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02-12-2019 02:49 PM - edited 02-12-2019 02:52 PM
Hi Everyone,
I was asked under a different thread to contribute information to these two diseases/disorders, which I could have done, but recalled a rather buff thread over a year or two ago in which a number of you who suffer shared some wonderful information on your experiences.
LTT1 is in the process of being diagnosed, with many labs, etc., being run at this time. I've indicated that I'd be starting a new thread for her, as I recall how wonderful the last thread was. And, yes, though I know I could try and search for the old thread, I chose not to, because clinically things are moving fast these days and I wanted to make sure that those of you with input would include your most recent experiences.
Thanks so much for helping LTT1 better understand what's ahead for her. I questioned the diagnosis of her suffering from both, as they both result in hair loss, etc., so am wondering whether her derm is looking for a differential diagnosis.
In any case, thanks again for any input you can provide.
~Rebecca
02-12-2019 03:30 PM
Thank you so much for starting a thread!
You went over and above the call of duty!
02-12-2019 03:41 PM
@LTT1 wrote:
Thank you so much for starting a thread!
You went over and above the call of duty!
You're so very welcome! And, thanks for letting me know about your change of name. Never occurred to me.
My word, you do not need to add to your list of diseases/disorders. If I recall, you're already suffering from another or several auto-immune diseases, correct?
Thoughts and prayers coming your way.
XXX ~ Rebecca
02-12-2019 03:48 PM
Thank you again!
I have only a bunch of “little” things... nothing major diagnosed until now.💗
02-12-2019 06:07 PM
I'm glad to know you were 'lovestoteach' too, I always enjoy your threads/posts and I'll know now to look for your new name!
02-12-2019 06:18 PM
Thank you!
I hope my doing this, changing it, doesn’t create confusion!
02-16-2019 05:42 PM
@KingstonsMom @LTT1 Hi, at Loves to Teach, glad to know you just have a new nickname and hadn't gone away.
02-18-2019 04:43 PM
OP Here,
Still looking for input from those afflicted with either of these diseases, as help for LTT1. Please do post your experiences. About 1.5-1 years ago, there was a great deal of discussion regarding L. Planopilarus, so am hoping that some of you will return and share. Thanks!
02-18-2019 04:56 PM
Thank you very much for your help in this!
My bloodwork is finished and the derm (who I have much confidence in) saw low iron levels and rx’d Fergone (OTC) 27mg.
Signing up for FB groups and Google searches have revealed the rarity of of Lichen diseases.
The people who do get this seem to find that their doctors are clueless, too!
I feel fortunate that with all of my symptoms, my derm seemed fairly certain of what he was seeing.
Iron deficiency leads to headaches✅ fatigue✅ dizzyness✅ (vertigo beginning November 2017) pale skin✅ loss of hair (everywhere) ✅
The crazy date all of this got way worse began with a flu/pneumonia shot. But low iron could have played a role in that too!
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