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Regular Contributor
Posts: 157
Registered: ‎08-26-2015

@lobstergal

@LTT1

@Glass Lady K

@hckynutjohn

@NAES1

 

Hi dear friends and those who are stopping by today,

 

I've come back to ask for your positive thoughts and prayers, as I may have herniated yet another disk in my low back on Tuesday.  Will be going to Urgent Care (well connected to Providence Hospital) in a few hours to get things rolling, as my internist just moved her practice, so is not available this week.  If I had a spine ortho or neuro, I'd be there as soon as they could get me in, but have not established a relationship in that field yet here in Portland.   Boy, do I miss all of my docs in La Jolla and San Diego!

 

I hope they order an MRI or at least make a STAT referral to a specialist so we can get that MRI done, as this is a bad one (herniation).

 

Wish me luck through the process and with sleep.

 

Thanks so much.

 

God Bless ~ Rebecca 

Honored Contributor
Posts: 34,665
Registered: ‎03-09-2010

@sfnative

You got 'em!  I am saying prayers and sending positive thoughts for you STAT!  I hope you are not in screeching pain... I hope they gave you something to help you relax for sleep Heart  Will be looking here to see your f/u Heart

~Have a Kind Heart, Fierce Mind, Brave Spirit~
Regular Contributor
Posts: 157
Registered: ‎08-26-2015

@LTT1 wrote:

@sfnative

You got 'em!  I am saying prayers and sending positive thoughts for you STAT!  I hope you are not in screeching pain... I hope they gave you something to help you relax for sleep Heart  Will be looking here to see your f/u Heart


@LTT1

 

Hi Loves,

 

Well, I made it through Urgent Care alright, but honestly the physician looked as though he hadn't slept in 48 hours and his eval was incomplete in the extreme.  He ended up asking me what I wanted.  Since I can't take NSAIDs, I asked for a Medrol script and got it.  Then asked for  referral to a neurosurgeon and got that.  He said I needed an MRI, no duh, but that'll come through the neuro's office. 

 

This is bad nerve pain traveling down the side-front of my leg and dorsum of the foot.  The only way I can comfortably walk is to bend over about 40 degrees - LOL!  It's clear the impingement is in the anterior spine.  We just don't know if it's caused by a herniation (disk material) or muscle pressing on nerve.  Looks like I'll have to wait some time to find out and then seek appropriate treatment.  Having to wait is not fun.

 

Thanks so much for checking in, Loves!

 

Hope you have a grand weekend!

 

~Rebecca

Regular Contributor
Posts: 157
Registered: ‎08-26-2015

@LTT1

 

Loves,

 

"Anterior" above should read "right lateral." ~Rebecca

Esteemed Contributor
Posts: 5,291
Registered: ‎06-15-2015

Re: Are You Falling Apart?

[ Edited ]

@sfnative wrote:

Hi dear friends and those who are stopping by today,

 

I've come back to ask for your positive thoughts and prayers, as I may have herniated yet another disk in my low back on Tuesday.  Will be going to Urgent Care (well connected to Providence Hospital) in a few hours to get things rolling, as my internist just moved her practice, so is not available this week.  If I had a spine ortho or neuro, I'd be there as soon as they could get me in, but have not established a relationship in that field yet here in Portland.   Boy, do I miss all of my docs in La Jolla and San Diego!

 

I hope they order an MRI or at least make a STAT referral to a specialist so we can get that MRI done, as this is a bad one (herniation).

 

Wish me luck through the process and with sleep.

 

Thanks so much.

 

God Bless ~ Rebecca 


 

 

Hi Rebecca,

 

Thank you so much for your concern about my wife and myself. No, I have not had my Endoscopy yet. My wife and I will both be going in on the same day to have procedures done.

 

She is having a both an Endoscopy and a Colonoscopy on the same day. She will be first with the Gastro Doctor and I will go second. The doctor wants to see how her bleeding ulcer is healing for her and also take a look at her right colon.

 

For me it is a follow up on an Endoscopy I had recently to make sure my Barrett's Esopagas is still in check. If not? Will wait and see where the doctor wants to go from there. Her mother lives only a couple blocks from the hospital so she will be driving us home. She is 90 years old but still drives well.

 

I am very sorry to hear about your spinal issues. As I've mentioned here several times, my spine is minus the L-5/S-1 and the L-3, so I know the pain issues associated with those particular discs. Mine fortunately(or unfortunately however one chooses to look at it)were completely ruptured so there was no option other that surgery of some type.

 

L-5/S-1 was via a BIG open surgery. The other, done by my friend the Spinal Specialist, was, at the time, an experimental procedure to remove the remnants of the ruptured L-3 disc. It was invasive, but only with some big syringes of some type.

 

He did this in his office giving me only local anesthesia. I laid on my stomach for the 2 hour procedure and watched on the monitor as he removed(or zapped) each partical floating around what I guess was my spinal canal. He told me at the time it was 40% effective. I went in with much pain and numbness, and 2+ hours later I walked out pain free.

 

I wish you had as easy access as I do to to a Spinal Surgeon. All I have to do is call him and he moves me into an appointment right away, even if he has to skip his lunch to do so. I sure wish you get that MRI, and soon and get some comfort along with being able to sleep.

 

Thank you so much for caring and now it is my turn to reciprocate for all the thoughts and prayers you have sent my way for my wife and myself.

 

Be well my friend,

 

JOhn

hckynut(john)
Honored Contributor
Posts: 34,665
Registered: ‎03-09-2010

@sfnative@hckynutjohn

You know, I will probably regret what I am going to write, but I am going to write it!

 

I told my INT MED md's nurse that I had seen 30 specialists in 30 years... (well, that is about right).

After I told her this, I thought...the ending to that sentence would have been "and never have I been cured!"

 

After thinking this, now I am of two minds:

1) Would you allow a car place to not fix your car after you have taken it in and paid for them to fix it?

 

2) My doctors HAVE kept me operational (mostly) -- so how much of what I suffer from could have been lots better?

 

I don't know... do you have these thoughts too?

 

Just thought I'd share...

 

 

~Have a Kind Heart, Fierce Mind, Brave Spirit~
Regular Contributor
Posts: 157
Registered: ‎08-26-2015

@hckynutjohn wrote:

@sfnative wrote:

Hi dear friends and those who are stopping by today,

 

I've come back to ask for your positive thoughts and prayers, as I may have herniated yet another disk in my low back on Tuesday.  Will be going to Urgent Care (well connected to Providence Hospital) in a few hours to get things rolling, as my internist just moved her practice, so is not available this week.  If I had a spine ortho or neuro, I'd be there as soon as they could get me in, but have not established a relationship in that field yet here in Portland.   Boy, do I miss all of my docs in La Jolla and San Diego!

 

I hope they order an MRI or at least make a STAT referral to a specialist so we can get that MRI done, as this is a bad one (herniation).

 

Wish me luck through the process and with sleep.

 

Thanks so much.

 

God Bless ~ Rebecca 


 

 

Hi Rebecca,

 

Thank you so much for your concern about my wife and myself. No, I have not had my Endoscopy yet. My wife and I will both be going in on the same day to have procedures done.

 

She is having a both an Endoscopy and a Colonoscopy on the same day. She will be first with the Gastro Doctor and I will go second. The doctor wants to see how her bleeding ulcer is healing for her and also take a look at her right colon.

 

For me it is a follow up on an Endoscopy I had recently to make sure my Barrett's Esopagas is still in check. If not? Will wait and see where the doctor wants to go from there. Her mother lives only a couple blocks from the hospital so she will be driving us home. She is 90 years old but still drives well.

 

I am very sorry to hear about your spinal issues. As I've mentioned here several times, my spine is minus the L-5/S-1 and the L-3, so I know the pain issues associated with those particular discs. Mine fortunately(or unfortunately however one chooses to look at it)were completely ruptured so there was no option other that surgery of some type.

 

L-5/S-1 was via a BIG open surgery. The other, done by my friend the Spinal Specialist, was, at the time, an experimental procedure to remove the remnants of the ruptured L-3 disc. It was invasive, but only with some big syringes of some type.

 

He did this in his office giving me only local anesthesia. I laid on my stomach for the 2 hour procedure and watched on the monitor as he removed(or zapped) each partical floating around what I guess was my spinal canal. He told me at the time it was 40% effective. I went in with much pain and numbness, and 2+ hours later I walked out pain free.

 

I wish you had as easy access as I do to to a Spinal Surgeon. All I have to do is call him and he moves me into an appointment right away, even if he has to skip his lunch to do so. I sure wish you get that MRI, and soon and get some comfort along with being able to sleep.

 

Thank you so much for caring and now it is my turn to reciprocate for all the thoughts and prayers you have sent my way for my wife and myself.

 

Be well my friend,

 

JOhn


@hckynutjohn

 

John,

 

Thank you so much for sharing what's going on.  Boy, Cindy's 2 diagnostics in one day - what a doozie!  Bless her heart!  I know that you both know that when it's gotta be done, it's just gotta be done. My husband is difficult in the extreme.  I don't know what I'm going to do when something major happens to him.  He won't even get a flu or shingles shot at present.

 

I sincerely hope and pray that the diagnostics you and Cindy have will come back negative or at least indicate that anatomically things are looking A-OK.  You're so fortunate to have Cindy's mother close by and able to drive! 

 

Boy, that surgery at L-3 with a local is astounding!!!  Sounds as though you suffered from many floaters that could have done much damage to your spine.  So glad you had such a great surgeon an outcome.  My L5-S1 surgery was a cage fusion with rods and screws.  First approach was from my lower left abdomen by a vascular surgeon who retracted vertebral vessels, while my spine doc worked on things, followed by the second approach in the lumbar spine.  This was a work injury in which I totally blew the disk at L5-S1, so on film there was no disk at that level at all, just bone on bone (hence lots of nerve pain and weakness in the left leg).  He placed a titanium cylinder with holes in it and filled with donor irradiated bone between L5 and S1, then performed a lamenotomy.

 

The reason I don't have a spine doc to go to immediately is that we re-located to another state when I retired 2 years ago.  In doing so, I left all of my great docs behind at Scripps Torrey Pines in La Jolla, CA.  Believe me, if I could afford to fly back and forth to my docs down there I would.  (Now live in Portland, OR, where DD, SIL and 2 year old granddaughter live.)

 

Though my Internist very recently re-located to be closer to home because she doesn't like driving on the highway in snow (can't blame her), she has squeezed me in on Monday afternoon.  Her RN called me this morning indicating my doc would order films on Monday and compare and contrast with films from a year ago and my MRI that I have from Scripps.  She'll then get the ball rolling.  Though she's now located out of town, I'm gladly following her to the new office, as she very proactive in the care of her patients, so know she won't sit on this.

 

John, thank you so much for your kind words, thoughts and prayers at this time.  I'll be surprised if I don't end up in surgery. Though not a surgery junky, my body is "ortho bad" in the worst way and I've had over 10 ortho surgeries, all very much needed.  If surgery is required, I hope it will be as non-invasive as possible.

 

(One of my ortho docs who performed the most comprehensive new patient exam I've ever had told me my joints are prone to extension beyond normal range, because I have, in layman's terms, "loose ligaments."  This is a hereditary condition in which ligaments, which connect bone-to-bone, stretch more than they are supposed to.  Over years of use and over-use, joints slowly experience low level trauma.  Add all of that up and eventually you can develop joint issues. That's me.  When my daughter was born with bilateral dysplasia of the hips, she had to be evalated by an ortho doc when she was 5 days old.  He asked my husband and I to hold our hands out in a straight line.  Then taking the right hand, place it under the fingers of the left hand and see how far up you can raise those fingers.  The doc demontrated.  He raised his fingers a little bit.  My husband raised his fingers a little bit.  I raised by left hand fingers to 90 degrees.  "OK," said the ortho doc, "you got the gene and I'm going to assume your daughter did, too."  What he meant was that I had inherited that hypermobility gene that makes my ligaments stretch more than they should.  He asked if I had ever had any fractures and I said "No."  Then he asked if I had had at least a moderate number of sprains and I asked him "How did you know that?"  LOL!  Well, it seems if you have "loose ligments"  you'll be more prone to sprains than fractures.  The outcome of this was that our daughter had to wear a "hip splint" for a year, 24/7.  This set the head of the developing femur into the acetabulum (really shallow socket in babies) so that by the age of one year both hip joints would be normal for her age.  That was a good call on his part, as everything grew as expected, but she cannot do any sport that is high impact.)

 

Give your family lots of pets and strokes for me.

 

May you be blessed with a wonderful weekend, my friend. ~Rebecca

Regular Contributor
Posts: 157
Registered: ‎08-26-2015

@LTT1 wrote:

@sfnative@hckynutjohn

You know, I will probably regret what I am going to write, but I am going to write it!

 

I told my INT MED md's nurse that I had seen 30 specialists in 30 years... (well, that is about right).

After I told her this, I thought...the ending to that sentence would have been "and never have I been cured!"

 

After thinking this, now I am of two minds:

1) Would you allow a car place to not fix your car after you have taken it in and paid for them to fix it?

 

2) My doctors HAVE kept me operational (mostly) -- so how much of what I suffer from could have been lots better?

 

I don't know... do you have these thoughts too?

 

Just thought I'd share...

 

 


@LTT1

 

Loves,

 

I just wrote a long response to John and need to get in the shower, since my meds finally kicked in, then over to pick up copies of x-rays (CD).

 

Please know I'll get back to you on this, because thoughts came racing to mind.  Be back at you.

 

~Rebecca

Regular Contributor
Posts: 157
Registered: ‎08-26-2015

@LTT1 wrote:

@sfnative@hckynutjohn

You know, I will probably regret what I am going to write, but I am going to write it!

 

I told my INT MED md's nurse that I had seen 30 specialists in 30 years... (well, that is about right).

After I told her this, I thought...the ending to that sentence would have been "and never have I been cured!"

 

After thinking this, now I am of two minds:

1) Would you allow a car place to not fix your car after you have taken it in and paid for them to fix it?

 

2) My doctors HAVE kept me operational (mostly) -- so how much of what I suffer from could have been lots better?

 

I don't know... do you have these thoughts too?

 

Just thought I'd share...

 

 


@LTT1

 

Hi Loves,

 

I hear and feel your angst.  For those of us with chronic disorders and/or diseases, referrals to and seeing specialists over protracted periods of time becomes a necessity.

 

Having said that, I need to tell you that I know too much to almost be fair in answering you.  I have my own personal experiences, yet quite a depth of professional experience.  This is not a boast, I just need to let you know where I'm coming from.

 

Can anyone be "cured" of any disorder or disease?  Give this a thought:  Many disorders are chronic in nature.  Once they have expressed themselves, they can be managed, but are difficult to cure.  Some diseases can be cured and and others not. 

 

One might ask why we aren't further along when it comes to cures.  Point:  Great strides in medicine are always made during times of war.  Remember: Though it's been 70 years since the end of WWII, just think of the advances in medicine during and since then!  It really does boggle the mind.  Consider our lot if WWII had not occurred.  Though not a proponent of war, this is an interesting clinical thought in my mind.

 

Your 30 years takes us back to 1985.  Things were just starting to percolate at that time.  The guessing game was still going on in many areas; good hospitals had computers; the big battle was procuring funding for HIV/AIDS Research and to have the result reach the patient ASAP - lots of interferon was used; a major city might have a hospital with one or two teams of microvascular surgeons; the art of heart transplants was improving by leaps and bounds; device companies started to think big-time of the future and we now have the fruits of that R&D; hip replacements were occurring with more frequency (but were ones that would need replacement sooner than the devices used today); GPs and Internists were still fountains of knowledge (they're generally more limited now - are they board certified???), worked long hours and were easily accessible; the referral to a specialist came only after all other avenues were exhausted; hospital stays were based on an entirely different system, though we were moving more toward get ya in and get ya out, more so than just a few years earlier; the field of Sports Medicine was exploding; Health and Wellness as part of patient care came to the front page; and, I could go on, but would be talking all sorts of technical stuff.

 

Shortly after I was married, I had to find a new Internist and was lucky enough to find a great one.  In conversation during one appointment, asked him what he would pursue if he returned to medical school.  Without skipping a beat, he said "Immunology - that's where the future of medicine is."  This was 1970.

 

Bottom Line:  (1) Medicine cannot be pushed.  There are priorities in research and in some cases, my reaction is "you've got to be kidding," when they're spending a gazillion bucks on_____ research when a more equitable distribution of funds would seem appropriate.  (2)  Though many paint the FDA as the bad guys, I've worked with them on the clinical side and, believe me, they have the patient as #1 priority.  Boy do I have stories!  However, there is a clear and present danger with current folks (get it?) and there's the rub.  If we could talk on the phone, I'd give you the skinny. (3)  Though I'm only aware of your terrible long-standing sinus issues, don't know what else ails you that's been long-standing.  However, you're in a large metropolitan area and if I were experiencing your angst, I'd look into a new doc/docs.  Though great strides have been made in many clinical fields, sometimes a fresh pair of eyes and new brain can do wonders.  Also, in looking for a new physician, always go on-line and check out where that person went to medical school, completed his/her residency and whether he/she did a fellowship and what the clinical emphasis was during that fellowship.

 

Now that I've gone on and on, I gotta say that I don't expect my physicians to "fix" me every time.  Medicine is a guessing game many times.  If you're a patient who presents with several disorders/diseases you're considered a "medically complex" patient and need to know that some physicians outright do not like to treat medically complex patients.

 

Now, have I confused you enough?  Get back at me with questions.

 

God Bless ~Rebecca

((((((HUGS))))))

 

Honored Contributor
Posts: 34,665
Registered: ‎03-09-2010

@sfnative  This is the Dr who did CURE my sinus problem... well, he pretty much cured it so I'm livable now..

Dr. Hung Dallas ENT

His credentials are excellent and he is an excellent, free-thinking doctor.

I had to find him myself, which is OK, but I was lucky.  The "good-ol-boy" network in our city would not dare to go against the current by referring to a Dallas MD with these outstanding credentials.

 

My chronic problems are accepted by the medical community as just that... chronic.

Oh, well... I don't think this excuses what is happening in the pharmaceutical and medical field.

A cure for cancer?  Other ideas for actually CURING it have been put forth, but they don't seem to ever result in a cure and I think that is because of the money aspect, which echoes what you are writing, if I am not mistaken.

 

My concern has always been to find out all I can so that DD and DGC can have a chance at optimal health.  So I want to thank you for your perspectives.

 

For instance, why are "natural" cures (through plant therapy of nutrition) not being researched with a cure in mind?  They need to do experimental trials and find out more.

 

DD and DGC are having a life full of sinus infections/ear infections...

 

Working in the medical field of immunology for me actually dated back to the 70's.  I did my research paper on Lupus.  I learned how to culture cells and do DNA studies... which were limited then.

 

A nutrition book written by two nutritionist doctors from my alma mater (Indiana University) has so much information on managing chronic conditions through nutrition ... and so much of what they printed is now considered common knowledge.  I don't get it.

~Have a Kind Heart, Fierce Mind, Brave Spirit~