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Honored Contributor
Posts: 10,795
Registered: ‎11-16-2014

Re: New diagnosis

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Trusted Contributor
Posts: 1,821
Registered: ‎02-16-2018

Re: New diagnosis

[ Edited ]

@LilacTree As SYDSGMA already said the best thing to help with extreme fatigue is rest. Other things that realy help with autoimmune induced fatigue are selenium (you can use supplements or eat one brazil nut a day. It has the full daily requirement), vitamin D3 supplements without the additives and fillers (I take Pure Encapsulations D3 1000iu a day, you may need more - make sure your RA checks your vitamin D levels. It’s extremely important with autoimmune disease). Here comes the hard part, the one I’m still struggling with the most. Try not to eat any processed foods, no sugar except for honey, fruits, lot of vegatables and whole foods. Buy organic meats, vegetables, everything when possible. (I know it’s expensive, but you want to avoid harmful pesticides, antibiotics, additives, etc...)  Try and limit white potatoes, rice and grains. Substitute them for baked sweet potatoes, baked butternut or winter squash. Drink organic teas (chamomile, greem, mint, ginger, organic coffee in limited amounts, lots of water. I have now also developed gluten intolerence which is very common with people who already have Hashimoto’s autoimmune disease, Sjogren’s, Connective Tissue Disease, Lupus, RA and other autoimmune diseases. I have to take my diet very seriously now as things have started to go south with blood work and other symptoms. I can no longer have anything with wheat in it or any other grains. Hopefully, you will dodge a bullet with secondary autoimmune diseases, but it’s good to be informed.

      When you see your new RA it will be worth the wait. You will start to feel better physically and emotionally after the grueling journey of finally getting an accurate diagnosis. Again, make sure he does a vitamin D blood test, as well as a Thyroid Peroxidase (TPO) antibody test, and a thyroid Thyroglobulin (TG) Antibody test. These are not the usual thyroid level tests (tsh) that your GP does. Please have him do these three tests as they are very important to anyone with one or more secondary autoimmune diseases. I’m sure you have a list already made of questions and requests of your new doctor. I have to have my list of questions with me each time or I go in there and forget half of what I needed to say, and then have to wait another 3 months to see him. I’m including below some information that I gathered from research and confirmed through resources at the National Institutes of Health (NIH), National Center for Biotechnology Information (NCBI), NCBI PUBMED, and Cleveland Clinic.

This is a list of foods that cure different ailments naturally. Rather than take a blood thinner, you can eat certain foods each day that thin the blood. If you have high cholesterol there are foods that will lower it. My GP tried to put me on statins 12 years ago due to my inherited high cholesterol. I would not go on them due to dangerous side effects. Just recently, finally, it was on the national news channels about 2 or 3 months ago about how dangerous statins are. I eat foods that are vasodilators (expand the blood vessels) and foods that are natural blood thinners each day to keep. I also eat foods that lower cholesterol. Now if you eat things that you are not supposed to, as I have done recently and am paying a dear price for it negates all the good these foods can do. I’m back to eating the way I should now and hopefully no irreparable damage has been done. The list below will help you with many ailments that you have or possibly could have, but can be used as preventative measures. I take my necessary prescription medicines for my autoimmune diseases and pain pills when absolutely necessary. However I limit my prescription medications when possible and use this list to treat and prevent ailments. I hope it’s as useful for you as it’s been for me. In converting the list it messed up my formatting and took out my bold highlights / underlines.  It doesn’t look right, but the information is there.

 

Lists of Foods To Cure Different Ailments

 

Infections

 

#1 internal and external infection fighter UMF 20 Manuka Honey - Kiva is my favorite right now (antibacterial, antimicrobial, shown to be effective even on MRSA) Good for any infection in the body, stomach, viruses, food poisoning, flu... Also good on external wounds. Heals them in half the time it normally takes.

 

Foods That Lower Blood Pressure Quickly (natural blood thinners)

 

apple cider vinegar (ACV) (1Tablespoon of ACV in 8oz glass of water drink)

ginger tea & cinnamon

olive oil (1 teaspoon by mouth)

onion

garlic

cinnamon

pistachio nuts

lemons

 

Slim Down Foods

 

pepper

mustard

cumin

tumeric

 

Foods High In Silica silicon (promotes bone health, supports the immune system, and the creation / maintenance of connective tissue. Also protects against neurotoxic effects of aluminum.)

 

beer

banannas

raisens

mineral water

green beans

raw carrots

white rice

 

Foods high in magnesium: (Extremely important for making energy) 

 

#1pumpkin seeds (awesome, great for urinary issues too. Regulates urine output)

almonds,

banana,

avocados,

sun flower seeds

 

Diuretics (gets rid of water or fluid)

 

Cucumbers

lemons

celery

onion

carrots

garlic

water melon

mint tea

ginger

apple cider vinegar

 

Natural Anti-inflammatorys (items with ***** are extra good) “Natual Steroids”

 

        Oats*****

        Bone broth

         walnuts

       avocados****

       Coconut oil*****(Organic, Cold pressed) 1 heaping tsp a day. Melt in mouth  and swallow or add to coffee/ tea or smoothie) I add 2 shakes of cinnamon too. 

Olive oil ********(Organic, extra virgin) 

        ginger******

        cucumbers

        apples

        kale

  • Wild oats
  • Raw eggs*****
  • (1) Celery*****(actually taste good in smoothies, very healthy, who knew!)
  • spinach****
  • kale
  • (1) brocolli*****
  • collards*****
  • nuts - almonds, pecans, walnuts, ***brazil nuts***
  • ginger 
  • (1) tumeric*****
  • garlic******
  • onion*****
  • (1)blue berries*****
  • (1) salmon
  • strawberries*****
  • tart cherries

Foods high in Vitamins C, A and D, zinc and magnesium: These nutrients and vitamins are shown to kick up the body’s testosterone. Provides strength and energy.

——————————————————————-

 

Anti-dementia Foods - Helps Chronic fatigue,  BETA - SITOSTEROL

 

Flax seed

pumpkin seeds (Extremely healthy; high in magnesium as well. I put in smoothies)

olive oil

avocado

dry roasted pistachio nuts

 

Natural Antihistamines (If you get a rash, hives, start swelling or get a weird bug bite eat some of these.)

 

lemon juice

basil

onions

parsley

vitamin c

garlic

chamomile

Chewing on fresh parsley, mint, cilantro, or ginger slices is a natural breath freshener and intestinal freshener. Eating cucumbers may also help to release excess heat in your stomach.

 

Foods high in collagen:  Look for red vegetables (tomatoes, peppers beets), dark green vegetables (spinach, kale), carrots, sweet potatoes, blackberries, raspberries, oranges, limes, lemons, grapefruits, soy, white tea. 

 

Foods with glucosamine: shrimp (Also makes you frisky - sends blood and hormones to all the right placesSmiley Wink Also lobster, crab and shrimp aphrodesiacs. (It’s true! Eat a lot of shrimp and see if you notice a difference.)

 

Blood Thinners (natural)- Foods high in salicylates include the following:

 

  • Raisins 
  • pistachios
  • brazil nuts
  • Cherries
  • Blueberries 
  • Grapes 
  • Strawberries ****
  • Tangerines
  • Oranges 
  • Onions ****
  • Garlic *****
  • Olive Oil
  • Cinnamon
  • Oregano
  • Salmon*****

       Honey 

  • Peppermint
  • Apple Cider Vinegar
  • Wine
  • Cider
  • Vodka (All alcohol thins blood) 

 

  • How To Lower Acidity In The Body Quickly
    INGREDIENTS
  • ⅓ Teaspoons Baking Soda
  • 2 Tablespoons Fresh Lemon juice (yes lemons, they are not acidic when processed by the body) or Organic Apple Cider Vinegar

        Directions

  1. Mix everything together. The mixture will start to fizz.
  2. Wait until the fizzing stops and add 8 ounces of water.
  3. Drink the mixture in one sitting.

This remedy will help to balance pH levels in the body. It will also help with stomach acid and reduce acidosis.

 

Top 10 Foods High in Selenium (Very good for you, fights diseases) Helps regulate the immune system.

 

1) Brazil nuts 1 oz (3 Large nuts a day, no more) = 544 mcg (over 100% DV)

2) Yellowfin tuna 3 oz: 92 mcg (over 100% DV)

3) Halibut, cooked 3 oz: 47mcg (67% DV)

4) Sardines, canned3 oz: 45mcg (64% DV)

5) Grass-fed beef3 oz: 33 mcg (47% DV)

6) Turkey, boneless 3 oz: 31 mcg (44% DV)

7) Beef liver 3 oz: 28 mcg (40% DV)

8) Chicken 3 oz: 22 mcg (31% DV)

9) Egg 1 large, 15 mcg (21% DV)

10) Spinach 1 cup: 11 mcg (16% DV)

 

Foods That lower Cholesterol

 

Apples, Pears, lemons, strawberries, red grapefruit, citrus fruits, blueberries, blackberries These fruits are rich in pectin, a type of soluble fiber that lowers LDL.

pistachio nuts

celery

green vegetables

peas

watermelon

banannas

tomatoes

2.) avocados

3.) lemons

5.) Salmon

6.) sweet potatos

7.) olive oil

9.) flax seeds

carrots

peas

asparagus, 

artichokes 

almonds 

10.) walnuts, almonds

pecans,

salmon

1.) garlic

2.) onion

3.) tumeric

vinegar, 

4.) ginger

5.) cayenne pepper

6.) artichokes

 

LOW CARB FRUITS, Vegetables, & Other Foods

 

Watermelon, cantaloupe, blueberries, strawberries, blackberries, rasberries, avocados, cucumbers, celery, iceberg lettuce, spinach, tomatoes, cauliflower, zucchini, mushrooms, asparagus, broccoli, red grapefruit, peaches, cantaloupe, blackberries, canned salmon, ground turkey, pork tenderloin, turkey breast, ground beef, grilled salmon, eggs, pumpkin seeds, walnuts, 

pepperettes sausage sticks, sunflower seeds, pecans, broth, water, tea, sunflower oil, coconut oil, olive oil, mayonnaise, butter, 

 

calcium per day - 1200mg for women (need magnesium, vitamins k and d to process calcium) See below.

 

magnesium rich foods

 

 spinach, pumpkin seeds, yogurt, almonds,avocado, dark choc 1sqr, banana

vitamin k - spinach, kale, brocolli, cucumbers, spring onions

vitamin d (Most important vitamin) sunlight, salmon, eggs, mushrooms, supplements

 

Calcium rich foods: (Especially if you are avoiding dairy)

 

******yogurt Organic Plain (DV 30%) - Dairy

canned salmon-232 mg (23% DV) in ½ can with bones (which provides the calcium!)

collard greens

spinach

turnip greens - 197 mg (20% DV) in 1 cup cooked (chopped)

brocolli 

kale - 188 mg (19% DV) in 2 cups raw (chopped)

almonds 20 nuts - 72 mg (7% DV) calcium

small bony fish - canned salmon with bones 3ozs 181mg, sardines

frozen collards 1 cup frozen boiled 357mg

black-eyed peas boiled 1/2 cup 185 mg (18% DV) in 1/2 cup canned

green peas boiled 1 cup 94mg

sardines - 321 mg (32% DV) in about 7 sardines fillets

bone broth - 1 cup 68 mg calcium

7 grams carbs - 1 lg carrot 24mg calcium

oatmeal

 

Potassium rich foods

 

  Coconut water

  1. Avocado
  2. pistachio nuts
  3. Acorn squash
  4. brocolli
  5. bananna
  6. pork chop
  7. Spinach
  8. Sweet potato
  9. Wild-caught salmon
  10. Dried apricots
  11. Pomegranate
  12. Coconut water
  13. White beans
  14. Banana
  15. beef
  16. cauliflower
  17. asparagus

 

Vitamin D Foods

 

sunlight (best)

*shrimp

*yogurt

bacon

*salmon

sardines

*egg yolks*

white mushrooms or button mushrooms

cheese 

milk

oats

oj

pork ternderloin

butter

 

Metabolism Boosters

watermelon

cantaloupe

spinach

water

almonds

berries

bone broth

celery 

turkey

apple cider vinegar

bone broth

Cinnamon

Coconut oil

coffee

fish

grapefruit

 

Vasodilators (Foods That Open Blood Vessels - foods high in Nitric Oxide and Niacin - Keeps you from having heart attacks

 

***pistachio nuts***

***celery***

***lemons***

walnuts 

spinach

Cayenne Pepper and Chili

Citrus Fruits

Dark Chocolate and Raw Cacao

***Ginger***

***Watermelon***

***Garlic***

***Parsley***

Pomegranate

Tea

Red Wine and Grapes 

***Walnuts, Pistachios, Peanuts and Most Other Nuts***

***Spinach***

Beetroot

Kale

***Raw Honey***

***Onion***

***Shrimp*** (causes...)

***Salmon & Other Fish***

turkey

chicken 

peas

avocado

sunflower seeds

pork

portabello mushrooms

grass fed beef

 

cellulite and heavy metal removal  foods

cilantro

parsley

nuts (almonds, walnuts)

grapefruit

lemon

 

Butter Substitutes  

olive oil

nut butters

avocado

chicken stock

coconut oil

(never use margarin)

 

Zinc - Foods (For producing testosterone for energy)

 

1.) pumpkin seeds

2.) grass fed beef

3.) lamb

chickpeas

cashews,

mushrooms

spinach

shrimp 

pumpkin seeds

flax seeds 

 

B12 Foods

 

  1. Beef liver: 1 ounce: 20 micrograms (over 300 percent DV)
  2. Sardines: 3 ounces: 6.6 micrograms (over 100 percent DV)
  3. Atlantic mackerel: 3 ounces: 7.4 micrograms (over 100 percent DV)
  4. Lamb: 3 ounces: 2.7 micrograms (45 percent DV)
  5. Wild-caught salmon: 3 ounces: 2.6 micrograms (42 percent DV)
  6. Nutritional yeast: 1 tablespoon: 2.4 micrograms (40 percent DV)
  7. Feta cheese: 0.5 cup: 1.25 micrograms (21 percent DV)
  8. Grass-fed beef: 3 ounces: 1.2 micrograms (20 percent DV)
  9. Cottage Cheese: 1 cup: 0.97 micrograms (16 percent DV)
  10. Eggs: 1 large: 0.6 micrograms (11 percent DV)

 

Oils and Fats to Use Freely

There are so many wonderful and healthy fats that are beneficial to the body, so there is no reason to consume the unhealthy ones above. Fats that can be consumed freely for optimal health are:

  • Coconut Oil– Filled with Medium Chain Fatty Acids and Lauric Acid, coconut oil is an all star of the saturated fats. Since the fat composition in cells in the body is largely saturated fat, it is important to get enough of it from healthy sources. Coconut oil does not oxidize easily at high temperatures or go rancid easily, making it a good choice for cooking and baking. It also makes a great natural moisturizer and can be substituted for butter.
  • Meats – Meat, especially red meat, has gotten a bad rap, and unfortunately, the animals we eat have been as mistreated nutritionally as we have. Meats like grassfed beef and free range chicken has a very different nutritional profile than their feedlot counterparts. Grassfed and free range meats have higher nutrient levels, healthy forms of saturated fats and even omega-3s. If possible, consume these forms of meat.
  • Butter– Kerry Gold , Grass fed butter only This one food is usually the one people are happiest to start using again. Butter tastes delicious, and pastured grassfed butter is an excellent source of fat soluble vitamins, healthy saturated fat and other nutrients.
  • Organic Cream– also a good source of healthy saturated fat, organic heavy cream is essentially liquid butter, and is great served whipped on top of fruit, in desserts or in cream based recipes.
  • Olive Oil– High in monounsaturated fats and low in polyunsaturated fats, olive oil is a great oil for salad dressings, homemade mayo,  and cold recipes. It shouldn’t be used for cooking since its high monounsaturated fat content makes it susceptible to oxidation at high temperatures..
  • Avocados and Avocado Oil– A good source of monounsaturated fats and great on salads or in guacamole. Avocado oil is milk tasting and can be used in salad dressings.
  • Fish– Fish are naturally high in Omega-3 fatty acids and can help improve the Omega-3/Omega-6 balance in the body. Look for sustainable wild caught sources, and stick to small fish like tuna, sardines, salmon, etc to minimize mercury.
  • Eggs– Another all-star in the healthy fats community, eggs are loaded with vitamins, healthy fats and necessary cholesterol. Consume them daily from free range sources.

 

(Key Nutrients to eat each day) - Salt, potassium, magnesium, vitamin D3, calcium - if taking supplements be careful, they contain lots of bad stuff. I use “Pure Encapsulations” brand supplements, no bad stuff, no dangerous fillers

 

 

 

Honored Contributor
Posts: 12,997
Registered: ‎03-25-2012

@Trinity11 

I do not know the answers to your questions.  For once I am doing what the medical professionals are telling me to do.  

Formerly Ford1224
We must always take sides. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. Elie Wiesel 1986
Honored Contributor
Posts: 12,997
Registered: ‎03-25-2012

@Ketra 

please give me time to absorb all of this.  Thank you for the time it must have taken you to compile this list.

Formerly Ford1224
We must always take sides. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. Elie Wiesel 1986
Honored Contributor
Posts: 12,997
Registered: ‎03-25-2012

I received another call from the hospital this morning.  They advised me that the urine culture came back indicating “unusual organisms.”  She said this report was sent to my new doctor who will discuss this with me on Monday at our appt.  That’s all she said, so it’s all I know.

 

 

Formerly Ford1224
We must always take sides. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. Elie Wiesel 1986
Honored Contributor
Posts: 8,153
Registered: ‎03-14-2010

Re: New diagnosis

[ Edited ]

@Trinity11 wrote:

@LilacTree wrote:

@sydsgma1 

The really good RA docs always have a gazillion patients. They are so few and far between.  Somone has to choose to have no RA doc, or a whacko who doesn’t even look at you . . . Or wait as I am waiting for the good one.

Who knows how long I’ve had lupus anyway.  Nobody ever did testing as she did, or examined me, etc., so I am choosing to wait.

 

I see new NP for the second time this Monday and she wants to talk to me about the labs the RA doc took.  Don’t know why, she didn’t even know what a Dmard was last visit!

 

ETA She is the one who prescribed the Macrobid for the UTI That wasn’t, but that may have given me lupus.  She obviously didn’t know that either. 


@LilacTree I saw my infectitious disease specialist who put me on prophylactic macrobid for 3 months because of frequent klebsiella infections. She confirmed that it takes months or years for a lupus reaction. A 10 day course of macrobid does not cause lupus. It can be monitored by frequent blood work and drug induced lupus is reversible. 

 

She warned me to stay off the internet for information on medications and that individuals are all different.

 

Why if you have lupus is it not being immediately treated? Or am I confused and your PC will treat it? A wait of months confuses me..


 

@Trinity11  I respectfully disagree...

I can only speak for DH and myself on part of one of your statements your Dr gave you.

If it wasn't for info available on several meds DH and I were taking, we would not be off of them today. Meds are helpful for certain conditions when there are no other options.

However, other meds are more harmful than they are good.

 

I am completely off OTC meds for GERD/acid reflux/heartburn and DH is off his diabetic meds and Crestor. I do give credit to DH's Dr for getting DH to eat 60 carbs or less a day which helped both of us with our health issues. I also credit info DH and I found online about the meds we were taking...

 

A couple of examples...

I found out that taking OTC acid blockers not only do the opposite of what one's body needs, there is a high risk for early dementia. Changing our eating lifestyle helped change that almost immediately...within the 1st 2-3 weeks!

 

As for DH...if it wasn't for the fact he had intestinal fortitude and determined not to take anymore meds, he would never have persued finding ways to get off of his diabetic meds which lead him to great info online which showed him it was possible with a different eating lifestyle.

 

So, thank heavens all this info was available online for us to learn how to better our health and we didn't just take our Drs advice.

 

My Dr actually initially prescribed me acid blockers when I 1st started having GERD issues 5 yrs ago! I then went to OTC Prevacid to save some money and my condition kept worsening as the yrs passed. And here all I had to do was change my eating lifestyle the whole time. Honestly, that alone is maddening. So why didn't my Dr give me options? Why doesn't he know that acid blockers do more harm than good...and that there was a way to avoid risking early dementia? That acid blockers are the opposite of what the body actually wants? That eliminating most carbs & sugars is the way to go to get off those meds? See?

 

Of coarse not everyone can get off of their meds...everyone's body is different as well as their health issues being unique. But for your Dr to just give a blanket statement like that is just wrong for many reasons. It also gives many folks permission not to bother take charge of their own bodies to make sure they are getting the best care for themselves...and possibly rely on Drs that are actually doing them more harm by not giving them options.

 

I keep thinking of the several hundreds of $$$ DH and I are saving MONTHLY from not having to take diabetic meds (VERY expensive), Crestor (VERY expensive) & ALL my acid blockers like Prevacid (expensive), Zantac (not cheap), & Pepto-Bismol I was taking daily and almost eating like candy!

 

There are some meds DH will have to take the rest of his life due to when he had his Gall Bladder removed. For example, he takes 20-30 fiber pills a day just for the IBS issue. 

 

So, IMHO, whenever anyone can get off of meds for any health issue, instead of looking for a magic pill, or relying on one, they are healthier.

 

 

 

 

Trusted Contributor
Posts: 1,821
Registered: ‎02-16-2018

@Susan Louise wrote:

@Trinity11 wrote:

@LilacTree wrote:

@sydsgma1 

The really good RA docs always have a gazillion patients. They are so few and far between.  Somone has to choose to have no RA doc, or a whacko who doesn’t even look at you . . . Or wait as I am waiting for the good one.

Who knows how long I’ve had lupus anyway.  Nobody ever did testing as she did, or examined me, etc., so I am choosing to wait.

 

I see new NP for the second time this Monday and she wants to talk to me about the labs the RA doc took.  Don’t know why, she didn’t even know what a Dmard was last visit!

 

ETA She is the one who prescribed the Macrobid for the UTI That wasn’t, but that may have given me lupus.  She obviously didn’t know that either. 


@LilacTree I saw my infectitious disease specialist who put me on prophylactic macrobid for 3 months because of frequent klebsiella infections. She confirmed that it takes months or years for a lupus reaction. A 10 day course of macrobid does not cause lupus. It can be monitored by frequent blood work and drug induced lupus is reversible. 

 

She warned me to stay off the internet for information on medications and that individuals are all different.

 

Why if you have lupus is it not being immediately treated? Or am I confused and your PC will treat it? A wait of months confuses me..


 

@Trinity11  I respectfully disagree...

I can only speak for DH and myself on part of one of your statements your Dr gave you.

If it wasn't for info available on several meds DH and I were taking, we would not be off of them today. Meds are helpful for certain conditions when there are no other options.

However, other meds are more harmful than they are good.

 

I am completely off OTC meds for GERD/acid reflux/heartburn and DH is off his diabetic meds and Crestor. I do give credit to DH's Dr for getting DH to eat 60 carbs or less a day which helped both of us with our health issues. I also credit info DH and I found online about the meds we were taking...

 

A couple of examples...

I found out that taking OTC acid blockers not only do the opposite of what one's body needs, there is a high risk for early dementia. Changing our eating lifestyle helped change that almost immediately...within the 1st 2-3 weeks!

 

As for DH...if it wasn't for the fact he had intestinal fortitude and determined not to take anymore meds, he would never have persued finding ways to get off of his diabetic meds which lead him to great info online which showed him it was possible with a different eating lifestyle.

 

So, thank heavens all this info was available online for us to learn how to better our health and we didn't just take our Drs advice.

 

My Dr actually initially prescribed me acid blockers when I 1st started having GERD issues 5 yrs ago! I then went to OTC Prevacid to save some money and my condition kept worsening as the yrs passed. And here all I had to do was change my eating lifestyle the whole time. Honestly, that alone is maddening. So why didn't my Dr give me options? Why doesn't he know that acid blockers do more harm than good...and that there was a way to avoid risking early dementia? That acid blockers are the opposite of what the body actually wants? That elimating most carbs & sugars is the way to go to get off those meds? See?

 

Of coarse not everyone can get off of their meds...everyone's body is different as well as their health issues being unique. But for your Dr to just give a blanket statement like that is just wrong for many reasons. It also gives many folks permission not to bother take charge of their own bodies to make sure they are getting the best care for themselves...and possibly rely on Drs that are actually doing them more harm by not giving them options.

 

I keep thinking of the several hundreds of $$$ DH and I are saving MONTHLY from not having to take diabetic meds (VERY expensive), Crestor (VERY expensive) & my ALL the acid blockers like Prevacid (expensive), Zantac (not cheap), & Pepto-Bismol I was taking daily and almost eating like candy!

 

There are some meds DH will have to take the rest of his life due to when he had his Gall Bladder removed. For example, he takes 20-30 fiber pills a day just for the IBS issue. 

 

So, IMHO, whenever anyone can get off of meds for any health issue, instead of looking for a magic pill, or relying on one, they are healthier.

 

 

@Susan Louise You are a very wise woman. That’s better health advice than you would get from a visit to a GP.

Honored Contributor
Posts: 10,795
Registered: ‎11-16-2014

@Ketra wrote:

@Susan Louise wrote:

@Trinity11 wrote:

@LilacTree wrote:

@sydsgma1 

The really good RA docs always have a gazillion patients. They are so few and far between.  Somone has to choose to have no RA doc, or a whacko who doesn’t even look at you . . . Or wait as I am waiting for the good one.

Who knows how long I’ve had lupus anyway.  Nobody ever did testing as she did, or examined me, etc., so I am choosing to wait.

 

I see new NP for the second time this Monday and she wants to talk to me about the labs the RA doc took.  Don’t know why, she didn’t even know what a Dmard was last visit!

 

ETA She is the one who prescribed the Macrobid for the UTI That wasn’t, but that may have given me lupus.  She obviously didn’t know that either. 


@LilacTree I saw my infectitious disease specialist who put me on prophylactic macrobid for 3 months because of frequent klebsiella infections. She confirmed that it takes months or years for a lupus reaction. A 10 day course of macrobid does not cause lupus. It can be monitored by frequent blood work and drug induced lupus is reversible. 

 

She warned me to stay off the internet for information on medications and that individuals are all different.

 

Why if you have lupus is it not being immediately treated? Or am I confused and your PC will treat it? A wait of months confuses me..


 

@Trinity11  I respectfully disagree...

I can only speak for DH and myself on part of one of your statements your Dr gave you.

If it wasn't for info available on several meds DH and I were taking, we would not be off of them today. Meds are helpful for certain conditions when there are no other options.

However, other meds are more harmful than they are good.

 

I am completely off OTC meds for GERD/acid reflux/heartburn and DH is off his diabetic meds and Crestor. I do give credit to DH's Dr for getting DH to eat 60 carbs or less a day which helped both of us with our health issues. I also credit info DH and I found online about the meds we were taking...

 

A couple of examples...

I found out that taking OTC acid blockers not only do the opposite of what one's body needs, there is a high risk for early dementia. Changing our eating lifestyle helped change that almost immediately...within the 1st 2-3 weeks!

 

As for DH...if it wasn't for the fact he had intestinal fortitude and determined not to take anymore meds, he would never have persued finding ways to get off of his diabetic meds which lead him to great info online which showed him it was possible with a different eating lifestyle.

 

So, thank heavens all this info was available online for us to learn how to better our health and we didn't just take our Drs advice.

 

My Dr actually initially prescribed me acid blockers when I 1st started having GERD issues 5 yrs ago! I then went to OTC Prevacid to save some money and my condition kept worsening as the yrs passed. And here all I had to do was change my eating lifestyle the whole time. Honestly, that alone is maddening. So why didn't my Dr give me options? Why doesn't he know that acid blockers do more harm than good...and that there was a way to avoid risking early dementia? That acid blockers are the opposite of what the body actually wants? That elimating most carbs & sugars is the way to go to get off those meds? See?

 

Of coarse not everyone can get off of their meds...everyone's body is different as well as their health issues being unique. But for your Dr to just give a blanket statement like that is just wrong for many reasons. It also gives many folks permission not to bother take charge of their own bodies to make sure they are getting the best care for themselves...and possibly rely on Drs that are actually doing them more harm by not giving them options.

 

I keep thinking of the several hundreds of $$$ DH and I are saving MONTHLY from not having to take diabetic meds (VERY expensive), Crestor (VERY expensive) & my ALL the acid blockers like Prevacid (expensive), Zantac (not cheap), & Pepto-Bismol I was taking daily and almost eating like candy!

 

There are some meds DH will have to take the rest of his life due to when he had his Gall Bladder removed. For example, he takes 20-30 fiber pills a day just for the IBS issue. 

 

So, IMHO, whenever anyone can get off of meds for any health issue, instead of looking for a magic pill, or relying on one, they are healthier.

 

 

@Susan Louise You are a very wise woman. That’s better health advice than you would get from a visit to a GP.


Hi @Ketra . I have been reading this forum for many years and I see a distinct mistrust of physicians across the board. I wonder why that is? We read something on the internet and we suddenly know more than someone who went to school for 8 years?

 

I know there are terrible doctors out there but I do think they are in the minority. I doubt I would be alive today with so many auto-immune diseases if not for the medical profession.

Honored Contributor
Posts: 8,153
Registered: ‎03-14-2010

Re: New diagnosis

[ Edited ]

@Trinity11 wrote:

@Ketra wrote:

@Susan Louise wrote:

@Trinity11 wrote:

@LilacTree wrote:

@sydsgma1 

The really good RA docs always have a gazillion patients. They are so few and far between.  Somone has to choose to have no RA doc, or a whacko who doesn’t even look at you . . . Or wait as I am waiting for the good one.

Who knows how long I’ve had lupus anyway.  Nobody ever did testing as she did, or examined me, etc., so I am choosing to wait.

 

I see new NP for the second time this Monday and she wants to talk to me about the labs the RA doc took.  Don’t know why, she didn’t even know what a Dmard was last visit!

 

ETA She is the one who prescribed the Macrobid for the UTI That wasn’t, but that may have given me lupus.  She obviously didn’t know that either. 


@LilacTree I saw my infectitious disease specialist who put me on prophylactic macrobid for 3 months because of frequent klebsiella infections. She confirmed that it takes months or years for a lupus reaction. A 10 day course of macrobid does not cause lupus. It can be monitored by frequent blood work and drug induced lupus is reversible. 

 

She warned me to stay off the internet for information on medications and that individuals are all different.

 

Why if you have lupus is it not being immediately treated? Or am I confused and your PC will treat it? A wait of months confuses me..


 

@Trinity11  I respectfully disagree...

I can only speak for DH and myself on part of one of your statements your Dr gave you.

If it wasn't for info available on several meds DH and I were taking, we would not be off of them today. Meds are helpful for certain conditions when there are no other options.

However, other meds are more harmful than they are good.

 

I am completely off OTC meds for GERD/acid reflux/heartburn and DH is off his diabetic meds and Crestor. I do give credit to DH's Dr for getting DH to eat 60 carbs or less a day which helped both of us with our health issues. I also credit info DH and I found online about the meds we were taking...

 

A couple of examples...

I found out that taking OTC acid blockers not only do the opposite of what one's body needs, there is a high risk for early dementia. Changing our eating lifestyle helped change that almost immediately...within the 1st 2-3 weeks!

 

As for DH...if it wasn't for the fact he had intestinal fortitude and determined not to take anymore meds, he would never have persued finding ways to get off of his diabetic meds which lead him to great info online which showed him it was possible with a different eating lifestyle.

 

So, thank heavens all this info was available online for us to learn how to better our health and we didn't just take our Drs advice.

 

My Dr actually initially prescribed me acid blockers when I 1st started having GERD issues 5 yrs ago! I then went to OTC Prevacid to save some money and my condition kept worsening as the yrs passed. And here all I had to do was change my eating lifestyle the whole time. Honestly, that alone is maddening. So why didn't my Dr give me options? Why doesn't he know that acid blockers do more harm than good...and that there was a way to avoid risking early dementia? That acid blockers are the opposite of what the body actually wants? That elimating most carbs & sugars is the way to go to get off those meds? See?

 

Of coarse not everyone can get off of their meds...everyone's body is different as well as their health issues being unique. But for your Dr to just give a blanket statement like that is just wrong for many reasons. It also gives many folks permission not to bother take charge of their own bodies to make sure they are getting the best care for themselves...and possibly rely on Drs that are actually doing them more harm by not giving them options.

 

I keep thinking of the several hundreds of $$$ DH and I are saving MONTHLY from not having to take diabetic meds (VERY expensive), Crestor (VERY expensive) & my ALL the acid blockers like Prevacid (expensive), Zantac (not cheap), & Pepto-Bismol I was taking daily and almost eating like candy!

 

There are some meds DH will have to take the rest of his life due to when he had his Gall Bladder removed. For example, he takes 20-30 fiber pills a day just for the IBS issue. 

 

So, IMHO, whenever anyone can get off of meds for any health issue, instead of looking for a magic pill, or relying on one, they are healthier.

 

 

@Susan Louise You are a very wise woman. That’s better health advice than you would get from a visit to a GP.


Hi @Ketra . I have been reading this forum for many years and I see a distinct mistrust of physicians across the board. I wonder why that is? We read something on the internet and we suddenly know more than someone who went to school for 8 years?

 

I know there are terrible doctors out there but I do think they are in the minority. I doubt I would be alive today with so many auto-immune diseases if not for the medical profession.


@Trinity11  I have had several bad incidences with Dr's, dentists, etc. You are very lucky that all your care involves trusted care.

 

I have had a tooth pulled when I had options to save it. I have had meds given to me in a hospital (per Dr's orders) even though I was wearing a bracelet stating it not be given to me. I just explained in my post above about my Dr giving me a prescription for acid blockers instead of him telling me to change my diet to help with GERD (not just telling me to stay away from spicy foods which I rarely ate anyway).

I also had other poor care I won't go into.

 

Poor/bad care is given to patients more often than you think. The sad part is that many patients take the word of their Dr as a G-O-D (for lack of a better way of saying it) without questioning or doing their own homework.

 

I do recommend you and other folks read a book 'Lies my Dr told me' which is now finally available for e-readers. Smiley Happy

Honored Contributor
Posts: 10,795
Registered: ‎11-16-2014

@Susan Louise ...my first heart attack the interventionist failed to stent another part of my artery and lost his right to practice in Northwell Health. He was fired after I had a second heart attack. He altered the report and my new doctor found it. My son nearly died from failure to treat and he developed sepsis. 3 weeks went by before as an infant he was diagnosed with a rare disease that resulted in coronary aneurysms. So, like yourself, I have had some terrible doctors. Yet, the good ones have far exceeded the poor ones...