Wellness

[juanitalinda]

@SilleeMee 

Weight gain is not listed as a side effect of Evenity; however on the Mayo Clinic Osteoporosis Connect page many people have remarked about how much weight they gained.  

Hair loss is a listed side effect of Reclast.  

As to Prolia .... I know some people had no side effects, but others .... OMG ... just terrible.   

Hopefully you continue to build bone without any negative side effects.  (Seriously ... why can't the side effects be wonderful ... you know .. like luscious eyelashes ... or wrinkle-free skin?)

[SilleeMee]

@juanitalinda 

Oh dear. I did not know that hair loss can be a side effect from Reclast. I already have thinning hair with alopecia areata. Now this?! Hope I don't have that side effect from Reclast! 

[SilleeMee]

@juanitalinda 

When did you notice your hair loss after the Reclast?

[conlt]

This is an interesting topic for me. Last December, I stood up and my foot rolled off of my sandal. I broke my right foot. I had previously been diagnosed with Osteopenia.

My Endocrinologist said because I broke a bone, I am now a candidate for medication to help stop bone loss. So I went on Actonal 1 X per month. My latest bone density shows no change. 

So, I believe you are correct, your Osteoporosis should have been addressed. 

[juanitalinda]

@SilleeMee 

I noticed it about 3-4 months in.    I don't think it is a common side effect, but it is documented.  I think it affects something like 1 or 2% of the people taking it.  

[SilleeMee]

---

@juanitalinda wrote:

@SilleeMee 

I noticed it about 3-4 months in.    I don't think it is a common side effect, but it is documented.  I think it affects something like 1 or 2% of the people taking it.  

---

@juanitalinda 

That's good to know, TG. There is a good side to getting Reclast. It lowers cholesterol, including LDL, which I have had slightly elevated LDL levels in the past but not high enough to get on meds. I just read that it's the cholesterol-lowering part of Reclast that might be associated with hair loss. I found that interesting.

[juanitalinda]

@SilleeMee 

I didn't know that the hair loss and LDL-lowering effects could be related.  

Thanks.  

[SilleeMee]

---

@juanitalinda wrote:

@SilleeMee 

I didn't know that the hair loss and LDL-lowering effects could be related.  

Thanks.  

---

@juanitalinda 

It lowers both LDL and HDL. Hair loss is associated with low HDL and high LDL. Just to be clear.

[juanitalinda]

@SilleeMee 

I just went back and checked.  Yes, it lowered my HDL  15%, but since it was high before, I didn't notice.  

It lowered by LDL by 50%, which I DID notice right away.  

[MJDinVegas]

Hello, sisters in osteoporosis!  I was diagnosed 1.5 years ago now after having had osteopenia two years prior to that.  My mom had osteoporosis and MS and we have autoimmune in the family.  I've taken Prolia successfully for 1.5 years and will get my fourth shot in July 2026 with my next scan next July or so.

I was never a candidate for Fosamax as one of the side effects is the possible progression of Barrett's Esophagus to esophageal cancer ; I also have Barrett's.  

Unfortunately, they were unable to use scans of my hips to diagnose osteoporosis as both have been replaced (2004 and 2008; I was only 49 at the time of the first one).  Presumably this was all from osteoarthritis but now I wonder if both weren't active agents in the hip replacements. 

Thankful that I'm still able to be active, walking 4.5 miles 4-5 times a week and keep up with a 4.5 year old who's still all puppy all the time.

Ive never broken a bone and hope to escape this life without ever having done so.  LOL

Hang in there, @I am still oxox .  🙏