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Registered: ‎02-22-2015

Re: Have anyone ever had a hole in their retina?

[ Edited ]

@tototwo  Funny (not ha ha) you should mention an eye patch. I'm wearing one already to keep from using the right eye. Expect to have one following the surgery as well.

The surgeon already told me not to get my head wet in the shower! I've been warned. 

 

KC and Lincoln are about 3 1/2 - 4 hours apart. We're closer to Omaha, which is only 45-60 minutes NE of Lincoln. Omaha also has fabulous  medical facilities, but Lincoln serves the communities of the four states I mentioned. 

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Re: Have anyone ever had a hole in their retina?

 


@lily of the wrote:

I had mine lasered.  It was called a tear in the retina and a sign of this is new floaters in your eye.  It took at least 20 minutes.  They numb the area first but it did get uncomfortable after the last few minutes.  I had to go back for yearly check ups but the last time the doctor said I didn't have to keep coming back.  Everything looked fine.


I had a tear in my retina, several years ago, and had to have immediate laser surgery to fix it, it did not work the first time, because fluid got under it, and so I had to have it done again, and so far I have had no problems with my retina!

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Re: Have anyone ever had a hole in their retina?

I had vitrectomy surgery for macular hole in 2018. I knew before I had it that there was no guarantee of restoring my sight 100%. Every doctor has there own requirement for how long they require the head down so won’t go into all that. Unfortunately the same eye I had the hole, the retina detached eight months after surgery so that was my third surgery on same eye. In addition to vitrectomy I also had cataract surgery same day prior to vitrectomy. My retina doctor wanted the cataract removed before he did his surgery. Even though I am very fortunate that my hole closed, my vision is still distorted but very clear. My doctor told me that after a year there would only be a 5% chance that the hole would ever reopen. I wish you well with your surgery and recovery.
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Re: Have anyone ever had a hole in their retina?

Thanks for this information, @Kindaglitzy.   Even tho it's bad news, it's important.   You're the second person I've talked to recently who had to have the vitrectomy done again.   My surgery was 4 weeks ago today -- I still have the big gas bubble and can't see out of that eye, plus more problems.  I reeeally don't want to go thru that surgery a second (or third!) time.  But I appreciate your taking the time to reply.

* A woman is like a tea bag. You can't tell how strong she is until you put her in hot water. *
- Eleanor Roosevelt
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Re: Have anyone ever had a hole in their retina?

@tototwo I did not have vitrectomy surgery twice only once. The surgery I had on emergency basis eight months after vitrectomy was for detached retina which is totally different. It took quite awhile for my gas bubble to dissolve after vitrectomy, at least two to three weeks, and yes vision was blurry during that time. There is a gasoline bubble that can be implanted after this type of surgery which does not require the head to be kept down. It does however require a follow up surgical procedure to remove it. Don’t know under what conditions that type bubble is considered medically necessary so that insurance pays. Yes, I am thankful for the sight that I have even though there are still some issues.
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Re: Have anyone ever had a hole in their retina?

@BirkiLadyand @Kindaglitzy ~

Just to follow up......... It's now 5+ weeks following my vitrectomy.  I still have the bubble, but it's shrinking.  I had a follow up appointment with my surgeon yesterday.  He told me I'll probably have the bubble another month or so (oh joy!) and it could be a full year before I get my vision back completely in that eye.  Otherwise, I'm "on track" (his words) to a successful healing.  They took a series of scans of inside my eyeball and the hole is "knitting together."  Retina is almost back in its normal position.   I'm telling you this so you know it's a looooong healing process.   Yes, I'm happy with the vision I have and know that eventually it will be much better.  I'm too impatient.

 

Doc told me I could go ahead and drive a car if I drive slow and careful (are you kidding me???  I can't see!).  I still can't lie on my back, fly in a plane, or go to high altitudes until that bubble is totally gone.   BTW, so far my Medicare and Supplement have paid 100%.

 

@BirkiLady- how are you doing with your eye patch?  Does it help? 

* A woman is like a tea bag. You can't tell how strong she is until you put her in hot water. *
- Eleanor Roosevelt
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Re: Have anyone ever had a hole in their retina?

I am not sure if a hole in the retina is the same thing I had, my ophthalmologist referred to it as detached membrane. I needed laser surgery, the sooner the better. A friend came with me and yes your eyes will be dilated. It’s actually not painful at all, it’s really nothing, but I had a lot of nerves going in just like you. I assure you, you are normal! I took a low-dose of Xanax to relax prior to the procedure. Was very glad I had it done. It turned out great. Best wishes with your procedure procedure!
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Re: Have anyone ever had a hole in their retina?

@tototwo  Yikes! I've been thinking of you, but didn't know if you were really able to use a computer and didn't want to push you. What a process. Are you comfortable?   

Are you able to fix meals? (I live alone.) Are you still sleeping on that contraption they recommended renting? Are those things tax deductible?Are you still walking around with your head down so the bubble will mold properly? I'm so grateful you have continued to keep me updated. When were you able to read and sign back on your computer? More questions are popping into my mind, but I'll ask later.

 

Sounds like this is a lengthy recovery. Didn't tell either of us that up front. Cannot imagine driving as you've just described your current situation! Easy for a physician to say; they are young and haven't had the surgery! 

I'm not using the eye patch anymore. It got in the way when driving! I seem to be better without it. Closing my right eye works better, If necessary, in sunlight or when it becomes fatigued or when using the computer. 

Received the Medicare statement today. They paid 100% of the Opthom., which was wonderful. That was $200; which I expected and usually pay. Since I didn't have to pay that this year, I had already purchased a new pair of frames for when this is behind me!  I had asked the specialist/ surgeon about his costs and already know Medicare will pay his bill, but am curious about that cost! Imagine he is expensive. 

 

Keep writing with anything you think of! I'm so interested in your recovery and wish you the best. Hope that bubble goes down quickly. I'm so disappointed to hear it takes so long, but delighted you can SEE! Now know what to expect from a patient who is going through it. What a bummer. Did your Dr. say this is fairly common? Imagine they don't tell us for fear we won't opt for the surgery! Wonder how working people do it?

Many thanks . . . and be soooo careful. I care about your eye!

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Re: Have anyone ever had a hole in their retina?

@Buttercups77  Best wishes on your recovery! 

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Re: Have anyone ever had a hole in their retina?

Thanks, @BirkiLady   My vision is much improved from a month ago - bubble has shrunk to the point that I can see over it.  Like looking over the top of a hill.  Still don't want to attempt driving, tho.  I read these boards and other websites by zooming my computer screen up to 200%.  Can't do crossword puzzles or read books yet.  Like I said, I know it's getting better every week and I'm excited about that.

 

Well, fixing meals, writing checks, anything that I have to look down to do is a problem.  I can see over the top of the bubble when I look straight ahead -- but when I look down, the dark bubble covers my line of sight.   My husband bought me an eyepatch which helps when watching TV, cooking, etc., but I don't wear it all the time.   The elastic band bothers me!   

 

I never rented one of those gizmos to hold your head -- I only had to hold my head down constantly for the first 5 days and I've found a way to prop my head in the correct sleeping position with my bed pillow. 

 

I talked to a lady at a party recently who'd had a vitrectomy a few years ago.  Her bubble was placed in a different location than mine (guess it depends where the hole is?) and she had to hold her head to the left, so her ear touched her shoulder, for a week.  So, holding my head down seems so much easier.  

 

Is your surgery scheduled for mid-January?  Please let us know how it goes.  I'm thinking about ya.

* A woman is like a tea bag. You can't tell how strong she is until you put her in hot water. *
- Eleanor Roosevelt