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Super Contributor
Posts: 317
Registered: ‎07-14-2019

Cushings disease runs in my family, mom sister and I all have/had it.  I went from 139 to over 300 pounds in just a couple years time.  

Mom passed at 64, sister passed at 68 two years ago,  My sister had sleeve surgery done which killed her in 2022, five years after her sugery as her sleeve opened and she literally bled internally and went into cardiac arrest.

I decided after over a year to try ozempic after three of my doctors kept recommending it.  I spent many months researching before I finally pulled the trigger and said yes.  I started March 22 and have as of today lost 40lbs with no side effects.  I have not gone up in dose, still on the original starting dose as they are now finding that using the diabetic criteria of updosing is not good for those people using for weightloss.  

I for one am very grateful for the opportunity to take this medication.  Cushings is not a fun disease and it is also helping with my five autoimmune diseases one of which is vitiligo.  My white patches are no longer spreading and my hair is starting to grow in dark again (most of my hair is pure white).

 

Respected Contributor
Posts: 3,094
Registered: ‎03-16-2010

@FatCatinCT Good for you! I have been on Mounjaro 23 months now and lost 85 pounds. I am diabetic. 

I am sorry for the loss of your sister. As a RN, I have seen many horrors and have lost 2 friends as the result of gartric bypass surgery. I would never consider it because, I have seen to much. 

I get some nausea from the Monjauro but nothing that makes my life horrible. 

A long time ago, the doctors thought that I may have Cushings and I was afraid. I was ultimately diagnosed with a pituitary condition and not Cushings. 

Keep following-up with your doctor and you should continue to lose weight. 

Super Contributor
Posts: 317
Registered: ‎07-14-2019

@conlt, thank you!

Congrats to you on your weight loss, that's amazing!   

I considered sleeve surgery after my sister had it done and had lost weight that is near impossible to do with Cushings but so glad I followed my gut and dropped out of the program.  Too drastic in my opinion.  

 

Honored Contributor
Posts: 16,395
Registered: ‎09-01-2010

Late July was the one year anniversary of my cousins death from a ruptured bowel, which per her family, is thought to have been related to the weight loss injection medication she was taking.  

 

I continue to have no interest in these medications.

Honored Contributor
Posts: 20,783
Registered: ‎10-04-2010

I mentioned this somewhere else on here awhile back.  Readers Digest had a good article on these diet plans, I wouldn't trust them.

Honored Contributor
Posts: 13,524
Registered: ‎03-11-2010

Re: Ozempic horror story

[ Edited ]

@LTT1 :To the OP: She had no health insurance?

Honored Contributor
Posts: 36,646
Registered: ‎03-09-2010

@Group 5 minus 1 

 

I'm unaware of my stylist's health insurance status....this is something it didn't occur to me to ask her...it would have felt "invasive" to do so.

She is a single mom and engaged to be married.

Her son is 18 ...she is a very diligent, hard worker and so of course I do feel sorry for her having these health things to contend with.

She mentioned recently that "being thin" [by taking Ozempic] wasn't worth it.    

~Have a Kind Heart, Fierce Mind, Brave Spirit~
Respected Contributor
Posts: 3,094
Registered: ‎03-16-2010

Today, I saw my Endocrinologist, for my 6 month check-up. I have been on Mounjaro x 2 years. I am 66 years old and my labs are perfect, I was taken off of my blood pressure medicines last year. I have lost 85 pounds and have kept it off. I am diabetic and will be on Mounjaro for life. I do not mind at all. 

Being on Mounjaro has given me really good health, the ability to move around easier and engage with people and activities. BTW, I do not have Ozempic face. 

My Endocrinologist said that I am doing extremely well, and for that, I am grateful that I am doing great. 

This doctor knows how to manage a patient like me, has kept me on track. He is an expert at managing metabolism. 

I am very happy with my visit today. 

Regular Contributor
Posts: 232
Registered: ‎03-20-2010

So LTT1 states:

 

I'm unaware of my stylist's health insurance status....this is something it didn't occur to me to ask her...it would have felt "invasive" to do so.

 

LTT1 states it would have felt "INVASIVE" to ask the stylist about their health insurance status. And yet LTT1 has done nothing but spew that poor stylist's life story all over this thread. Shame on LTT1.

 

I hope the QVC Moderation Team shuts down this thread because it's filled with personal information about an innocent person, as well as filled with incorrect information regarding a prescription drug. It's a lawsuit waiting to happen.

Esteemed Contributor
Posts: 6,923
Registered: ‎01-14-2017

@Sooner wrote:

@webbgarner1 wrote:

@LTT1  What a lot of Americans seem to not understand is that ALL medications are chemicals and they ALL ( even if its just tylenol) have the potential for having side effects, some serious, even deadly. It seems a lot of folks think that if a doctor prescribed it its ok, its safe. Your friend bears  a lot of responsibility for what happened.  Educate yourself on all medications you are taking or are considering taking. She should have researched this drug thoroughly on her own  before considering taking it. As someone else stated by law pharmacys are required to give you written and or verbal instructions including side effects. Furthermore most likely she actively sought out getting the prescription, i doubt the doctor just on his own offered it. And the doctors that are prescribing it, they are using this drug for a purpose other than its original intent. Best of luck to your friend.


@webbgarner1 Not every one is educated enough, well enough informed, too busy, etc.  It's the government's job to watch over, certify, regulate and publish information about these terrible drugs.  They fell far short on this.  


 

@Sooner   ALL medications come with an extensive set of disclosures.  That is what the government requires, and all medicines I have come wih them.  The government is doing its job.  Patients can ask their pharmacists or health insurance plans if they don't understand them.