Community Chat

[LilacTree]

---

@mistriTsquirrel wrote:

---

@LilacTree wrote:

---

@BohemianGal wrote:

@LilacTree....

Yes, I see you "get it", and thank you for your kind words of understandng and support.

Gald to hear your daugher is seeing naturopaths...they are the only ones that understand this type of disease.

And, FYI, I went the "psychiatrist" route in my late 20's and early 30's when the panic and anxiety became unbearable, and it was the worst thing I ever did. I thought I was in good hands, as he was the head of Psychiatry at Yale University Hospital, and rated top in his field. At that time he diagnosed me with depression as well, and treated me for both diagnosis. Your daugher is "wise" to pass on this route. It set me up for years of trial and error on anti-depresseants, and other addictive presciption drugs which were nothing more then "band-aids"....not to mention the long term side effects I suffered from their use, and still deal with today..Like you said, who wouldn't be depressed!!!!  I wish I had a dollar for every time I ended up in the ER for a drug interaction.  On one occassion I barely made it to call 911, I collapsed before they got to me and they had to break down the door.  I was on the verge of entering a coma when by the Grace of God an intern in the ER became so concerned that he started to look up all my meds in a large "Medical Book", even though the doctor on my case said "my meds were fine"...  He immediately realized that my phychiatrist had given me two drugs that didn't mix, as one "enhanced" the sedative effects of another (it was Buspar). That intern saved my life!!!. I eventually weaned offf all anti-depressants over the years (only got off of Prozac 3 years ago)..., but unfortunately, I am still on one med that i can't seem to wean off ( klonopin), as each time I try the DT's are so severe I start to seize, and I cannot even "close my eyes" as I jump out of my skin every 2 minutes...as it is, with the med, I only sleep  3 hours Ieach night..So...I still have hopes that someday I will be free of it...but right now I'm too weak and fragile to risk it. Believe me, I could write a book about what I've experienced over my lifetime.  Maybe someday if it's the will of G....D, I will be able to share my story and help others.  

I'm not sure if you are aware of this, but most auto-immune diseases, including Lyme are linked to the Epstein Barr Virus as being at the "root" cause...it just manifests in various ways, etc. 

My suggestion would be for your daughter to try a gluten free/dairy free diet plan if she can tolerate it.  Also, cut out (or cut back) on perservatives,processed foods, and sugar if she hasn't already.  I found a gluten free diet helped tremendously with the level of pain in my joints and muscles (which I wasn't expecting).....  

Well,  Lilac Tree.....again, best to you and your daughter.

 So glad your grandchildren are doing well and settled.  Tell your daughter to remain HOPEFUL that she will recover...I have a feeling she will.  

  And, you take care of yourself my "dear one"... Bless you for standing by "your girl" in her time of need...

You will be in my thoughts and prayers...

BohemianGal

---

@BohemianGal

Thank you for your comments on anti-depressants, they are the worst. 

---

@LilacTree

Honestly, Ford, I don't think I'd be here today if it weren't for anti-depressants. 

---

@mistriTsquirrel

Mistri, I know they help some people.  Our family does not do well on them.  However, if they have worked so well for you, then they become a godsend.

Please forgive me if I have upset you.  That's the last thing in the world I would ever want to do.  I am so sorry.

[BohemianGal]

---

@LilacTree wrote:

---

@BohemianGal wrote:

@LilacTree....

Yes, I see you "get it", and thank you for your kind words of understandng and support.

Gald to hear your daugher is seeing naturopaths...they are the only ones that understand this type of disease.

And, FYI, I went the "psychiatrist" route in my late 20's and early 30's when the panic and anxiety became unbearable, and it was the worst thing I ever did. I thought I was in good hands, as he was the head of Psychiatry at Yale University Hospital, and rated top in his field. At that time he diagnosed me with depression as well, and treated me for both diagnosis. Your daugher is "wise" to pass on this route. It set me up for years of trial and error on anti-depresseants, and other addictive presciption drugs which were nothing more then "band-aids"....not to mention the long term side effects I suffered from their use, and still deal with today..Like you said, who wouldn't be depressed!!!!  I wish I had a dollar for every time I ended up in the ER for a drug interaction.  On one occassion I barely made it to call 911, I collapsed before they got to me and they had to break down the door.  I was on the verge of entering a coma when by the Grace of God an intern in the ER became so concerned that he started to look up all my meds in a large "Medical Book", even though the doctor on my case said "my meds were fine"...  He immediately realized that my phychiatrist had given me two drugs that didn't mix, as one "enhanced" the sedative effects of another (it was Buspar). That intern saved my life!!!. I eventually weaned offf all anti-depressants over the years (only got off of Prozac 3 years ago)..., but unfortunately, I am still on one med that i can't seem to wean off ( klonopin), as each time I try the DT's are so severe I start to seize, and I cannot even "close my eyes" as I jump out of my skin every 2 minutes...as it is, with the med, I only sleep  3 hours Ieach night..So...I still have hopes that someday I will be free of it...but right now I'm too weak and fragile to risk it. Believe me, I could write a book about what I've experienced over my lifetime.  Maybe someday if it's the will of G....D, I will be able to share my story and help others.  

I'm not sure if you are aware of this, but most auto-immune diseases, including Lyme are linked to the Epstein Barr Virus as being at the "root" cause...it just manifests in various ways, etc. 

My suggestion would be for your daughter to try a gluten free/dairy free diet plan if she can tolerate it.  Also, cut out (or cut back) on perservatives,processed foods, and sugar if she hasn't already.  I found a gluten free diet helped tremendously with the level of pain in my joints and muscles (which I wasn't expecting).....  

Well,  Lilac Tree.....again, best to you and your daughter.

 So glad your grandchildren are doing well and settled.  Tell your daughter to remain HOPEFUL that she will recover...I have a feeling she will.  

  And, you take care of yourself my "dear one"... Bless you for standing by "your girl" in her time of need...

You will be in my thoughts and prayers...

BohemianGal

---

@BohemianGal

Thank you for your comments on anti-depressants, they are the worst.  None of my girls take them and neither do I.  I'm so sorry for what you went through, doctors hand out those drugs like candy.

My daughter takes some supplements.  I don't know which ones, but they come in the mail.  She is also on a very special diet, like me, eats no dairy at all.  I have a special diet as well, so we never eat together.  Sometimes I long for a big slice of pizza though, I have to admit it!!

We are also very aware of the EBV connection and all of us had it when we were young.  I had it combined with rheumatic fever and scarlet fever as a 14-year-old and often wonder if that's what put me on this path.  I wound up hospitalized for many weeks. I was in a hospital that housed mostly TB patients and was allowed no visitors.  My parents were allowed to come once a week, but had to sit in the doorway, they could not come near me.

I did recuperate and had some healthy years as a young woman and mother.  Hashimoto's started at menopause, and as I look back, I always had other odd symptoms, but nothing that stopped me from working 40 years and raising my girls as a single (divorced) working mother.  It was in my 60s when the AI diseases started to rear their ugly heads, starting with RA.

For some reason I sleep well unless I wake up during the night and then I can't get back to sleep.  I don't know how you manage to get through the day on just three hours!

The PT came yesterday and she demonstrated the six exercises she wants me to do every day.  Next week she will be here on Tuesday and Friday, and thereafter twice a week.  It hurts!  However, I will do them every afternoon so I can (hopefully) get normalized by next year.

I hope you will visit here and let us know how you are doing.  Before the board moderators came on, if one mentioned one's health issues, there was a lot of nastiness.  Fortunately, the mods take care of that these days.

Be well.  I will be thinking of you. 

---

Hi @LilacTree....

Like yourself,  DO I MISS PIZZA!!! To make matters worse, I'm a "foodie", and  I'm Italian!!  Also, here in CT (I live in a suburb just 20 minutes outside of New Haven) we have the BEST authentic Italian Pizza which is my favortie food!!!  Been off dairy for at least 5 years. It's torture to watch my husband (or son) devour one of those "beauties"..it. I have to leave the room as the smell of it is more then I can bare.

And, as for the "Epstein Barr Virus"...I had it when I was only 4 years old (diagnosed with infectious mono)...took me a year to recover...nurses coming to the house, etc. As you know, being a retro-virus, once it's been active, it can re-occur at anytime in your life, which mine did at age 21...which I believe was brought on as the result of prolonged stress ( estranged from my family from age 17-20). 

It sounds like you've had your share of health problems from a young age as well.  I often wonder why so many of us have to suffer as we do, and others are healthy, even though they "abuse" their bodies.  I guess it "chance, genetics, etc.

Well....I will try to check in when I can....

Best of Luck with your PT.....be gentle with yourself...take it slow and steady"....

Fondly, BohemianGal

[BohemianGal]

@mistriTsquirrel...

I read your post to @LilacTree...concrenig your success with anti depressants. When we spoke of them being a "nighmare" we were speaking of using them to treat illnesses that are not steming for mental disorders.

I understand they are widely used and prescribed to many who astruggle with overwhelming  "cliniical depression" , are suicidal, or suffer with various types of mental illness..(such as manic depression, bi-polar disoreder, etc. etc.)  In these case these medications are effective in managing the illness so they can enjoy quality of life. ('ve seen them work miracles for some freinds/  family members who have mental illness).   In those cases, they are  "worth" the side effects since the "good outweighs the bad"....

However, in the case of "circumstancial depressoin" which is caused by other factors  that are "physical" and mental illness/disorders are not at the "core", these drugs can cause more further problems and many times do more harm then good.

Given that , I am so happy to hear they were helpful to you proved to be "positive" treatment....

All the Best To You...

Warm Regards...BohemianGal

[BohemianGal]

@mistriTsquirrel and @LilacTree....

Please excuse all the mistakes/ spelling errors in my last post...(it's embarrasing)...lol...I wrote it and posted without proof-reading, and I don't know how to use spellcheck here....But, I'm sure you got my point....

BoehmianGal

[Moonchilde]

---

@BohemianGal wrote:

@mistriTsquirrel...

I understand they are widely used and prescribed to many who astruggle with overwhelming  "cliniical depression." In these case these medications are effective in managing the illness so they can enjoy quality of life. ('ve seen them work miracles for some freinds/  family members who have mental illness).   In those cases, they are  "worth" the side effects since the "good outweighs the bad"....

However, in the case of "circumstancial depressoin" which is caused by other factors  that are "physical" and mental illness/disorders are not at the "core", these drugs can cause more further problems and many times do more harm then good.

---

Very true, @BohemianGal.  I have never had clinical depression, but three different times in my life I was prescribed antidepressants for situational depression (catastrophic events). The first two times, the negative physical side effects were much worse than the depression I felt - especially while continuing to work a high pressure job. One physical side effect might have become permanent if I'd continued taking the drug (documented) and it would have rendered me unemployable at my profession. No thanks. The third time, the medication didn't really do anything at "regular" doses, i.e. I didn't feel any less depressed, but with the antidepressant medication history I had, I wasn't about to let them up the dose.

I also feel that many (maybe most) PMDs prescribe antidepressants for anxiety. That last time I told my doctor I wasn't depressed, I was just stressed and anxious, and asked for an anti-anxiety medication.

The govt (in general, not any particular regime) has regulated these medications so much that some doctors *will not* prescribe them without making the patient feel/treating them like an addictive drug-seeker. So they happily prescribe a "non-addictive" drug that has nasty side effects. Brilliant 😑

Those with clinical depression have chemical imbalances that antidepressants work on. If you don't have a chemical imbalance they will give you one. Not a nice feeling.

BTW - once I retired, no more stress or need for that type of medication 👹

[goldensrbest]

I would have to know more about what actually happened, some times people get pi**ed off.

[Moonchilde]

---

@goldensrbest wrote:

I would have to know more about what actually happened, some times people get pi**ed off.

---

This thread is 10 pages long. You could - I don't know - try reading it? That would very likely tell you more about what actually happened.

[occasionalrain]

We are told that silence  is golden. We are told that we should remain silent if we have nothing nice to say. Now we are accused of being passive agressive, abusive by the amateur therapists. Is it any wonder people prefer to commune with their smart phones?

[Moonchilde]

---

@occasionalrain wrote:

We are told that silence  is golden. We are told that we should remain silent if we have nothing nice to say. Now we are accused of being passive agressive, abusive by the amateur therapists. Is it any wonder people prefer to commune with their smart phones?

---

I think "we" are supposed to be able to determine the appropriateness of our actions and/or inactions based on circumstances and norms. That's what life is - navigating it using our own experiences and the knowlege we've gained. Some people will never gain very much understanding of how the world works; others know but are essentially self-centered to the point where they don't care - it needs to be All About Them.

"Concrete" thinking and behavior IS often passive-aggressive when carried to extremes.  Not saying something you may regret during an argument, for a finite period of time, is not the same as "punishing" someone by vowing to never speak a word to them for days, weeks or months. It is *not* "giving them what they asked for", it's childish passive-aggressive behavior.

A wiser choice is to distance yourself from the drama and trauma and/or the people who (in your opinion) create it. Adults are unlikely to change the behavior of other adults. You can either try (usually futilely) or just back off/back away and move on.