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02-24-2021 06:05 PM
I am going for an EMG test since I have been experiencing tingling in my feet.
Anyone have one recently and what can I expect?
02-24-2021 06:31 PM
I had one a few months ago , it is not pleasant , but not bad in my opinion , it pretty strong shocks for a very short time on several different areas of legs and arms. My neeurologist would tell me what to expect each time and then ask me if i was doing okay. I think the average person would do okay , unless you are a super sensitive person. Good luck and don't worry about this procedure. Report back and let me know if you agreed with me.
02-24-2021 08:47 PM
I had to have one a few weeks ago. Same problem .... tingling in feet, cramping in toes during sleep. Didn't like the test and I still have the problem. No answers.
02-24-2021 09:30 PM - edited 02-24-2021 09:42 PM
I have CIDP which is an off shoot of MS, so I have had several EMG'S over the year's. It feels like a am being electrocuted. My nerve damage is on Ground Zero. The last one was done by two students learning how to do them. OUCH.
02-24-2021 09:43 PM - edited 02-24-2021 09:46 PM
@twinny70 wrote:I have CIDP which is an off shoot of MS, so I have had several EMG'S over the year's. It feels like a am being electrocuted. My nerve damage is on Ground Zero. The last one was done by two students learning how to do them.
I also have CIDP, the one-in-a-million disease. I was diagnosed at Mayo.
Sorry to say the ones I've had were pretty bad. Maybe I'm a softie as someone else mentioned.
My Neurologist said he never did them without pre-test pain meds. Unfortunately that was After someone else had already done my EMGs!
Best Wishes to Both of you.
02-24-2021 09:53 PM
@Drythe wrote:
@twinny70 wrote:I have CIDP which is an off shoot of MS, so I have had several EMG'S over the year's. It feels like a am being electrocuted. My nerve damage is on Ground Zero. The last one was done by two students learning how to do them.
I also have CIDP, the one-in-a-million disease. I was diagnosed at Mayo.
Sorry to say the ones I've had were pretty bad. Maybe I'm a softie as someone else mentioned.
My Neurologist said he never did them without pre-test pain meds. Unfortunately that was After someone else had already done my EMGs!
Best Wishes to Both of you.
I remember you telling me that you have CIDP. Our ds originally diagnosed me with GBS almost 20 years ago, but then knew that it was CIDP as I had a terrible relapse. I spent two weeks at the Mayo Clinic getting Plasma Pheresis (sp)? I am getting IVIG infusions every 8 weeks at the Meriter Infusion Center and doing well. My next one is on Monday.
02-25-2021 12:24 AM
@Nataliesgramma The test itself is no big deal. No real pain, a twinge of tingling is about all. I hope you have a good result from your test.
02-25-2021 02:09 PM
@twinny70 wrote:
@Drythe wrote:
@twinny70 wrote:I have CIDP which is an off shoot of MS, so I have had several EMG'S over the year's. It feels like a am being electrocuted. My nerve damage is on Ground Zero. The last one was done by two students learning how to do them.
I also have CIDP, the one-in-a-million disease. I was diagnosed at Mayo.
Sorry to say the ones I've had were pretty bad. Maybe I'm a softie as someone else mentioned.
My Neurologist said he never did them without pre-test pain meds. Unfortunately that was After someone else had already done my EMGs!
Best Wishes to Both of you.
I remember you telling me that you have CIDP. Our ds originally diagnosed me with GBS almost 20 years ago, but then knew that it was CIDP as I had a terrible relapse. I spent two weeks at the Mayo Clinic getting Plasma Pheresis (sp)? I am getting IVIG infusions every 8 weeks at the Meriter Infusion Center and doing well. My next one is on Monday.
I had 3 awful bouts, totally paralyzed.
Dr. started IVIG 4 hours each time, 2 days in a row, every 2 weeks for a year.
Then I started spreading them out, same dose, first every three weeks, waited 6 months or so, then every 4 weeks...
After 3 years I got them up to every 8 weeks, and still had no symptoms.
Told my local Neurologist, and Mayo Neurologist I wanted to stop IVIG. No one could give me any advice about what might happen, etc. I stopped 8-27-2019.
I was SO Fortunate! Still OK! Fingers Crossed!
Wishing You All The Best.
02-25-2021 05:12 PM
@Drythe wrote:
@twinny70 wrote:
@Drythe wrote:
@twinny70 wrote:I have CIDP which is an off shoot of MS, so I have had several EMG'S over the year's. It feels like a am being electrocuted. My nerve damage is on Ground Zero. The last one was done by two students learning how to do them.
I also have CIDP, the one-in-a-million disease. I was diagnosed at Mayo.
Sorry to say the ones I've had were pretty bad. Maybe I'm a softie as someone else mentioned.
My Neurologist said he never did them without pre-test pain meds. Unfortunately that was After someone else had already done my EMGs!
Best Wishes to Both of you.
I remember you telling me that you have CIDP. Our ds originally diagnosed me with GBS almost 20 years ago, but then knew that it was CIDP as I had a terrible relapse. I spent two weeks at the Mayo Clinic getting Plasma Pheresis (sp)? I am getting IVIG infusions every 8 weeks at the Meriter Infusion Center and doing well. My next one is on Monday.
I had 3 awful bouts, totally paralyzed.
Dr. started IVIG 4 hours each time, 2 days in a row, every 2 weeks for a year.
Then I started spreading them out, same dose, first every three weeks, waited 6 months or so, then every 4 weeks...
After 3 years I got them up to every 8 weeks, and still had no symptoms.
Told my local Neurologist, and Mayo Neurologist I wanted to stop IVIG. No one could give me any advice about what might happen, etc. I stopped 8-27-2019.
I was SO Fortunate! Still OK! Fingers Crossed!
Wishing You All The Best.
Wow! What a story. I started getting IVIG infusions every 6 weeks for 2 days at a time in the hospital. Then after my first & only relapse when I was paralyzed, I got infusions 3 times a week for 6 weeks. Then twice a week for 6 weeks, then once a week for 6 weeks. Then every two weeks for 6 weeks, Then once a month every 6 weeks. It took a long time for me to get to the every 6-8 weeks plan. I have been on this plan for quite a while & it's works well when we did a lot of traveling. That all ended last year in March. We just got our 2nd vaccination & are hoping to be able to start traveling in the Fall of this year. I am wishing you all the best too.
02-25-2021 05:59 PM
It took me > 3 years to work up to 2 days every 8 weeks. Then I was able to stop. Fingers Crossed!
I too miss traveling! Have been fortunate to visit many countries.
Hope both of get our wings back soon.
Happy Trails To You!
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