Wellness

[hyacinth003]

I have been undergoing treatment for breast cancer.  I am in the second round of chemo.  I have completed one round, had surgery, had radiation treatments, and thought I had ONE MORE chemo treatment.  My doctor had told me that when we last meant.

So, I went in yesterday expecting it to be my last treatment.  I am starting to lose my whatever from the treatment.  I can get really depressed and discouraged, and I want to heal from it.

Then yesterday, I was told I needed 2 more treatments (besides the one I was there for) to complete the round - according to the protocol.  I had been given a different drug, once before surgery and once after.  Then my doctor changed it to Kadcycla.  Protocol is 13 treatments AFTER surgery.  He was counting the other 2 treatments, so the math was incorrect.  And then they tell me to get an ultrasound of the liver because my liver enzymes are slightly elevated.

I started to cry in the office!  The doctor apologized, but I didn't feel it!  He said "you don't have to have any more treatments or we can reduce the dose 20%."  I am probably going to take the other 2 at full dose.  I figure in for a penny, in for a pound.

Feeling somewhat shell shocked today!

Hyacinth

[wismiss]

Hyacinth003, I feel so bad for you.  That had to be a LARGE disappointment to think you were through and then to learn you had two more treatments.  I also don't understand how such a miscalculation could be made, but I support your decision of going ahead and getting the other two treatments.  When you do have your last treatment, celebrate by doing something wonderful for yourself.  And, good luck in the future.  My cousin had breast cancer 23 years ago and is still with us.

[Starpolisher]

[beach-mom]

@hyacinth003 - I'm sorry you have to go through this. Like a lot of others I have many friends who have gone through this protocol. 

I will say a prayer for you and for your medical staff. I pray the right doctors are there for you and giving you the right advice. I pray for your comfort and healing as you approach your last treatments.

You are confident in the choice you made for the next two treatments. You have confidence and you have strength. You will get through this!  (((HUGS)))

[elated]

I am sorry you are going through this rough time. Just think you are near the end of the tunnel and sunshine is waiting for you at the end. Just keep trying to be positive and do something for yourself that helps you get through this journey. I know they say the darkness before the dawn but don't give up. I will be praying for your healing. Please let us know how you are doing. Wishing you well.Take care.

[Lilysmom1]

@hyacinth003 , sending a cyber hug to you.  I understand how disappointing this was for you to hear.  Plan something nice for yourself at the end of treatment.  You have done so much already, only a bit farther to go.  Hang in there!

[Carmie]

How disappointing.  No wonder you are upset.

Try not to be discouraged.  You will be done soon.  It will be behind you before you know it.

I am sending healing prayers your way.  Hang in there a little longer.

[Natureluvr]

Do you have a cancer support group in your area @hyacinth003? I’m sure most have a hard time going through this. I’m glad you reached out to your fellow forum members. I wish you well!

[Skyegirl21]

I'm so sorry this happened, mistakes happen...  I think you are absolutely doing the right thing, taking the treatment exactly as the doctors originally wanted. That's what I would do.
Please try to reframe it to yourself that this is killing every cancer cell so you don't get a recurrence!  Just accept it and you will get through. Agree with last post that a support group is a great idea. Sending love and wishes for a perfect outcome, NO recurrence. 💝💝🙏🙏👍🏼

[LTT1]

@hyacinth003 

@Skyegirl21 @Natureluvr @Carmie @Lilysmom1 

I feel badly for you too!

Doctors should really be taught the proper way to respond to a patients concerns. There are right ways to respond empathetically and wrong ways.

Where do they get off dismissing us?

My encounters with doctors have often been discomforting...and it seems to happen at the worst, most crucial times.

I can only wonder at this behavior...as a patient I don't care if they were #1 in the med school class or not....it is MY BODY. And that makes my treatment VERY PERSONAL.

I cannot imagine having to endure the raggedness of chemo...❤️‍🩹

I am wishing you mental peace, calm and wellness as well as comfort. Hang in there.