed. The surgeon told me I was within minutes of my colon bursting and likely killing me.

Lesson learned: Antibiotics are not to be taken lightly or used indiscriminately. Also, very important to note, a C. diff. infection can occur weeks or even months after taking an antibiotic, not necessarily while you are taking an antibiotic or right after you have completed a course.

As an aside, about taking a probiotic, I did my research and chose Culturelle over Florastor due to the fact that Florastor contains Saccharomyces boulardii lyo, which is a yeast, as opposed to Culturelle, which contains the bacteria, Lactobacillus GG. I would tell everyone to research your probiotic to make your own informed decision rather than just taking the next person's recommendation for what you should take. In my case, I didn't want to take a yeast, which has its own potential side effects.

Honored Contributor
Posts: 15,588
Registered: ‎09-01-2010
kismet, When you have an active c-diff infection, you shed active spores, which can be picked up by others. Those people will carry the spores in their body until they colonize, and the process turns into an active infection. The absolute key when you have an active infection is to not share a bathroom with others, clean your toilet and surfaces with chlorine bleach, and wash your hands thoroughly, and often. I do agree that your husband should be checked for c-diff, as a precaution. If you clear up your infection, but he unknowingly has it as well, and continues to leave spores around the house, your infection will re activate. You do not have to live as a recluse with an active c-diff infection. My cousin was allowed to be around her newborn granddaughter, as her diarrhea was controlled, and she had been on Vancomycin treatment for 2 wks. Even the pediatrician gave permission for her to be around the baby immediately after birth. C-diff spores are everywhere we are, so we cannot avoid picking them up and carrying them with us. It is important to be extremely diligent, and compliant, with treatment once the infection activates within our body. Enjoy your grandchildren!
Valued Contributor
Posts: 572
Registered: ‎03-10-2010

I agree that you don't have to be on antibiotics at the time and can get it a few weeks later or months. I didn't get it until I was off antibiotics for 9 months the first time. I did have a lot of them in a year period due to surgery but was fine. When a person has had problems with the colon you know that blood is not normal. That was my first sign, no pain, nothing. This time no antibiotics except for 2 in April of 2013 so there was no reason I got it from what I was taking. Blood again and I was in the walk in clinic. For some reason I guess my pain tolerance is high. I was taking the Florastor for a long time and just decided I didn't need it. That wasn't a wise choice.

I take the Florastor cause while I was taking it I didn't have a recurrence and I normally don't have a problem with yeast infections. I think I had one in my life. I don't eat a lot of sugar which seems to feed the yeast. I have looked at Culturelle but had some Florastor already here. I did read that Florastor taken with Vancomycin appears to clear up the infection better. I asked my specialist about Florastor and he said to take it. I'll be seeing my GP and hopefully this will be cleared up. Have to admit I do take a 1/2 or 1 Imodium just about every day since my colon surgery but have since the 70s and never had a problem with cdiff.