Macular degeneration - Page 2

sophiamarie · ‎08-08-2013

I have Macular Degeneration and have posted it here a few times. It was diagnosed in August 2014.

I started out with the "dry" form in both eyes and then I had cataract surgery on both eyes. After my second eye was done, I had a routine appt. with my Retina Specialist, who noticed after looking at my pictures, that I had some leakage in my right eye. He thought it might be an inflammation from the cataract so he gave me some drops to use for just one week.

Well, after the week was up, the leak was still there and he concluded I had the "wet" form of Macular Degeneration. I was immediately started on injections with a drug called "Avastin", which is really a chemotherapy drug which was found to be helpful for the "wet" form of MD and approved for eye injections by the FDA.

I was getting these injections for one year, when another drug came out, called EYLEA and was strictly for the wet form of MD. I should also say I was getting these injections every 4-6 weeks. depending on how my picture looked.

Exactly one year later, in August of 2015, he started me on the injections with EYLEA every six weeks. Shortly after that, I had improved so much, that he had me coming in every 8 weeks. This past Friday, I had my 28th eye injection.

He also had me taking AREDS 2, which I get from Amazon every 2-3 months. I take them 2x a day.

Needless to say, my sight is 20/20 and I couldn't be more grateful to my Retina doctor and his training at Bascom Palmer Eye Institute. I would recommend him to anyone, anywhere. He has 5 Star reviews and is young, compassionate, and has a lot of patience, since most of his patients are not young and hearing that you need an injection in your eye, is kind of scary.

I hope I alleviated some fears a few of you might have. My father also went blind from MD, but then again, nobody knew about these treatments 30 years ago. There is hope.

Kachina624 · ‎03-10-2010

@Nightowlz wrote:
I posted some links over on the dry eye thread for @Kachina624 since she was asking about it.
I guess there are different types so would need to know what type you have to post the correct information.

@Nightowlz I don't know yet what type it will be as it's just developing. So far it hasn't affected my vision yet.

New Mexico☀️Land Of Enchantment

Kachina624 · ‎03-10-2010

@Ibby114. I started the Andrew Lessman lutein plus 30mg of plain lutein in addition. Doctor says there's no maximum dose but 20mg is considered the optimum dose

Both of my parents had MD and were legally blind. I retired and moved here to help them as neither could drive anymore. Now they're both gone and there's nobody to help me so I must help myself. Needless to say, my diagnosis didn't come as a shock.

New Mexico☀️Land Of Enchantment

sidsmom · ‎11-25-2011

@novamc1

I j.u.s.t saw this in my Youtube notifications!

Dr. Pam Popper (PhD/ND), who does informative videos

every Thursday on many different topics, had the topic of

Macular Degeneration this morning.

Topic begins at the 6:30 mark.

HTH! 🌼💛

https://youtu.be/8uiveBD4TJ8

Nightowlz · ‎03-11-2010

@Kachina624 wrote:
@Ibby114. I started the Andrew Lessman lutein plus 30mg of plain lutein in addition. Doctor says there's no maximum dose but 20mg is considered the optimum dose

Both of my parents had MD and were legally blind. I retired and moved here to help them as neither could drive anymore. Now they're both gone and there's nobody to help me so I must help myself. Needless to say, my diagnosis didn't come as a shock.

@Kachina624

I'm sorry you had to deal with this with your parents & now dealing with it yourself. Hope you can find something new on the market the can help you. This indeed is very scary not knowing what will happen & who will help you.

I pray the lutein will keep yours at bay for years to come.

DH's dad passed in Dec & mine in Feb so we both all know all to well what's coming for us as we age & wondering whose going to help us. Sure we helped our parents but we don't have any kids. I'm not looking forward to being alone if DH goes before I do. I have never been on my own. If he goes first I'm going with him.

Ibby114 · ‎03-10-2010

@Kachina624 wrote:
@Ibby114. I started the Andrew Lessman lutein plus 30mg of plain lutein in addition. Doctor says there's no maximum dose but 20mg is considered the optimum dose

Both of my parents had MD and were legally blind. I retired and moved here to help them as neither could drive anymore. Now they're both gone and there's nobody to help me so I must help myself. Needless to say, my diagnosis didn't come as a shock.

@Kachina624 Do you mean Andrews Ultimate Eye Support supplement? That has probably 5x more lutein and zeaxanthin than my Essential 1 multivitamin! My eye dr advised me the combination of these 2 ingredients is what really benefits MD.