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‎10-04-2023 08:31 AM
I'm sorry to hear of your pain and hope your doctors can get to the bottom of it soon. Please know that I will be praying for you.

‎10-04-2023 08:48 AM
@kindred cats I had a full physical at the start of the Summer, its doubtful that my body is rejecting the DRG box, all leads to my spine are still in tact and the controller box was reprogramed about two weeks ago. Thank you for your concern
@kindred cats wrote:Have extensive labs been run on you?
How long have you had the box implant for pain? Could your body be rejecting the implant?
I've learned anything is possible so I hope not only labs but xrays, scans, etc. have been taken. When you know something's not right, perservere the best you can to find the answers.
Keep at it @I am still oxox ... there has to be an answer. Force the issue if possible. So sorry this has happened to you. Sending healing thoughts your way!
It was brave of you to reach out to your friends here.
‎10-04-2023 10:59 AM
Have you talked with another doctor? If you have an over-active thought process, that isn't going away, you may want to speak to a psychiatrist and maybe someone to share your thinking with, will help you with sleep, and de-stress. It's worth a shot.
‎10-04-2023 11:35 AM
@I am still oxox . . . I wish you the best possible outcome that relieves your pain. Hugs and well wishes to you. ![]()
‎10-04-2023 12:22 PM
@I am still oxox wrote:@FancyPhillyshopper I startd with a new blood thinner on a new blood thinner on Aug 4, I have been to my Cardio twice, my Ortho and my Pain management doctor and all swear it is not from the medication. I switched to another med a week ago and still feel awful. I do not drive and can not travel alone which makes seeing all sorts of professionals a challange at time, but thank you for your suggestions
@FancyPhillyshopper wrote:
I am sorry to hear this news--having to deal with pain is terrible.
It could be that your doctors are just not skilled enough at diagnosing the issues!
Yes, I do think that there are many complex medical situations that require consulting experts and specialists. I do this all the time for my pets--so why wouldn't I do that for myself?
Unfortunately in this day and age, you have to be your own best advocate for everything! You will need to seek out second opinions and experts to explore what is causing your reactions.
Yes, I believe in other methods of assistance like acupuncture, massage, exercise, and meditation, etc., but it could well be true that somehow internally you have affected your system and caused it to shut down and be in pain.
I do not understand why you were mobile at the beginning of the Summer and then immobile at the end--obviously there was a drastic change. Did this occur when you started the medicine? Do you have to take the medicine as a life or death issue? What if you stop for a while, and then see if you improve?
You need to be assertive and demand medical assistance to resolve your issues. Best wishes!
Blood thinners are not in the area of expertise of an Orthopedist or Pain Management doctor so I would take their opinion with a grain of salt and like @FancyPhillyshopper said are just not skilled enough.
I know it's easier said than done but if it were me I'd be looking for second opinion from a new Cardiologist.
‎10-04-2023 12:25 PM
@I am still oxox So sorry that you still are in pain. Sending good wishes that you find relief.
I agree that we must be our own advocates when it comes to medical care.
‎10-04-2023 01:16 PM
@CelticCrafter I was referred to see my Ortho and Pain Management since the Cardio team does not believe that the blood thinner is not causing the difficulty
@CelticCrafter wrote:
@I am still oxox wrote:@FancyPhillyshopper I startd with a new blood thinner on a new blood thinner on Aug 4, I have been to my Cardio twice, my Ortho and my Pain management doctor and all swear it is not from the medication. I switched to another med a week ago and still feel awful. I do not drive and can not travel alone which makes seeing all sorts of professionals a challange at time, but thank you for your suggestions
@FancyPhillyshopper wrote:
I am sorry to hear this news--having to deal with pain is terrible.
It could be that your doctors are just not skilled enough at diagnosing the issues!
Yes, I do think that there are many complex medical situations that require consulting experts and specialists. I do this all the time for my pets--so why wouldn't I do that for myself?
Unfortunately in this day and age, you have to be your own best advocate for everything! You will need to seek out second opinions and experts to explore what is causing your reactions.
Yes, I believe in other methods of assistance like acupuncture, massage, exercise, and meditation, etc., but it could well be true that somehow internally you have affected your system and caused it to shut down and be in pain.
I do not understand why you were mobile at the beginning of the Summer and then immobile at the end--obviously there was a drastic change. Did this occur when you started the medicine? Do you have to take the medicine as a life or death issue? What if you stop for a while, and then see if you improve?
You need to be assertive and demand medical assistance to resolve your issues. Best wishes!
Blood thinners are not in the area of expertise of an Orthopedist or Pain Management doctor so I would take their opinion with a grain of salt and like @FancyPhillyshopper said are just not skilled enough.
I know it's easier said than done but if it were me I'd be looking for second opinion from a new Cardiologist.
‎10-04-2023 01:20 PM
So sorry to hear this..... some medications make you worse and cause depression. Also that you are noticing this is a good thing but really sounds like these meds have brought on your anxiety. Is there anyway to get off the meds and see if you can recover.
‎10-04-2023 01:22 PM
Prayers for you,
‎10-04-2023 01:30 PM
Thank s everyone for your replies
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