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11-19-2017 04:02 PM
Does anyone know anything about GIST cancer? my husband was just recently diagnosed. Went for a pet scan and we get results Tuesday. No symptoms what so ever till tumor ruptured. mic rate of 15 /50 . I have been with him for 40 years since I was 18. Love him so much. also you may remember me posting about my nephew Eric age 35 and his mother. Chemo has quit working, and now they are doing radiation on his brain soon at Moffitt cancer center in Florida for 14 days. His mom also has 2 spots on her lung (after cancer surgey almost 5 years ago) but too small biopsy. I am overwelmed. But so little info about Gist and lot of info on the internet seems outdated. They are looking with the pet to see if there are more tumors, especially his liver. any info appreciated thankyou in advance. Wishing you all Happy Thanksgiving
11-19-2017 04:08 PM
So sorry, {{{{{{{{ @brancare }}}}}}}} sending lots of hugs and prayers your way.
I know nothing about this type of cancer, but I wanted you to know someone is praying for you and your DH. I understand your fear.
Everything will be ok and please accept any help the dr or anyone else, may offer you to cope with all this. I did not and it was a big mistake on my part.
More {{{{{hugs}}}}}} to you
11-19-2017 04:14 PM
I do not know about that cancer but I do know about being scared. I’ve survived two cancers and my husband has survived one. However, now he has Alzheimer’s and I am afraid about what lies ahead. All I can say is take one day at a time, corny but true. Enjoy those rare moments of joy. That’s all we have.
11-19-2017 04:14 PM
@brancare I have no info on that, but I pray that things go well for you and your husband. Take it one day at a time. I believe people live longer when they are as active as possible and have other things to think about than their illnesses. Rely on your doctors.
11-19-2017 04:32 PM
@brancare Like the others, I don't know anything about your husband's cancer but do know about being scared and didn't want you to feel alone. Please take the advice of your doctors and take the offers of help offered through different services and friends and family. You will need and want the help and support. My siblings and I did when our parents were ill and so glad we did. You and your DH will be in my prayers.
11-19-2017 05:21 PM
@brancare My friends GD has Gist Cancer. She just had surgery at Moffitt and is doing well. She is around 19 yrs old. She has a specialist in Miami that sent her to Moffitt who specializes in Gist cancer. She had a tumor removed about 10 yrs ago also. From what I understand, it’s very manageable.
11-19-2017 05:27 PM
Although I know nothing about his diagnosis, I totally understand your fear. I'll keep your DH in my prayers.
11-19-2017 06:04 PM - edited 11-19-2017 06:09 PM
Your probable best source of information about a health condition such as GIST would be the National Institutes of Health and the agency's website.
Check this link to learn more about the specific condition you are concerned about.
https://ghr.nlm.nih.gov/condition/gastrointestinal-stromal-tumor
11-19-2017 08:08 PM
Dawn, we live in Mi. My nephew lives in Florida. Thank you so much for your replies. It does help to read knowledgable and kind words
11-19-2017 11:04 PM
@brancareI offer you thoughts of peace and comfort.
Hoping you will be able to enjoy Thanksgiving with your family.
For those of us that personally know fear, we are with you all.
Write down all the things that comfort you and make you smile. Your 40 years are so very special and are filled with so many wonderful things. Here's to 40 more.
Many blessings and prayers for you and your family.
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