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Honored Contributor
Posts: 12,969
Registered: ‎03-09-2010

Re: Xarelto-ouch, ouch, ouch


@hckynutjohn wrote:

@gidgetgh wrote:


 

@Cwoldie - I take Xarelto because I had blood clots.  They've been tapering me down and I'm hoping that I'll fully come off of it in late February, but I am not holding my breath on that.

 

 

@gidgetgh 

 

Not sure if you know my history with blood clots, but been through it, started in 2002, with 1 of the most dangerous types. Most recent was because of a blood clot in my left arm, which my doctors believe, was caused by an IV placement during my Heart Catheterization procedure.

 

Prescribed Eliquis for 8 weeks. Fortunately my Hematologist discovered it and his offices Pharmacist gave me enough samples to cover those 8 weeks.

 

Since you said "they are tapering me down and hoping to come off it in late February", just curious as to the type/location, and possible cause, if it is known.

 

I understand your privacy if you don't wish to reply.

 

hckynut 🇺🇸

 

 


 


@hckynutjohn - I fell in the front yard. It had rained and I stepped from the driveway to the yard and the ground was wet and the dirt gave way a little and down I went.  Blood clot was in my left leg and a tiny, almost microscopic one in my lungs.  ER doctor couldn't see the one in my lungs.  The radiologist had to point it out to him.


Why is it, when I have a 50/50 guess at something, I'm always 100% wrong?
Esteemed Contributor
Posts: 6,528
Registered: ‎03-10-2010

Re: Xarelto-ouch, ouch, ouch

@gidgetgh - When I was put on Eliquiss the cost was $800/month - I can only hope I don't have to use it again

Esteemed Contributor
Posts: 5,291
Registered: ‎06-15-2015

Re: Xarelto-ouch, ouch, ouch

@gidgetgh 

 

Thank you for your reply. My first round was also with PE. Back in 2002 a VQ Scan was used to show multiple clots in my lungs. In the hospital for 8 days on IV Heparin Drip. Then on Coumadin/Warfarin.

 

A 2nd but about 9 weeks later. In hospital for 9 days this time, same IV Drip. Was on Coumadin/Warfarin for 9 years after.

 

My friend, the Spinal Surgeon, suggested I have a Greenfield Vena Cava Filter placed in my groin to help protect from future life threatening events with Pulmonary Embolism. This was also to prepare me for a back surgery he did 14 days later for my ruptured L-3 disc.

 

Got to know my Nuclear Medicine Tech personally over the years. Ended up having multiple Nuclear tests, 1 of which was a Full Body Test. That one took hours watching it circulate throughout my body.

 

Hope your whatever procedure they use to detect your clot, shows clear towards the end of next month.

 

hckynut 🇺🇸

hckynut(john)
Honored Contributor
Posts: 12,969
Registered: ‎03-09-2010

Re: Xarelto-ouch, ouch, ouch


@hckynutjohn wrote:

@gidgetgh 

 

Thank you for your reply. My first round was also with PE. Back in 2002 a VQ Scan was used to show multiple clots in my lungs. In the hospital for 8 days on IV Heparin Drip. Then on Coumadin/Warfarin.

 

A 2nd but about 9 weeks later. In hospital for 9 days this time, same IV Drip. Was on Coumadin/Warfarin for 9 years after.

 

My friend, the Spinal Surgeon, suggested I have a Greenfield Vena Cava Filter placed in my groin to help protect from future life threatening events with Pulmonary Embolism. This was also to prepare me for a back surgery he did 14 days later for my ruptured L-3 disc.

 

Got to know my Nuclear Medicine Tech personally over the years. Ended up having multiple Nuclear tests, 1 of which was a Full Body Test. That one took hours watching it circulate throughout my body.

 

Hope your whatever procedure they use to detect your clot, shows clear towards the end of next month.

 

hckynut 🇺🇸



@hckynutjohn - the vascular doctor released me last February. The blood doctor has been a little more cautious.  At this point, they just do the D-Dimer blood test and they have been tapering me down in the Xarelto.  genetic testing all came back normal.  

I know you've had your issues with clots and using blood thinners through the years.  I wish you well,  


Why is it, when I have a 50/50 guess at something, I'm always 100% wrong?
Trusted Contributor
Posts: 1,781
Registered: ‎08-04-2013

Re: Xarelto-ouch, ouch, ouch

@gidgetgh  It has really gotten to be ridiculous with the price of co-pays on medicine we really need and there is no generic available.

 

I take Humira for my Rheumatiod Arthritis and of course my Medicare co-pay went up this year to 30% of the cost for all Tier 5 drugs. I estimate my January amount with be around $2250.00. Of course February and on will be less but still.

At least I go from Stage 1 to Stage 5 in cost really quick.

 

I do plan on this type increase each year but it still stinks.

Respected Contributor
Posts: 2,634
Registered: ‎03-09-2010

Re: Xarelto-ouch, ouch, ouch

I’ve been taking xarelto for several years. When my doctor first prescribed it they gave me an information package from Jansen (drug manufacturer) about getting on a program with them to among other things get a reduced cost. Anyway even though I have Medicare plus my supplement I qualified. I use to have to show the card I received from Jansen at CVS when I picked up prescription but about a year ago they stopped asking. Just thought I’d share this information as an option you might want to contact Jansen to see if you might qualify for a similar program. With my supplemental insurance and Jansen program I pay $10 out of pocket for 90 day supply. Another option is looking into GoodRX (think that is name), I know people who have saved $ on their prescriptions using GoodRX but not don’t know about xarelto. Before getting on this program I was paying $$$ out of pocket.
Regular Contributor
Posts: 154
Registered: ‎11-05-2017

Re: Xarelto-ouch, ouch, ouch

The price they charge for certain meds is pure robbery and greed. They'll say...well it costs so much for research, blah, blah, blah. You've got to wonder what the CEOS, and other people in their corporations are making. Probably millions. I'm sorry you had to pay so much. There's no excuse.

 

Honored Contributor
Posts: 23,835
Registered: ‎03-10-2010

Re: Xarelto-ouch, ouch, ouch


@Shelbelle wrote:

I just laid out 7,000 for a dental implant, insurance paid 1500, my bill in total was 8500. Hoping to get a tax break on it


@Shelbelle   I think dental implant prices are bank robbery. Just ridiculous

Esteemed Contributor
Posts: 5,291
Registered: ‎06-15-2015

Re: Xarelto-ouch, ouch, ouch


@SeaMaiden wrote:

@Shelbelle wrote:

I just laid out 7,000 for a dental implant, insurance paid 1500, my bill in total was 8500. Hoping to get a tax break on it


@Shelbelle   I think dental implant prices are bank robbery. Just ridiculous

 

 

 

@SeaMaiden @Shelbelle

 

How do the costs break down for these procedures. Kinda like car repair: 

Labor versus Parts?

 

hckynut 🇺🇸

 


 

hckynut(john)
Honored Contributor
Posts: 12,507
Registered: ‎03-09-2010

Re: Xarelto-ouch, ouch, ouch

@Cwoldie   My husband is on Eloquis...it is expensive as well.  He asked his doctor about the Watchman procedure, but he is not a candidate.  I hope your husband qualifies..