@Trinity11 wrote:
@LilacTree wrote:
@Trinity11 wrote:
@LilacTree wrote:
@Trinity11 wrote:
@LilacTree.......kind of bittersweet for you I suppose. In one aspect it's good that he is self-sufficient and is going to have his own apartment but I know you were looking forward to him being around and living with you.
Hopefully, he will grace you with lots of visits and you can see him frequently. There is nothing quite like having young people around us. I love when my children come to visit and when I see my grandson.
Good luck with everything.....
@Trinity11
Nothing would have changed really, Trinity (except maybe he could have taken out the trash, LOL). He works days and sleeps at night, so I wouldn't have been seeing that much of him anyway. He wants to begin college in the fall, so I am just hoping he will be able to save enough money to make that possible.
Since my daughter sleeps all day and is awake all night, I am kinda living alone anyway.
There are many scholarships out there for a variety of colleges. My children went on a free ride and got excellent educations. They went on to graduate school and are very successful. There are also loan programs that will make it possible for him to attend school. If he is emacipated from his parents, there are a number of financial aid plans that he would probably be eligible for. College is so expensive that saving his money, although admirable, will probably leave him with a lot of debt. I hope he explores many options.
As far as your daughter, has her health improved with the infusions? Has she seen anyone for her depression? It cannot be easy for you having to witness her deteriorating health.
@Trinity11
I guess I have to say it's complicated. He already has a college loan that he is paying off and if you will forgive me, I will spare you the details. Fact remains, he already has debt. His plan (which I agree with) is to go to community college for two years, which is much less expensive, and then transfer to a university.
Of my three girls who went to college, only one went directly from high school to college (University of Delaware). The other two worked for two years first to save the money and then went on to Rutgers and Rowan (which was Glassboro at the time). All three graduated with honors.
Unfortunately, I was a mere secretary at the time, making just enough to support us in a rental apartment. I was fortunate that I was poor enough to get them all Pell Grants, which helped. Their father was well off and living with his third wife in California. He never contributed to anything. All four of my girls paid for their own educations, bought their own cars, paid for their own weddings, etc.
My sick daughter will be getting her third infusion this coming Tuesday, so it's too soon to see if this is going to work. She has to pay cash, insurance will not cover it, and it is not cheap. Yes, I worry about her constantly.
Ford, I have found over the years when my insurance refuses to pay for something it usually means it has no proof that it will work. I wanted Repatha for cholesterol because it is not supposed to give muscle pain and it cost over a thousand a month. I have done research and it isn't nearly as effective as Lipitor and that's the real reason, insurance won't pay for it. Proven methods and clinicals on a particular treatment still play into it. It is a shame that your daughter doesn't want to get well with conventional medicine. She is choosing a path that could greatly influence her future but I understand as a mom myself, our kids do what they want to do whether we question it or not.
@Trinity11
Trinity! No. She did try conventional medicine and was on antibiotics for several years, sometimes two different ones at the same time. The doctors told her they had nothing else to offer her. Most don't even believe chronic Lyme exists!
This "new" doc is her "old" PCP. He is trying this because he already knows none of the other ones work and he knows she's really sick. There is only a less than even chance that this will make her feel better . . . nothing, so far, has been done to work on a cure. It's similar to AIDS and other autoimmune diseases. It can only be "treated" or "controlled." And some are lucky enough to go into remission. Those are the so-called "cures." However, the spirochetes are still there, they are just not active, as hers wasn't for decades. Anything can set them off again.
Lyme can be cured in its very early stages (within three weeks to a month) by taking doxycycline, the antibiotic of choice. Once one has not been diagnosed after that, it becomes chronic and can emerge decades later, as it has with my daughter. At that point it is incurable.
At first, they weren't doing the right tests. When she finally was tested with the right test, she showed positive for Lyme. Unfortunately there is no cure for chronic Lyme.
She is not being stubborn, she has tried everything. She still tests positive for Lyme. She does need to address the depression and I am so hopeful that she eventually will. But a good psychiatrist or even psychologist is necessary for that, someone with experience with Lyme patients.
A therapist such as the one I am now seeing has no knowledge of Lyme at all. I asked her, and she said although she does see individuals with physical illnesses, she only treats the depression the illness causes, she does not attempt to treat the illness itself. That was an honest answer.
Formerly Ford1224
We must always take sides. Neutrality helps the oppressor, never the victim. Silence encourages the tormentor, never the tormented. Elie Wiesel 1986
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