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10-11-2016 05:20 PM
@JeanLouiseFinch wrote:
@wonderfulworld wrote:Unfortunately, stopping the Lasix and waiting may not be enough to restore your hearing if you suffer from Sudden Hearing Loss.
Regardless of the cause, the best treatment is to see an ENT who specializes in hearing, specifically an Otology/Neurotology specialist as you might find at an Ear Institute if you can find one. Ask your Audiologist.
The reason is that those of us who already have hearing loss are at risk for Sudden Hearing Loss and there is a narrow window of opportunity for treatment to work before it becomes permanent. People with out pre exisiting hearing loss can have it too but we are more susceptible.
Sudden Hearing Loss is a true audiological emergency and is treated with oral steroids and if you can find a specialist who does them...steroid infusions into the ear.
The window is 4 weeks...then the loss tends to be permanent.
This happened to me. I have had hearing loss since birth and wear hearing aids. Mine occurred as a side effect of medication too I think, but it can also be Autoimmune Disease or a virus. I will never know for sure the cause. It is just one ear. That is the usual case.
Sometimes hearing loss is due to a temporary cause such as an ear infection. Since you saw an audiologist you have probably had that ruled out. I am surprised you were not sent directly to an ENT.
The problem I had was inner ear. I was put on oral steroids and had 2 steroid infusions (they will do up to 4 infusions) and then my hearing improved with just a little loss remaining. Stopping the Lasix may not be enough, you may need treatment to calm the inflammation in your inner ear and restore your hearing. I surely did.
Please look up Sudden Hearing Loss and seek treatment if it seems to apply to you.
Let me know how you fare and I would be interested in the comments of anyone else who has had this problem.
Thank you for starting a thread on this important topic.
Thank you, @wonderfulworld What I read said hearing would likely return after stopping the medication, but it's a big concern right now. If your information is correct, then I'm out of luck because this began in July.
ETA - I did get an appointment with my primary for Monday morning to obtain a referral to a specialist. I'm willing to try, hoping there's still a chance to regain some of what I lost. Thank you again for bringing this to my attention.
How do you VIEW your hearing, now? Any help from your Monday's doctor visit, I.E., what did he\ she offer as assessment?
Message from previous post. HERE. Above.
This episode is very important to me, understanding as a learning tool experience.
I certainly ' hope ' that this is ONLY temporary.
Always my best~
10-11-2016 05:46 PM - edited 10-11-2016 05:48 PM
@NAES1 wrote:
@JeanLouiseFinch wrote:
@wonderfulworld wrote:Unfortunately, stopping the Lasix and waiting may not be enough to restore your hearing if you suffer from Sudden Hearing Loss.
Regardless of the cause, the best treatment is to see an ENT who specializes in hearing, specifically an Otology/Neurotology specialist as you might find at an Ear Institute if you can find one. Ask your Audiologist.
The reason is that those of us who already have hearing loss are at risk for Sudden Hearing Loss and there is a narrow window of opportunity for treatment to work before it becomes permanent. People with out pre exisiting hearing loss can have it too but we are more susceptible.
Sudden Hearing Loss is a true audiological emergency and is treated with oral steroids and if you can find a specialist who does them...steroid infusions into the ear.
The window is 4 weeks...then the loss tends to be permanent.
This happened to me. I have had hearing loss since birth and wear hearing aids. Mine occurred as a side effect of medication too I think, but it can also be Autoimmune Disease or a virus. I will never know for sure the cause. It is just one ear. That is the usual case.
Sometimes hearing loss is due to a temporary cause such as an ear infection. Since you saw an audiologist you have probably had that ruled out. I am surprised you were not sent directly to an ENT.
The problem I had was inner ear. I was put on oral steroids and had 2 steroid infusions (they will do up to 4 infusions) and then my hearing improved with just a little loss remaining. Stopping the Lasix may not be enough, you may need treatment to calm the inflammation in your inner ear and restore your hearing. I surely did.
Please look up Sudden Hearing Loss and seek treatment if it seems to apply to you.
Let me know how you fare and I would be interested in the comments of anyone else who has had this problem.
Thank you for starting a thread on this important topic.
Thank you, @wonderfulworld What I read said hearing would likely return after stopping the medication, but it's a big concern right now. If your information is correct, then I'm out of luck because this began in July.
ETA - I did get an appointment with my primary for Monday morning to obtain a referral to a specialist. I'm willing to try, hoping there's still a chance to regain some of what I lost. Thank you again for bringing this to my attention.
How do you VIEW your hearing, now? Any help from your Monday's doctor visit, I.E., what did he\ she offer as assessment?
Message from previous post. HERE. Above.
This episode is very important to me, understanding as a learning tool experience.
I certainly ' hope ' that this is ONLY temporary.
Always my best~
Hi @NAES1. Thanks for asking. I have no changes to report...yet. I met with the NP yesterday and explained everything, how I originally thought it was an equipment issue and now I'm fearful of the damage being permanent since it went unaddressed for 2 mos. or so. She said while she understands certain drugs can be ototoxic she's only really heard of this particular one being more of a concern when pushed in an IV or injection, that nurses are taught to do it very slowly. I told her of my reseach and that a specialist will first start on a course of steriod treatment. If that doesn't work, there's an option of a tympanic steroid injection. I told her I needed to try something before just giving up and accepting my situation as it is. I mean, yeah, there's a strong possibility that I'm out of luck, but I still need to try. Right? We agreed to start with an 11 day course of oral Prednisone and I asked for the strongest dosage that was allowed. I began my first dose yesterday morning. Due to the fact that it can cause swelling, we also upped the Hydrochlorathiazide. Right now I'm in the pray, hope, wait and see mode. Once I finish the meds, I'll let you know my status.
10-11-2016 05:56 PM
@NAES1 wrote:
I had made some notes in reference to your sudden after effects from the medication you referred to. Was I surprised that ' yours may have caused hearing loss to some degree? NO. I have many reports from our patients who notice or complaints FROM different medications.
Unfortunately many health providers pass over the real problem or send
_ patient _ to either a specialist, or you are left to figure out on your own.
The most recent post medication complaint was a diuretic. This was given after an outpatient procedure\ laser eye\. As I understood, the technician called the specialist( another hospital) had left w\o checking patient.
Patient's eye level was seriously very high. The instructions were to take 1 very powerful diuretic, wait one hour, then released to go home.
Word was received from patient within "3" hours to staff members of severe cramping throughout the pelvic area, along with severe pain and complications ref: urinary tract.
Patient ended up being seen by PCP, then referred to an urologist. No indication of any bacterial infection but all the earmarks of damage spasms of bladder and nausea.
Patient had to undergo a cystoscopy and was put on at least six different medications. The symptoms lasted over 1.5 years.
From last follow up - after ( almost ) 3 years, the symptoms returned.
Patient from last recorded information is now under an urologist's care.
Absolutely, I believe your keen observation.
IN THE EVENT YOU MAY HAD MISSED MY PREVIOUS.
I AM FOLLOWING YOUR HEARING LOSS CLOSELY.
AND! I DID READ YOUR MESSAGE A FEW MJNUTES AGO.
@ >C\O @JeanLouiseFinch
10-12-2016 12:33 PM
I am following your progress too and am glad you were started on Oral steroids.
I have to take HCT (diuretic) every day for my ear because my ear doctor thinks fluid balance in the inner ear is important. Low Salt diet, too.
Please keep us posted and let us know what the specialist has to say.
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