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Valued Contributor
Posts: 618
Registered: ‎12-06-2015

@Tinkrbl44 wrote:

@LilacTree wrote:

Wondering if anyone here is on prednisone . . . and what for, what amount, how long, and what side effects, if any.  Just looking for personal stories, I have already done significant research.  Thanks to all who answer.

 

 

 


@LilacTree

 

SO nice to see you again!   Are you back, or just stopping in?

 

I take several things for RA, including Enbrel which is a biologic.  Of everything I take, though, the prednisone seems to be the most effective at dealing with inflammation.  I was at 5mg and now am at 3mg daily.   A while back I had a horrific rash that manifested almost overnight, and was on 20mg for a week to clear it up.  I can't even begin to tell you how much better I felt all over!   

 

Unfortunately, my appetite goes up on this drug, so I have to be VERY careful diet-wise.

 

My doc monitors carefully for side effects, but if it had none, I would consider it a "wonder drug".


@Tinkrbl44, I agree with you! I have an autoimmune disease and take Humira injections, methotrexate and pain meds. I've been on Prednisone for the last 6 weeks from a very bad flare. When I try to taper off I can't move and have great pain, to me it is a wonder drug. I'm extremely fortunate that I have no side effects from it.

Esteemed Contributor
Posts: 7,551
Registered: ‎03-05-2011

@LilacTree wrote:

Wondering if anyone here is on prednisone . . . and what for, what amount, how long, and what side effects, if any.  Just looking for personal stories, I have already done significant research.  Thanks to all who answer.

 

 

 


@LilacTree  I took it a few years ago for a rash I could not get rid of.  I first did a 45 days.  Then it came back 2 months later and I took it for 2 weeks.  It again returned and they gave me only a week.   I used topical after that.   My side effects were weight gain and so much energy I could not sleep at all.   My hubby took it for his COPD for a yr before he passed.  I don't think he had side effects from it because he was so sick , it was hard to tell.

Honored Contributor
Posts: 47,133
Registered: ‎08-23-2010

@Sueliz

 

Not to de-rail the thread, but I have to ask .... how long have you been taking methotrexate, and what does it do for you?  Is it for inflammation, or something else?  Do you find it effective?

Valued Contributor
Posts: 618
Registered: ‎12-06-2015

@Tinkrbl44 wrote:

@Sueliz

 

Not to de-rail the thread, but I have to ask .... how long have you been taking methotrexate, and what does it do for you?  Is it for inflammation, or something else?  Do you find it effective?


@Tinkrbl44, I've been on it since 2004 when I was diagnosed with Ankylosing Spondylitis an autoimmune arthritis. In arthritis it's used to reduce inflammation and damage to joints. There's actually a lot of debate between Rheumatologists as to whether it helps or not. My doc firmly believes in it, I take it once a week when I inject the Humira.  I feel the Humira is no longer as effective as it once was since I've had a lot of pain and stiffness. Because I also have Uveitis which affects the eyes, my Ophthalmologist insists that I remain on it as well as the methotrexate. Initially metho was and is still used to treat various cancers and is classified as an immunosuppressive and chemotherapy drug. However, in treating arthritis the dosage and side effects are much lower than when used to treat cancer. I hope that helps and I'm happy to answer any other questions you may have!  Heart