Wellness

[I am still oxox]

@LTT1

Why?  Have you read the list of symptoms, I understand that at times medicine is like looking for a needle in a haystack.

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@LTT1 wrote:

@I am still oxox@hopi@SilleeMee

Thank you for the information. 

I am going to request an endocrine panel.

❤️❤️❤️

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[cherry]

@I am still oxox  my family is hper and I am hypo. They felt so bad they went to the ER ,where it was diagnosed

I think they felt like they were having a heart attack. 

I have been dragging for months. My thyroid meds are keeping things in that area ok. The Dr ran a bunch of blood tests and found I am very vitamin deficient. I am on massive doses of B12 and D. I am getting better ,but it's slow

You might ask them to test your vitamin levels. If they do blood work  on you , they can ask for them to be checked at the same time

[SilleeMee]

I'm a fairly well-educated medical person. I spent my entire career in the field. Many of my close friends are doctors and practitioners. One rheumy friend of mine and I talk shop all of the time. She told me one time that she believes some if not many AI diseases can be triggered by low levels of certain vitamins, in particular D. She didn't quite know if the AI caused the low levels or if the AI was somehow a response to the low vitamin levels. This is all speculative but I found that very interesting. At the time I was diagnosed with scleroderma, my vitamin D and B12 levels were so low they were off the charts. So I think it's very important to have at least the D and B12 levels checked as a overall health indicator.

[LTT1]

@I am still oxox

All the times I have checked my symptoms, this was in the list.

i feel that my doctors have always been narrow-minded, in the past, and have overlooked this possibility.

So many symptoms including fibromyalgia, CFS, and nothing in my regular blood tests. I’d like to get to a more final diagnosis to see what the underlying cause might be.

Also, my DD is starting to show symptoms just the same as mine (early 30’s)... so, I figure it’s for her benefit too.

Good luck with yours.

[I am still oxox]

@SilleeMee

My D and B levels were low, they are now normal" I am now on 5000 MG of D, I do not feel any healthier or stronger.

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@SilleeMee wrote:

I'm a fairly well-educated medical person. I spent my entire career in the field. Many of my close friends are doctors and practitioners. One rheumy friend of mine and I talk shop all of the time. She told me one time that she believes some if not many AI diseases can be triggered by low levels of certain vitamins, in particular D. She didn't quite know if the AI caused the low levels or if the AI was somehow a response to the low vitamin levels. This is all speculative but I found that very interesting. At the time I was diagnosed with scleroderma, my vitamin D and B12 levels were so low they were off the charts. So I think it's very important to have at least the D and B12 levels checked as a overall health indicator.

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[chrystaltree]

I can only speak for myself but for years I had chronic fatigue, chronic muscle and bone pain and I saw army of doctors who couldn't figure it all out.  One did indeed suggest Fibro but I work in healthcare and I wasn't falling for that.  I know that Fibro is usually a catch all diagnosis for "we just don't know what it is".   I ended up seeing an endocrinologist for something entirely different, for a thyroid condition.  Of course, he took a complete history and I broke down in tears as I explained to him what had been going on with me.  He's the one who diagnosed my severe vitamin d deficiency and my hyperparathyroidism.  It took a while, even with the diagnosis he had tinker the meds and there was a lot of testing but he got it under control.  I think that if I'd gone down that Fibro path, I'd either be very sick today or dead.  

[BeccaLou]

lovestoteach, could the water in your area be causing this? Ask your Dr. Or find some way to test your water. Always makes me wonder when people are told to drink plenty of water, because I think NO ONES TAP WATER IS SAFE ANYMORE!!!!

[Gooday]

I was diagnosed with this a few years ago.  3 of the 4 parathyroid glands "lit up" on a nuclear medicine scan.  I had been admitted to the hospital because of severe dehydration, a UTI, elevated calcium and electrolytes that were abnormal.

I was seen by an Endocrinologist and an ENT.  The ENT said that at my age (I was 60 at the time) he would not recommend removing them.  My PCP keeps a close eye  on my blood work.  I will say, I have had a 12 year history of episodic kidney stones.  Mostly, I keep myself well hydrated and a close check on my blood pressure.

[I am still oxox]

I am not seeing the specialist until mid Jan.

I am just so sad that I feel so "sick" and energy- less. 

My husband does not seem to comprehend what is going on, I have not told my Dad and will not until there is something conclusive.

I feel like I have wasted two years trying t get a diagnosis and each day I am falling deeper and deeper into an abyss of hopelessness. 

[cherry]

My dear friend I am so sorry for you. Do you think it might be depression? I am only saying this because it sounds like they have tested you for other things

Depression can cause physical symptoms , my sister suffers from it, so I am a bit aware of how it can really make you feel sick

I hope the Dr can help you. Feeling ill is no joke