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Respected Contributor
Posts: 4,997
Registered: ‎03-12-2010

Re: Inconclusive Medical Diagnosises


@SilleeMee wrote:

When I was in my 30s I went completely bald for no apparent reason. I went to eight different doctors, some were GPs while others were specialists and one DO. I was offered anything from Rx sedatives to scalp injections and Rx topical treatments. Nothing made my hair grow back. I was bald for about a year until it started coming back on its own. So even if you seek the help of professionals to explain or give you a valid diagnosis, they may not always be able to help.

 

eta - I was never given a valid diagnosis for why I lost all of my hair...including one eye brow btw.


@SilleeMee

 

Did they ever mention alopecia areata?  My friend's daughter had it, and it started when she was about 7.  She has had loss of her hair, eyelashes, and eyebrows at times.  It is an autoimmune disorder.  She has varying degrees of it intermittantly.  My friend (her mother) has had an underlying bald spot in her hair since I've known her, making it suspect as hereditary.

 

Hyacinth

Honored Contributor
Posts: 35,835
Registered: ‎05-22-2016

Re: Inconclusive Medical Diagnosises


@hyacinth003 wrote:

@SilleeMee wrote:

When I was in my 30s I went completely bald for no apparent reason. I went to eight different doctors, some were GPs while others were specialists and one DO. I was offered anything from Rx sedatives to scalp injections and Rx topical treatments. Nothing made my hair grow back. I was bald for about a year until it started coming back on its own. So even if you seek the help of professionals to explain or give you a valid diagnosis, they may not always be able to help.

 

eta - I was never given a valid diagnosis for why I lost all of my hair...including one eye brow btw.


@SilleeMee

 

Did they ever mention alopecia areata?  My friend's daughter had it, and it started when she was about 7.  She has had loss of her hair, eyelashes, and eyebrows at times.  It is an autoimmune disorder.  She has varying degrees of it intermittantly.  My friend (her mother) has had an underlying bald spot in her hair since I've known her, making it suspect as hereditary.

 

Hyacinth


 

 

Yes, AA was mentioned but it was never confirmed by any test, if there ever was one. Today I have scleroderma, which was diagnosed many years after the balding occurred. But I have often wondered if the hair loss was somehow connected to the autoimmune thing altogether...it probably is. @hyacinth003

Esteemed Contributor
Posts: 7,355
Registered: ‎02-22-2015

Re: Inconclusive Medical Diagnosises

@SilleeMee  I also had a bout this hair loss (clumps of hair on my pillow) years before I was diagnosed with an autoimmune disorder. Didn't have any idea what the cause could be at the time so I had my hair cut short and within a year, the hair loss ceased. As my health deteriorated, we (my husband, me and my physicians) everything fell into place. Our PCP's are human and do the best they can with the tools they have at the time. Time and years of labs and recorded charts tell the whole story in many cases. (My memory does not remember everything in my PCP's charts!)   

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