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Honored Contributor
Posts: 13,024
Registered: ‎03-13-2010

Re: Do you know anyone who has or had hospice care

@Kachina624    I am so sorry you had to go through that.   I also had "problems" with the home health "nurses"..........they would forget to change my mother's morphine patch, and she would go into withdrawals.   di

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Honored Contributor
Posts: 48,544
Registered: ‎03-10-2010

Re: Do you know anyone who has or had hospice care

@desertDi   Most people rave about hospice programs but sister and I have a different opinion.   They told us we couldn't overdose dad with the Morphine so we administered it and I've never gotten over the feeling we killed him with it.   We called at 2am and ask for someone to come help us and they refused.   He died about 4:30am.

 

After it was all over,  we had a conference call with the director and really tied into her,  for all the good it did. 

New Mexico☀️Land Of Enchantment
Super Contributor
Posts: 433
Registered: ‎02-16-2014

Re: Do you know anyone who has or had hospice care

[ Edited ]

Sorry you are going through this hard time, it will be so much better when you get everything figured out. 

 

There should be someone at the hospital (sometimes called a care coordinator) who can connect you with services and groups that can assist you with placement of your husband in the right type of care facility. You don't need to be shy about asking the care coordinator any type of question you may have. 

 

 What a difficult thing for you to be dealing with, consider your own health and what you are really able to do.   There are skilled nursing facilities that people can go to for short stays.    Wishing you all the best.

 

 

  

 

 

 

Respected Contributor
Posts: 3,279
Registered: ‎05-15-2010

Re: Do you know anyone who has or had hospice care

When my DH was very ill with complications from Alzheimer's and I cared for him at home, I talked to his doctor and he approved Hospice care for my DH.  They came to the house and set everything up; they were so very helpful to me and him.  He passed away in our home after about six months.

 

My suggestion is for you to contact his doctor and see what he can help you with.

Respected Contributor
Posts: 3,276
Registered: ‎04-27-2015

Re: Do you know anyone who has or had hospice care


@Yulka wrote:

You should check up the nursing home they plan to send him to to find out the kind of service they will give your DH       My late husband had to go to a nursing home after his surgery which he signed himself out of due to the care and nurses having way to many patients to help them all     He was getting home care also but as you said not everyday

Good Luck in finding the right place for him to go to with your blessings

 


He was right to leave the nursing home. Too many patients, too many mistakes made. I work in a nursing home and would avoid it if there was another choice. It is also sad to see the lack of work ethic but that is everywhere today.

Honored Contributor
Posts: 12,731
Registered: ‎03-09-2010

Re: Do you know anyone who has or had hospice care

@halfpint1First, my sympathy for what you and DH are trying to cope with.

 

Then, please ask locally what the Hospice "rules" are -  terminal within 6 months was true pretty much everywhere at one time.  It's not now true, so they may be able to give you more help than that.

 

My older brother had hospice at home many years ago and it was pretty much for him what I think you've been told.  Friends came and helped my SIL set up a hospital bed in a spare bedroom.  That, an oxygen source, and a potty chair were what I remember in that "hospital room" where my brother lived the last 3 1/2 months of his life.  He'd been a smoker and an alcoholic and was actually proud to tell me about sigining the Hospice pledge acknowledging his illness.

 

Hospice personnel were so helpful.  My SIL credits them with showing her how best to care for my brother and almost as important, how to care for herself mentally and physically through those months. 

 

Finally, what I hear most often from family and friends who have faced these serious illnesses is that they waited too long to investigate Hospice, not that it felt ghoulish to do it.  Especially now when the patient may not need to be imminently terminal, I'd be finding out how Hospice works in my area if I were you.  The "rules" change from place to place and from time to time.

Respected Contributor
Posts: 3,276
Registered: ‎04-27-2015

Re: Do you know anyone who has or had hospice care


@Big Sister wrote:

When my DH was very ill with complications from Alzheimer's and I cared for him at home, I talked to his doctor and he approved Hospice care for my DH.  They came to the house and set everything up; they were so very helpful to me and him.  He passed away in our home after about six months.

 

My suggestion is for you to contact his doctor and see what he can help you with.


Have used hospice twice and they are vvery special people. They want to help in every way.....from care of your loved one to going to the store to get food for you.

Honored Contributor
Posts: 8,506
Registered: ‎03-10-2010

Re: Do you know anyone who has or had hospice care


@Kachina624 wrote:

@desertDi   Most people rave about hospice programs but sister and I have a different opinion.   They told us we couldn't overdose dad with the Morphine so we administered it and I've never gotten over the feeling we killed him with it.   We called at 2am and ask for someone to come help us and they refused.   He died about 4:30am.

 

After it was all over,  we had a conference call with the director and really tied into her,  for all the good it did. 


Kachina I'm So Sorry. I no it's no consolation, but I felt the same way with both my mom, at age 95, and her ster. There really are n "good" alternatives that I'm aware of.

Esteemed Contributor
Posts: 5,225
Registered: ‎03-11-2010

Re: Do you know anyone who has or had hospice care

My father had hospice care at home during the last two months of his gastric cancer. That was in central NJ and I cannot give enough praise to the nurses and volunteers who helped all of us through the ordeal. My father's pain was relieved and the nurses treated us family members as part of the whole circle of care. They taught us what to expect, what to do, and how to deal with Dad. I would have been lost without them. My father died just as he wanted to, with his loving family by his side. It was a moving experience. They were truly angels of mercy. When my time comes, that's how I want to be treated.

Honored Contributor
Posts: 17,119
Registered: ‎03-10-2010

Re: Do you know anyone who has or had hospice care

I echo everyone else here in their advice.  I feel for you during this difficult time.  I hope that there is another family member who can help you navigate all of this with you so that you are not alone.

 

 

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