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Valued Contributor
Posts: 1,550
Registered: ‎06-12-2013

November is Epilepsy Awareness Month- Wear Purple to Show Your Support

SmilePlease show your support for epilepsy awareness and research. We need to find a CURE! I wear purple for someone I love. Do you know anyone with epilepsy?

/></a> Hopefully, we will see a lot of purple this month!!</div> <p> </p>
Trusted Contributor
Posts: 1,209
Registered: ‎03-10-2010

Re: November is Epilepsy Awareness Month- Wear Purple to Show Your Support

I am an Epileptic. Thank you for bringing this awareness.

It's not an easy disease to live with.

No disease is, but Epilepsy isn't talked about much.

Valued Contributor
Posts: 1,550
Registered: ‎06-12-2013

Re: November is Epilepsy Awareness Month- Wear Purple to Show Your Support

My son has epilepsy. You are 100% correct. It is not easy to live with. Breakthroughs happen even with proper care.

I have my entire house "decorated" with purple in November.

All my family and friends are aware, and they tell everyone to wear purple for epilepsy awareness. Every little bit of advancement can only help people who suffer with epilepsy everyday!

My best to you! Thanks for sharing.

Trusted Contributor
Posts: 1,209
Registered: ‎03-10-2010

Re: November is Epilepsy Awareness Month- Wear Purple to Show Your Support

Thank you for bringing the awareness mtnbikegirl!

My best to your son!

Hopefully one day this insidious disease will be cured!

Let your son know he is not alone in this.

There are many people suffering from this disease and we and the families of sufferers are all in this together!

Respected Contributor
Posts: 3,279
Registered: ‎05-15-2010

Re: November is Epilepsy Awareness Month- Wear Purple to Show Your Support

One of my family members had seizures so I know what many of you are dealing with. My heart goes out to everyone who is touched with this disorder.

Valued Contributor
Posts: 1,550
Registered: ‎06-12-2013

Re: November is Epilepsy Awareness Month- Wear Purple to Show Your Support

Thanks bigsister!

Research, research, research! A lot of famous people are stepping up and walking for epilepsy. Maybe that will bring more attention; hence, more funding to find a cure.

I hope so...

Esteemed Contributor
Posts: 5,258
Registered: ‎03-10-2010

Re: November is Epilepsy Awareness Month- Wear Purple to Show Your Support

On 11/1/2014 Oneanddone said:

I am an Epileptic. Thank you for bringing this awareness.

It's not an easy disease to live with.

No disease is, but Epilepsy isn't talked about much.


Me, too. Agree with all your points.

As others have said, research, research, research.

***

My seizures started at 16. Don't know why 16, except that I took a hard fall on a gym floor which knocked me out 2 years earlier. Who knows?

My new neuro wants me to change meds, as I'm now having waking seizures that are like large joint twitches once in a while in the evening. Geesh! At 67 I don't even want to think about changing meds, as the one he wants to put me on will cause weight gain and puffiness. Still thinking about it, but suppose I'm going to end up agreeing with him.

Valued Contributor
Posts: 1,550
Registered: ‎06-12-2013

Re: November is Epilepsy Awareness Month- Wear Purple to Show Your Support

My son is on Keppra XR and Topamax. We had to lessen the dosage of Topamax because it was making him so sleepy. He was diagnosed at the age of 10. No rhyme or reason with him either. No family history. He has two older siblings-nothing.

One day, he was found walking around the wrong wing of the elementary school-incoherent with an intense headache. We took him to the ER where he had his first seizure. No falls. No illness before that. It's been a rollercoaster ride since (6 years later).

More people I meet tell me they didn't have any family history...that's why they need to know the etiology (cause).

Thanks for sharing your stories.

Super Contributor
Posts: 713
Registered: ‎05-04-2010

Re: November is Epilepsy Awareness Month- Wear Purple to Show Your Support

No family history and I've had it since the age of 24 or so. More research is needed !!!

Frequent Contributor
Posts: 80
Registered: ‎03-20-2013

Re: November is Epilepsy Awareness Month- Wear Purple to Show Your Support

Purple is also the color for Pancreatic Cancer.