Beauty

[sfnative]

Hello Beauties,

I'm asking for experiences from those who suffer from psoraisis or know someone who does. I'm not asking for medical advice, so if you're inclinced to get on my back about this, go to another forum, as I'm fairly serious about this psoraisis.

Bottom line: My husband waited 4 years with what he considered to be excema until he sought the advice of a physician. Turns out he suffers from psoraisis, an auto-immune disorder.

He is presently on these two meds (rx): Clobetasol ointment; and new today, Psoraisasin, a pill. The OTC products he uses are salicylic acid, vaseline and shea butter. He tried coal tar products, but didn't like the ordor or stains.

What I'd appreciate are your experiences with this very challenging disorder. I'd especially be interested to know if any of you were tested for food intolerances and have since modified your food plan. If so, has this positively affected your psoraisis?

Thank you so much in advance!

[Raindrop7]

I suffer from psoriasis. I had it 3 years ago (first time) and looking back I went to a bad dermatologist who only wanted to treat me with biologic drugs. I ended up taking Stelara shots and they almost killed me! They stopped my red blood cell production and I ended up extremely anemic & weak, got blood clots, thyroid problems, neuropathy. I was in the hospital & nursing home for Physical therapy for 2 1/2 months. I will never ever again use a biologic.

It came back about a year ago and I'm not going to doctors to treat it. I know they will want me to take biologics since I have it over 50% of my body. I'm putting coconut oil on it but it's just making me more comfortable but not making it go away. Prescription creams don't work for me, light therapy doesn't work either. I guess I'll have to address this soon. I didn't know there was a pill. I'll look into that.

It's sad they just treat the symptoms and don't address why it's happening. Diet and food was never mentioned. I got every blood test in the hospital known to mankind and nothing out of the ordinary was found. Although this time I go I will be seeing a better dermatologist. I'm frustrated and angry that my health got so bad I am now disabled.

I hope your husband and I can find more answers and better treatments. I'll certainly let you know if I do.

[bluehydrangea]

I apply hexane free castor oil to my patches and it definitely helps. A physician recently told me that ""oils"" will help control it but that it will never go away.

[Bella2]

I have a family member who has had great success by removing gluten from her diet. When she follows a gluten free diet, her plaques disappear and when she eats too much gluten, they come back. She has also added probiotics. I hope this will help your husband as well.

[cmoose]

I have had psoraisismost of my adult life, sometimes worse that others. I have stopped using anything by RX. Nothing ever really seemed to help. Mostly I just keep it moist (coconut oil) and try to ignore it. Easier in the winter than the summer for sure.

I also have a family member who has severe psoraisis and has done amazingly well on a gluten free diet. He was almost 100% clear. I haven't tried that myself, but if you husband is really suffering it's worth a try. All the RX meds seem to have horrible long term side effects. At least gluten free is a healthy alternative. Today there are so many more gluten free options it would be easy to give it a try. I think you have to give it some time, like 6-8 weeks to really see if it's working. Good luck.

[Jacie]

I've had psoriasis for 19 years. I do use Clobetasol with much success and Hydrocortisone Valerate. However, I have found that if I am meticulous about staying moisturized I do far better on a daily basis. I have cut down on dietary fats too, that seemed to help as well (helped my waistline too!). In the winter I use Baby Oil Gel, a few drops in my hands on damp skin was amazing. No more dry flakes on my legs from shaving either! The other plus for me is a sun vacation in the winter! The rays helped my patches a lot! Good luck, it is a frustrating disease. Just keep trying new things!!!

[ccassaday]

Where the heck did my posts go

[sfnative]

Raindrop, bluehydrangea, Bella2, cmoose, Jacie and ccassaday,

Having just returned home from physical therapy, I was so very happy to see your responses!!!

I posted this originally on the Health and Wellness forum where ccassaday was kind enough to provide information and experience. She also suggested that I post this subject here on the Beauty Board, so I'm very thankful for her advice in that regard.

Please know that my husband is reading everything that you've provided (cut and pasted onto a Word document). This kind of surprises me, given his personality. However, his case is newly diagnosed as severe and it's driving him up the wall. For once, and I mean once, he is open to advice and opinion!!!

Thank you wonderful ladies. I can't tell you how much I appreciate the time you devoted to writing down your experiences.

~Rebecca (I love Bed Head products.)

[gloAIMY]

I do not have experience but go to atopalm.com & they have items for items for his condition. I use atoplam for another

[Raindrop7]

On 9/18/2014 sfnative said:

Raindrop, bluehydrangea, Bella2, cmoose, Jacie and ccassaday,

Having just returned home from physical therapy, I was so very happy to see your responses!!!

I posted this originally on the Health and Wellness forum where ccassaday was kind enough to provide information and experience. She also suggested that I post this subject here on the Beauty Board, so I'm very thankful for her advice in that regard.

Please know that my husband is reading everything that you've provided (cut and pasted onto a Word document). This kind of surprises me, given his personality. However, his case is newly diagnosed as severe and it's driving him up the wall. For once, and I mean once, he is open to advice and opinion!!!

Thank you wonderful ladies. I can't tell you how much I appreciate the time you devoted to writing down your experiences.

~Rebecca (I love Bed Head products.)

Thank you for posting this sfnative

It's a good thing for all of us to compare notes and get advice. I learn more here than from doctors. I think I will look into a gluten free diet. Seems to be a key component for people who suffer from this.