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09-07-2012 02:53 AM
I am a 44 year old female who was dx'd 7 years ago with PCOS. My husband and I tried for years to get pregnant with no luck isn't wasn't until after we stopped trying that I was finally dx'd by an endocrinologist.
Until now the only symptoms I ever really suffered from regarding PCOS was infertility and easy weight gain. And then it happened....................HAIR LOSS!
Over the last 11 months I have lost close to 40% of my hair........and I am devastated. I discussed it with my GYN (new one.......not the moron who never thought to test me for PCOS way back when) and she didn't have much to say........only that it couldn't be from hormones because I'm still regular? Really? May be time to find another new GYN........next step was my dermatologist. She told be after a pull test it's Telogen Effluvium and should grow back......yadda yadda yadda........she did do some blood work that of coarse came back negative and had me do a "collection". The results of my collection..........according to her was normal??? Is it really normal to lose 300 hairs or more a day sometimes? Needless to say our 1 month follow up appt this week left me so frustrated that she agreed to do a scalp biopsy! She now things...........since this has gone on for 11 months that it is Chronic Telogen Effluvium?? UGH.......I do not have my results back yet.........was supposed to get a call today but you guessed it..........nothing!!! I an so tired of being a number on a chart and not a human being!!
Step 3.........I had an appt this week with a doctor that specializes in Bioidenticle Hormone Replacement Therapy. She seems great..........but time will tell. She decided to test deeper into my thyroid even though my TSH comes back normal every year. Both of my parents have thyroid disease. She also did blood work and saliva testing to get a read on all of my hormones. We have another visit on Monday to discuss the results and where to go from there. I'm so desperate that I'm trying to do anything I can.........
I have never felt so defeated in my life..........it seems that hair loss in women gets pushed by the wayside when it comes to research and finding better solutions. I am lucky to have a supportive husband and friends who still tell me I'm beautiful no matter what and have offered so many suggestions........but I still feel so alone. This has spiraled me into a black hole.......I'm taking xanax daily just to stay sane and have to use Ambien to sleep at night. I fall apart every time I wash my hair and absolutely hate fixing it anymore so up it goes in a clip (the 3rd I've had to buy because it gets thinner and thinner and the others would not hold anymore) I hate looking in the mirror. I feel destined to be in a wig one day.........
Is there anyone here that can relate? That has some words of wisdome? Some possible suggestions regarding how to restore my hair? I'm using Rogaine now........only used it for 6 weeks now but so far I don't see any changes?
Help.......
Tearful in Texas ![]()
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